Cerebral Palsy :: Baclofen Pump? Do You Have One?
My 12 (almost 13) year old daughter is about to get a baclofen pump. She is a foot user as her arms are severely spastic and have a mind of their own. The doctors all say that it will help with her hip pain (she has a dysplastic hip, it is on the leg that she uses) as well as the spasticity and tightness and pain that she has. they also say that it may help with her speech (she speaks very slowly and sometime cannot speak so well as her tightness makes her mouth all wonky).
She has botox about a year ago and it worked wonderfully... for about a week. so the doc does not want to do it anymore. I am totally ok with the pump and she really wants it, but i wanted to speak with others who have CP and have experience with the pump to know what your experience is.
Bells' Palsy - Non Cerebral :: Day By Day Experience
Day 1
I woke up after having a cold/bad throat for about a week and noticed it was a little difficult to speak. I had a look in the mirror and thought it was because of the cold. By lunch time I could not grip a straw with my lips and one side of my mouth and my cheek would not move properly. I tried to wink or blink and could only do it with one eye and when I tried to screw my face up it only did it on one side. I did think that had a stroke and booked an appointment at the Doctors. She gave me a course of steroids and gave me a leaflet that explains about BP.
Day 2
My eye is a little worse today, I had a little control over my blinking yesterday and today it is almost impossible. It just continually streams that is quite a nuisance. I went and bought some surgical tape to tape it closed with tonight. It is far harder to get food in my mouth today as well as it does not seem to open as well as it did yesterday. On the plus side I do think I still have my taste on the left side. I get pins and needles and twitching around the area of my jaw and my forehead ATM.
Training Of Cerebral Palsy - Books And Equipment?
When the heel of both feet cannot reach at the ground in cerebral palsy, what kind of training is considered?
In what kind of training is standing training of cerebral palsy carried out with this institution?
Please let me know the books which can be recommended by home training of cerebral palsy?
Although purchase is considered for the training equipment for functional exercise of cerebral palsy at home, what kind of training equipment is proposed
Cerebral Palsy :: Dealing The Fatigue With Aging
I just want to know how the rest of you are dealing with the fatigue of a work day and fighting the fatigue. I'm 38 but most days I feel 108!
View 4 RepliesCerebral Palsy :: Memory Loss With - Sense Of Direction Is Bad
I have a few problems I would like to ask about as I'm unsure if it's just me or not? The first one being my short term memory isn't very good at all, for example if I get asked to do something if I don't write it down I forget very quickly,another problem I have is my sense of direction it's bad. I can go somewhere (through to town) but I can't seem to memorise my way around. I'm now 29 and used to go with my friend every other weekend, no matter how many times we went I couldn't and still can't remember my way around. I hope what I've written makes sense and like I said I'd like to find out if it's a related problem to cerebral palsy or not.
View 4 RepliesCerebral Palsy :: Exhausted / Fatigue And Gets Pins And Needles
My daughter was born at 32 1/2 weeks and has very mild cerebral palsy, she is now 17 and experiencing days when she can't get out of bed. She is just exhausted and gets pins and needles. The doctor suggested it could be ME but I wondered if its a result of her Cerebral Palsy. Every time she does something that requires more mental or physical input than normal she is then wiped out for 2 days. Her CP has never really affected her, she wore Piedro boots as a child but recent years has had a "normal" life. Would really appreciate some input, she is due to have an MRI next week.
View 1 RepliesPalsy - Non Cerebral :: 2 Days Ago I Woke Up And Hopped Onto My Computer
2 days ago I woke up and hopped onto my computer like I do every morning (I'm 16/male and on summer vacation). I noticed that it felt awkward when I tried to blink my left eye. I didn't think anything of it and just continued on with my day.
The next day I woke up to the sound of my phone. I picked it up and it was one of my friends. He told me something that had happened the day before and made me laugh. I noticed that when I laughed only the right side of my face would move. I thought this was very strange and I got a bit scared.
I got off the phone and went to the bathroom and this is where I really freaked out. I couldn't move the left side of my face properly. Everything on the left side seemed a lot weaker than my right.
I tried looking it up for a few hours to see if anyone else has ever had this. I couldn't find anything except for a few forums with people saying it happened to them, but I still couldn't find out if it had a name. I was really scared and was having suicidal thoughts if this turned out to be permanent.
Anyways, I'm very very happy I found this site and that it heals itself. I told my mom and she's going to take me to the doctor so maybe he can give me steroids or something.
Summer vacation ends in about 3 1/2 weeks. I hope I recover by then because I'm not going to school like this, I don't care what my parents say.
I'll keep everyone updated. This is my second day so far with this dumb BP crap.
Palsy - Non Cerebral :: Left Eye Would Not Close While Working On Computer
Yesterday, while working on my computer, I noticed my left eye would not close. Within an hour my lip was drooping and eating was difficult. This morning, my Dr. diagnosed Bell's Palsy and has prescribed a course of steroids. My eye is taped shut to prevent dryness and I feel like I am falling apart,--a a thought that occurs frequently as the my 65th birthday approaches. I have chronic kidney disease and want to know if there is any alternative remedy for this hell known as Bell's Palsy.
View 1 RepliesBell's Palsy - Non Cerebral :: Botox To Correct The Nerve Damage
In 2003 I had really painful headaches so bad I could hardly put my head on a pillow, pretty scary as I do not suffer from headaches. Then as I was eating bowl of cereal I kept missing my mouth and realised I couldn't feel my lips or tongue as though I had been given dentist injection. My sister took me to hospital thinking I was having a stroke, this was the first time I had heard of Bell's palsy and I was given steroids, i was very tired and it was an effort to do anything like eat, speech, it did take three months to go.
february 2014 I got a rash on my stomach which spread to my neck, to my back, to my feet, then to my scalp and then my ears, I was in agony, it was urticaria. Whilst trying to cope with this I then got Bell's palsy again, possibly due to an immune system at a low. However it has taken a lot longer to recover this time. Eighteen months later and I still have a twitchy eye and lopsided smile. I am now considering Botox, has anyone here used Botox to correct any of the nerve damage left after palsy and if so what are your thoughts?
Calf Muscle Tightness After Running
I've just recently started running. At first it went fine, and I began to gradually increase my endurance and speed, really happy, etc. etc, until recently, I've been struck down by a mysterious malady.
While I run, my calves tighten up, and it becomes nearly impossible to finish the run. It's not plantar fasciitis or achilles tendonitis (no swelling, for one thing), but I can't consult a real doctor because I'm living in Japan and have no insurance and a very limited command of the language.
I did purchase new and good shoes, but no dice. I've consulted numerous of my track-involved friends, who offered various bits of contradictory advice. One person advised about 20 minutes of stretching before and after a run. Another said to not stretch before running, and stretch each calf for 3 sets of 30 seconds each. Those are the two extremes, and most suggestions fall somewhere in the middle. I make a point of doing a couple minutes of stretching (basic calf and thigh stretches), but nothing extensive, and I'm not sure what alterations I should make to my routine. I also took some time off, and just walked for my exercise, but when I started running again the problem returned.
Please help, any assistance would be appreciated. I'm just starting to get into running and just starting to get into shape, and I'm afraid that if this affliction keeps on going I will lose the motivation I've managed to fire up.
Achilles Tendon Rupture Or Calf Torn Muscle
Achilles Tendon rupture or calf torn muscle: Does a Achilles tendon rupture make calf to swell up ?
After a couple days only between the calf and ankle got swell up... I did perform the 'calf squeeze test' and my foot moved a little ( probably because the muscle it's inflamed still??).
Calf Muscle Stiffness, Sense Of Slight Tearing And Pain Around Achilles
A year ago I got hospitalised for a gunshot wound a couple of centimetres above the knee. I didn't stay long in the hospital, although I've almost lost all my blood. I had excellent care, doctors and nurses were sincere and dedicated.
After I got out my calf was swollen, and painful, I had a splint to support my leg because a major vain in my leg was ruptured and the doctors "fixed it" :) . Of course there were a couple of openings in my calf for the drain, and I got these wounds cleaned and checked regularly. After four weeks I removed the splint, the wounds had crust over them and every thing was relatively ok, and the pain remained.
Over the following weeks the pain decreased gradually, only one spot caused me slight pain, and that is just around the achilles tendon just above the bulging bone above the foot. An area of 15 X 5 cm in the superficial flesh, the pain isn't deep that's why I wrote around the tendon not in it or the like. This area felt very stiff, not swollen, but stiff and painful when pressed.
Also for the calf in general, there was slight stiffness without pain except in the area I aforementioned, this stiffness worsened with walking or effort, and in my hip just right under the bullet wound - behind my knee - there is still a slight sense of tear.
During my time in the hospital, I had antibiotics added to the IV solutions, I still don't know what were these antibiotics until now. But I had augmentin and ceftriaxone prescribed for four weeks, I developed allergy and re-prescribed for ciprofloxacin 500mg triple a day for the rest of the period.
Sorry for the lengthy intro, now to the question matter.
I had the flu a couple of weeks ago, it was bad, I began taking nigella "black seed" oil capsules 400mg triple a day, as I read it kills the virus, and I took vitamin c effervescent tablets. But It didn't work so I took ciprofloxacin 500mg twice a day with it, the flu began to feel better, BUT also the pain in my leg, the sense of tear began to feel better. This got me really alarmed, cause if the pain felt better with antibiotic supported with immune booster supplement, this means there is a resistant infection there. And this is causing me horror actually.
I'm going to see skeletal muscle specialist - don't know what's the word for it - tomorrow, but also I need another opinion.
What could be the pathogen that causes these mild symptoms? Why is it resistive? and is it dangerous/fatal?
also after the flu symptoms cleared, I stopped the antibiotic for a couple of days. The pain and the stiffness in the area I aforementioned came back, but weaker and the slight tear just under the gunshot wound - behind my knee - began to travel upwards my hip, so I continued both nigella oil capsules and ciprofloxacine back immediately.
Bell's Palsy :: Musician's Palsy - Play The French Horn
I play the French horn and got the Bell's palsy after an exceptionally day playing 3 weeks ago. It seems to be fading already. I was sent to the stroke unit and found to be A1 in all other respects. My treatment was 7 days x 60mg steroids. If I return to playing, will it happen again?
View 2 RepliesNeurological Disorders :: Pseudobular Palsy? (Or A Bulabar Palsy?)
A person i know has suffered a stroke 8 years ago. He says he woke up at night wanting to go to the bathroom, but found unable to get up. He had his mouth drawn to the right side. His wife has taken him to the hospital. He was diagnosed to have suffered a stroke and had hypertension and hyperlipidemia.
The patient suffers dysarthria without improvement ever-since. Has drooling, fasciculations in the tongue. A small dent in the tongue which (i'm not sure) may be attributed to wasting. Jaw jerk is normal (I think so). No weakness in arms and legs.
What is this condition. IS it Pseudobulbar palsy? (Or a bulbar palsy?)
P.S: There is not pseudobulbar affect in this patient. Can a patient have pseudobulbar palsy without having emotional instability?
(Age 18-24) Pregnancy :: Vomiting All Day - How To Ease My Nausea
I've been vomiting all day any one know of a way to ease my nausea ....
View 7 RepliesAnxiety :: How To Ease Pressure In Head
Does anyone else suffer with head pressure and is there any way to ease it ?
View 4 RepliesTramadol Help Ease Methadone Withdrawal ?
will tramadol help ease my methadone withdrawal
View 5 RepliesPolymyalgia Rheumatica :: Anything To Ease The Pain Of Bursitis?
I was diagnosed with this condition a few years ago in my left hip. I was given a steroid injection in my thigh and to be truthful, I completely forgot about the pain. I still get niggly pain, but nothing I can't cope with. In January this year, I was diagnosed with it in my right hip and was given a steroid injection in March. It worked for a couple of days, but after that, the pain is worse than before. I am due a follow up in September. Painkillers don't seem to help at all. Any other sufferers out there?
View 15 RepliesPassing Kidney Stones With Ease - My Experience
Bit of background; I'm 26 years old, male, live a relatively healthy, active lifestyle apart from not drinking enough water (paying for that now).
About 5 months ago I kept experiencing a dull ache in my groin area, it usually subsided within about 30 minutes so I thought nothing of it. Anyway, one night I got up to go to the toilet and the pain in my groin suddenly hit me like a brick to the face. I was doubled over and can honestly say I have never ever experienced such severe pain in my life. First thought was that my appendix had burst. My girlfriend called an ambulance and I ended up in A&E. The doctor came in and immediately said 'kidney stones', I shuddered. They gave me some pain killers (suppositories unfortunately as the pain was making me vomit). They took my blood and sent the results up to the lab. About 45 minutes later a nurse came in and asked me to do a urine sample. I was still in quite a bit of pain and hadn't drunk anything since the previous night but I complied. Well, all that came out was essentially pure blood, it looked very 'bitty' and I thought something was seriously wrong (apologies for delving into detail so much, I just think it helps to know everything). The nurse came in and said that didn't look too good so she sent it off for testing. They hooked me up ready to take an IV drip just in case I had to stay in.
When the doctor returned he told me that I didn't have kidney stones but had a mild kidney infection. They sent me on my way with a pack of codeine and some antibiotics. I took a week off work and just rested. By the end of the week I was back to normal.
Two weeks ago I was on holiday in Florida doing the usual touristy thing, Disney, Universal etc. Due to my hatred of bland water I hadn't been drinking that much and given the 40+ degree heat we were experiencing, that probably wasn't the best idea. At the end of week one I was lounging in the jacuzzi at the hotel, when the ache in my groin reappeared, it took me by surprise as I hadn't had any pain since being in hospital. I took some painkillers and thought nothing of it. Later on while out to dinner I went to the toilet and noticed some blood in my urine (I'm a bit of a worrier so immediately I was on red alert). I got my girlfriend and told her we needed to go to see a Doc the next day. After seeing the Doctor and paying $140 for the privilege (no NHS out there and they don't accept health insurance so you have to foot the bill initially), the doctor gave me some antibiotics and told me that my urine sample showed no signs of bacteria which would indicate and infection - she believed it to be kidney stones but a CT scan would cost me £400 so I declined.
I didn't believe her, I had faith in the NHS and thought she was just trying to get more money out of me. I took the tablets and kept up with some pain killers and started to drink a lot of water. Things seemed to go fine.
Two days after arriving back in the UK the blood in my urine came back and I felt aching in my groin and my abdomen and had lower back pain. I went to see my Doctor and he again said kidney stones. I explained about having a kidney infection and going to A&E and the pain etc and he said that it sounded to him like I actually passed a stone while I was in A&E. He said it's no excuse but it's not uncommon to be misdiagnosed. He booked me in for an ultra sound with the hospital but said it could be a few weeks. GREAT!!
I went home and started drinking water like a madman. I'd previously gone from drinking roughly 1 litre of liquid a day to suddenly drinking 2.5/3 litres of water. I was determined to flush these stones out (if indeed that was what I had). I reduced my sodium intake, I reduced my dairy intake and started eating a bit better and just drinking as much as I could. I began researching all about kidney stones and what fellow sufferers have gone through and found out that you should produce 2/3 litres of urine a day to prevent stones - before the last three weeks I'd have never produced anywhere near that. I was drinking so much water that I started getting heartburn. I'd occasionally see a tinge of blood in my urine but it was becoming less and less. On Monday morning I was reading something on a thread about a herbel remedy for kidney stones. Normally I've never given much credence to herbal homeopathic remedies but since there is very little you can do with kidney stones but flush them out, I figured it'd be worth a go. It's called Berberis Vulgaris and you take it three times a day, you let the little pill rest under your tongue until it dissolves. It's made from plant extract and helps to break down kidney stones. The lady I spoke to on the phone from the homeopathic website said that it's good for you kidneys anyway and that it works with some people and not with others. There are zero side effects and I thought, why not?! I ordered some and began taking them the next day when they arrived.
Now this seems like one hell of a coincidence but on Wednesday afternoon at work I went toilet. Immediately afterwards I felt a sharp shooting/burning sensation in my penis and an urge to urinate again. I quickly remembered reading that this pain usually means you're about to pass a stone. I grabbed a bottle of water and sunk it and waited for my bladder to fill. About 15 minutes later I went to the toilet and out popped a 3mm stone. I was elated. Later that same day another stone popped out, about 2mm. Just now, another one popped out, about 1mm.
My personal belief is that these herbal tablets helped break down this stone into little passable grains instead of one big stone. I felt zero pain at all and all my previous symptoms seem to have vanished.
I would strongly recommend these to anybody - worst case scenario, it doesn't work. You don't lose anything if that happens. I honestly believe that taking these little pills coupled with increasing my water intake helped break the stones down so I could pass them.
I'm now on a mission to never have stones again. Fingers crossed.