Cerebral Palsy :: Baclofen Pump? Do You Have One?
My 12 (almost 13) year old daughter is about to get a baclofen pump. She is a foot user as her arms are severely spastic and have a mind of their own. The doctors all say that it will help with her hip pain (she has a dysplastic hip, it is on the leg that she uses) as well as the spasticity and tightness and pain that she has. they also say that it may help with her speech (she speaks very slowly and sometime cannot speak so well as her tightness makes her mouth all wonky).
She has botox about a year ago and it worked wonderfully... for about a week. so the doc does not want to do it anymore. I am totally ok with the pump and she really wants it, but i wanted to speak with others who have CP and have experience with the pump to know what your experience is.
Bells' Palsy - Non Cerebral :: Day By Day Experience
Day 1
I woke up after having a cold/bad throat for about a week and noticed it was a little difficult to speak. I had a look in the mirror and thought it was because of the cold. By lunch time I could not grip a straw with my lips and one side of my mouth and my cheek would not move properly. I tried to wink or blink and could only do it with one eye and when I tried to screw my face up it only did it on one side. I did think that had a stroke and booked an appointment at the Doctors. She gave me a course of steroids and gave me a leaflet that explains about BP.
Day 2
My eye is a little worse today, I had a little control over my blinking yesterday and today it is almost impossible. It just continually streams that is quite a nuisance. I went and bought some surgical tape to tape it closed with tonight. It is far harder to get food in my mouth today as well as it does not seem to open as well as it did yesterday. On the plus side I do think I still have my taste on the left side. I get pins and needles and twitching around the area of my jaw and my forehead ATM.
Training Of Cerebral Palsy - Books And Equipment?
When the heel of both feet cannot reach at the ground in cerebral palsy, what kind of training is considered?
In what kind of training is standing training of cerebral palsy carried out with this institution?
Please let me know the books which can be recommended by home training of cerebral palsy?
Although purchase is considered for the training equipment for functional exercise of cerebral palsy at home, what kind of training equipment is proposed
Cerebral Palsy :: Dealing The Fatigue With Aging
I just want to know how the rest of you are dealing with the fatigue of a work day and fighting the fatigue. I'm 38 but most days I feel 108!
View 4 RepliesCerebral Palsy :: Exhausted / Fatigue And Gets Pins And Needles
My daughter was born at 32 1/2 weeks and has very mild cerebral palsy, she is now 17 and experiencing days when she can't get out of bed. She is just exhausted and gets pins and needles. The doctor suggested it could be ME but I wondered if its a result of her Cerebral Palsy. Every time she does something that requires more mental or physical input than normal she is then wiped out for 2 days. Her CP has never really affected her, she wore Piedro boots as a child but recent years has had a "normal" life. Would really appreciate some input, she is due to have an MRI next week.
View 1 RepliesPalsy - Non Cerebral :: 2 Days Ago I Woke Up And Hopped Onto My Computer
2 days ago I woke up and hopped onto my computer like I do every morning (I'm 16/male and on summer vacation). I noticed that it felt awkward when I tried to blink my left eye. I didn't think anything of it and just continued on with my day.
The next day I woke up to the sound of my phone. I picked it up and it was one of my friends. He told me something that had happened the day before and made me laugh. I noticed that when I laughed only the right side of my face would move. I thought this was very strange and I got a bit scared.
I got off the phone and went to the bathroom and this is where I really freaked out. I couldn't move the left side of my face properly. Everything on the left side seemed a lot weaker than my right.
I tried looking it up for a few hours to see if anyone else has ever had this. I couldn't find anything except for a few forums with people saying it happened to them, but I still couldn't find out if it had a name. I was really scared and was having suicidal thoughts if this turned out to be permanent.
Anyways, I'm very very happy I found this site and that it heals itself. I told my mom and she's going to take me to the doctor so maybe he can give me steroids or something.
Summer vacation ends in about 3 1/2 weeks. I hope I recover by then because I'm not going to school like this, I don't care what my parents say.
I'll keep everyone updated. This is my second day so far with this dumb BP crap.
Palsy - Non Cerebral :: Left Eye Would Not Close While Working On Computer
Yesterday, while working on my computer, I noticed my left eye would not close. Within an hour my lip was drooping and eating was difficult. This morning, my Dr. diagnosed Bell's Palsy and has prescribed a course of steroids. My eye is taped shut to prevent dryness and I feel like I am falling apart,--a a thought that occurs frequently as the my 65th birthday approaches. I have chronic kidney disease and want to know if there is any alternative remedy for this hell known as Bell's Palsy.
View 1 RepliesLengthening The Achilles Muscle To Ease Tightness - Cerebral Palsy
I have heard a lot about lengthening the Achilles muscle to ease tightness in order to help kids who have cerebral palsy. My grand daughter finds her physiotherapy sessions so stressful and painful that she's not getting the benefit she needs and I am wondering if anyone has tried this surgery and can tell me has it helped? Any information will be greatly appreciated as it is heartbreaking to see a little one in so much pain and not able to do things a normal child can.
View 1 RepliesBell's Palsy - Non Cerebral :: Botox To Correct The Nerve Damage
In 2003 I had really painful headaches so bad I could hardly put my head on a pillow, pretty scary as I do not suffer from headaches. Then as I was eating bowl of cereal I kept missing my mouth and realised I couldn't feel my lips or tongue as though I had been given dentist injection. My sister took me to hospital thinking I was having a stroke, this was the first time I had heard of Bell's palsy and I was given steroids, i was very tired and it was an effort to do anything like eat, speech, it did take three months to go.
february 2014 I got a rash on my stomach which spread to my neck, to my back, to my feet, then to my scalp and then my ears, I was in agony, it was urticaria. Whilst trying to cope with this I then got Bell's palsy again, possibly due to an immune system at a low. However it has taken a lot longer to recover this time. Eighteen months later and I still have a twitchy eye and lopsided smile. I am now considering Botox, has anyone here used Botox to correct any of the nerve damage left after palsy and if so what are your thoughts?
Thyroid :: Hashimoto's - Hair Loss, Depression, Anger, Memory Loss And Weight Gain
I am a 25 year old female and I was diagnosed with Hashimoto's Disease probably around 2012 or so. I take 75MCG every morning and I do blood tests about once or twice a year to make sure my levels are stable. What I need help with are symptoms. My boyfriend has been very supportive, he was the reason I went to get the initial blood test because he said my symptoms reminded him of Graves Disease and it worried him. Well, I went to the doctor and got the tests done and he told me I had Hashimotos. Since then, my boyfriend has told me that he hasn't seen any improvement in my symptoms, in fact he thinks they've gotten worse. I have looked at a lot of different lists of symptoms that people with Hashimoto's Disease can experience and I experience a lot of them. I'll list the ones I experience the most and a little bit of a description to each so maybe someone can help me with what I need to do to feel better because honestly it makes me miserable.
-Hair Loss - Every time I brush or wash my hair there is always tons of hair in the brush or tub. It's everywhere all the time, I shed like the cats.
- Depression - I don't know if it is actually depression, but a lot of the time I feel like I'm just not good enough to be around anyone. I'll find myself crying at ridiculous moments with absolutely no reason for it. I also find myself thinking that people I know (and can acknowledge even when I'm feeling this way) love and care for me, and yet I still think they don't care about me and will abandon me at the drop of the hat, which breaks me down mentally.
- Stress - This is probably one of my worst symptoms. I am always stressed out about something, even ridiculous things that shouldn't be stressing me out. One of the biggest things I stress about is what I mentioned with the depression. I feel like my friends and loved ones are going to abandon me at any minute, which scares me and results in me lashing out at them in ways that if I can't control it soon enough may result in them actually leaving, which terrifies me and just puts me into a never ending loop of stress and depression.
- Anger - I can't seem to rationalize other people's behaviors. Completely normal behaviors that don't normally bother me result in me lashing out and screaming at people and saying things that I don't mean to say.
- Memory Loss - This is a really bad symptom. I forget things very quickly. If I don't actively keep it in my mind, I won't remember it. A perfect example, when I was still in college I was walking through town with some people and when we were going back to the dorms I made a comment about a truck I saw. I used to see it all the time and hadn't seen it in a while so I made the comment. The people I was with looked at me really confused and just flatly stated "You said the exact same thing when we walked by it on the way out" and I honestly don't remember seeing it at any point that day. In fact I didn't remember seeing it for around 5 months, and yet they claimed that I made the exact same comment I just had, earlier that day. It really messes with my head when people tell me that I did or said something and I can't remember doing it to save my life.
- Weight - Before I started taking synthroid I weighed 110 lbs, after I started taking it I gained like 30 lbs and I can't lose it. I'm stuck between 135 and 140 (I'm about 5'6" tall)
- Headaches - I get headaches on a daily basis. Sometimes they're really bad but generally they're just a slight discomfort in my frontal lobe area.
- Sleep - It takes me forever to fall asleep and even when I do I can't stay asleep and then I feel exhausted all day when I wake up, as if I never slept at all.
Another thing I've noticed and that is that sometimes I feel like I can't swallow properly, I always feel like I have to yawn to get a lung full of oxygen, and my nails curl downward along the curve of the tip of my fingers on like 3/5 fingers.
Memory Loss :: Can't Remember Certain Years
I can not remember what I did in 1996. I have researched my personal papers but nothing can clearly tell me anything concrete.
View 1 RepliesMemory Loss :: Forgets Next Minute
Im 19 years old and my memory has gotten real bad. I forget just about everything if someone tells me to do something I forget what they told me the next minute. Or I just forget the whole thing until they bring it back up or ask me again. I always seem to forget important things. Now its kind of affecting me at work if a coworker of mine asks me to do something I always forget. Im constantly lost in space alot. Is this something to worry about or just a really bad memory?
View 1 RepliesDementia :: Memory Loss With Alcoholism
I am a 61 years old male alcoholic and my memory is very bad. Is this normal?
View 1 RepliesSchizophrenia :: Getting Paranoid With Memory Loss
So basically I'm a teen girl. Over the past 2 years I have been having these symptoms and they have been more apparent these past days. My anxiety has been raising and there are times when I'm super happy and then a second later I get super depressed. I'll get paranoid and scared of I don't even know. I have terrible memory and can't remember a lot of things. My parents yell at me for not doing things they asked me to do, but I don't even remember. My teacher was crying one day and I smiled at her. I know I shouldn't do that, but that's how I reacted. I'll hear things like whispers and someone saying my name, but that's all. I can't perceive any actual words, just sound. One time I thought someone had said my name and blew into my ear. I've also seen thing that I know aren't there. For a while I just thought to myself everyone has those kind of moments so it's fine. But then yesterday I thought I saw an actual person standing there. I was so scared and told myself is wasn't real and it was gone. Then today I thought I saw a kid in the parking lot, but when I looked again they weren't there. Just like I thought there was something on my friend today, but when I blinked it was gone. I'm so scared now that its going to happen one time and it's not going to be gone after I blink. That one day I'll actually be able to talk to the voices. Then I even question if it was real or just imaginary so many times everyday. They only thing that helps is to listen to music during the day. I'm also losing interest in a bunch of things I used to love. I would also self harm as punishment. I don't even know what for, but I just think I have too. My grandfather has schizophrenia also.
View 2 Replies(Age 18-24) Pregnancy :: Severe Memory Loss (15 Weeks)
I'm 15 weeks tommorow and my memory is so bad I can't even remember if I took my prenatal in the morning Or what I had for breakfast lol anyone else experience this or am I going crazy ?
View 5 RepliesMemory Loss :: 25 And Forgetfulness - I Put An Item Down I Forget It
I have always had an issue with forgetting and losing things but it has been getting consistently worse over the past few months and I'm not quite sure who i would speak to. I am only 25 but tend to work very long hours in a stressful job, I'm sure this contributes to my memory loss but i think there might be an underlying reason.
What seems to happen is when I put an item down i forget it is there and when i leave don't even notice i don't have it.
For example I might be on a train, put my coat on the seat next to me, get to my stop and walk off the train without even noticing I don't have it. I leave laptops and iPads on tables and walk off and its becoming an more regular accurance.
Ryan
Neurology :: Memory Loss And Muscle Weakness
Three weeks ago I noticed my daughter (age 38) could not remember anything from 10 or 15 minutes and kept asking the same questions - She seemed confused. I took her to the hospital and they began running test. After 2 days she was having difficulty standing so I had to help her stand and then she could walk - after 4 days she could not stand or walk at all. Her legs and arms both have some numbness, burning sensations, and pain. The MRI scan shows no issues - they have run MRI, CatScan, EEG, EMG, Muscle Biopsy, Spinal Tap, all sorts of blood work and after three weeks have found nothing except some vitamin deficiency. She still cannot walk and has confusion and short term memory - Has anyone heard of anything like this. Is it possible that is vitamin deficiency?
View 1 RepliesMemory Loss :: Forgetful And Approaching Dementia?
I'm 48 and have always been forgetful. In the last year it's gotten worse. Strange things have been happening like:
** I'm folding laundry, I hold up a shirt to fold it and I go blank, I can't remember what it is, how to fold it.
** I'm telling someone how to spell the word " letter" and say L-E-T as in cat and they say "what?" and I repeat it "T as in cat"
** My toothbrush is grey, my husband's green. I get both toothbrushes out, run water on them and put toothpaste on them. Five minutes later, I can't remember which one is mine, so I wait for my husband to brush his teeth so I know which one is mine.
I've got many more examples...the scariest of which is:
Driving at 5am on an access road, felt like the car turned sidewise, everything went black, when I could see, I realized I was trying to negotiate a curve and I didn't know where I was.
My MRI was looked at by the radiologist and a neurologist. The only thing out of the ordinary was: A few subcortical T2 hyperintensities in both hemispheres-more on the right. Several flair punctate hyperintensities in the occipital lobes bilaterally unchanged from previous exam (2006)
Mild or early age-related microvascular ischemic changes mostly likely account for the few subcortical T2 hyperintensities observed.
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My neurologist wants me to have neuropsychological testing done. He says that the MRI does not explain the things that are happening. "something is going on and we can't just attribute it to getter older"
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I have a continual tremor..sometimes even in my head (I take lithium..probably a side effect). Had a 6 month experience of some kind of neuropathy in my left arm last year. Just recently developed numbness, tingling, and burning in my right hand and now it's in the left hand too. I have headaches most every day..some are very short. I'm also on a lot of medications.
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My question, if the MRI isn't showing anything what could the testing show besides memory loss/approaching dementia?
Sjogren's Syndrome :: Brain Fog And Memory Loss
I am concerned about my memory, 32 year old, diagnosed when I was 30. Mind goes blank, forget names of people I know. Mentioned this to my consultant and told it's just the tiredness. Mentioned it on another occasion and told I'd have to see my GP. Eventually went to my GP who said they'd never heard of SS causing memory issues but I've had people on the BSSA say they have the same thing. When I went to my GP I was presented with a sheet of paper with tests I felt were embarrassing, both me and my GP agreed I could quite easily pass these but if for any reason I didn't she'd have to refer me to a psychiatrist which she really didn't want to do. I agreed there's nothing wrong with my mental health but I would have thought I'd be referred for a MRI. Why do I get brushed aside - this condition is bad enough without being ignored as well. I'm just about holding onto my full time job. I even go light headed but no one seems to care. I'm now faced with going private, thankfully I have private healthcare through work but not everyone does.
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