Possible Sjogren's Syndrome? List Of Symptoms ...
I have had chronic bronchitis/sinusitis for years.
Had sinus surgery due to level of sinus issues.
I don't get a cold, I get bronchitis - pneumonia/pleurisy, etc.
I have cold sores on my lips often.
In june I was diagnosed with an eye ulcer - I have never had any problems with my eyes. Ophthamalogist did test and said my tear ducts have stopped working.
I have blurred vision and my eye sight is deteriorating.
Exhausted
Joint paint
Tingling toes and fingers
Migraines for years
CT of chest shows enlarged lymph node in lower right pre tracheal region 2.5x1.4x0.8 and they want to do another ct in march
sore throat and coughing they just prescribed prilosec for acid reflux and although I've never had heart burn or anything like it, it's working....
I have testing borderline positive for lupus one time and negative the next. 1:80 Homogeneous Pattern
RA factor was -9.0
Igg subclass 3 LOW at 21 everything else normal
No lyme disease
White blood count tends to be a little high
Seg tends to be at about 80%
Lymph tends to be low
SED rate was elevated
CPK was normal
First appt with rheumatologist on the 24 of Feb. any thoughts on what this could be? Sjogren's seems close but I have no dry mouth Would really appreciate it.
Sjogren's Symptoms Vs. Multiple Sclerosis
I just want a little input from people who have a sjogren's diagnosis. I have a lot of symptoms that my Dr first thought were from MS. I've had all the tests and that's been ruled out. I've had a low positive RA factor for years so the neurologist sent me to a rheumatologist. He thought without swollen joints and no treatment for years after dx that it's not RA. He did more bloodwork and xrays of my hands, feet and chest. I go back to see him Aug 6, so no info yet. My question is do you have these same symptoms? Leg pain, tingling in legs feet and hands, can't tolerate heat, migraines, brain fog, itchy rash on my chest and arms, Epstein Barr virus, leg cramps, b12 and vit d deficiency that I'm taking shots and supplements for and extreme fatigue.
View 2 RepliesSjogren's Syndrome :: Symptoms Fluctuation With Menstrual Cycle?
Has anyone found their symptoms fluctuate with their menstrual cycle?
Mine seem to somewhat improve towards and during menstruation.
Sjogren's Syndrome :: Hormone Replacement Therapy Increases Symptoms (dry Eyes)?
Has anyone heard that HRT increases SS symptoms? I'm on a HRT in the form of a low dose patch. I've been experiencing dry/irritated eyes and read that HRT can make your eyes dryer in addition to the other risks associated w/SS.
View 14 RepliesSjogren's Syndrome :: Stress Makes Symptoms Progress - Diet Advice?
I am a 46 yr old female - presently suffering with sjogren's. I was diagnosed last year and didn't feel any real symptoms coming on at first. I'm now suffering with painful wrists, dry eyes and
dry mouth, I have thrush and also fatigue. I've had 12 teeth removed. I read up that any stress can make sjogrens symptoms progress. I believe it's also affecting my concentration too.I am trying to stay stress free at the moment. Although it's difficult as I have just lost my job, through illness. My doctor has confirmed that everything I am suffering with at the moment is down to sjogrens. I feel quite overwhelmed. I was wondering if anyone knew of any dietary changes that I can make.
Anxiety :: Just Have Physical Symptoms, No Mental Symptoms?
I admit I have had multiple Anxiety attacks, I am a cashier at Walmart, I usually get them if I had rude customer like after I had a nasty customer who came down from self-check to customer service towards me, I was in tears before that, then my manager told me to hide behind the Customer Service desk. My worst anxiety attack I had a lady who's coupons would not work, I took the coupon price off the items she could not understand that and told me to take the items off period and demanded I give the coupons back to her, I already did. My brain got foggy so I asked her if she wanted me to take the items off, she said yes so I kept doing it, suddenly I wasn't feeling to well, I went to go see my manager to ask for help when I started hyperventilating, my manager had me sit down right there at the empty register. Another cashier was able to take over and finish it for me. My manager helped me over to the bench at customer service, where I suddenly lost feeling in my hands, they ended up curling up from the pinky in. I tried prying them apart using the metal bench but that didn't even work. That scared me, the same manager asked if I was okay I told her that I couldn't feel my hands, staring down at my fists. They finally unfroze after 10 minutes. The lady was so upset with me she left all of her items.
Anyway I will get dizzy, like it ranges from feeling as though I am spinning, I have to clutch on to something to keep from falling over, to the world tipping around me with every step, to not being able to see, not sure if that's exactly dizziness, but it started with dizziness. I'll get flushed randomly. I'll have PAC's. There have been a few times I have almost fainted, one time it was from not breathing, like I noticed that I wasn't breathing, my body was just like woah what's the matter you aren't breathing, I had to have a manager finish while I sat down. I was up and doing my job before I was supposed to so I did not feel well the rest of the day. My arms will also get exhausted suddenly if I have to lift them to head level, like I can barely do a pony tail without them being exhausted, the kinda feeling you get after a hard work out.
I've had the flushing and dizziness when I was talking to my mom and hanging out with my friends. My friends all know and are really accepting if they need to stop doing whatever so I can sit down.
My doctor originally thought it was POTS if anyone knows what that is, I'm getting a tilt table test in 2 weeks, now he seems to think it's anxiety. I'm sitting down while working just in case, it does seem to help slightly. It's just annoying, this has been going on for 3 months and I'm sitting down because of the time I have almost fainted also. Anyway people will say you're lucky you get to sit down, I don't consider everything and almost fainting lucky.
I'm not sure if it is anxiety since it is just physical symptoms, I've had no mental or emotional ones. Just feels like mental ones from fear of my physical ones.
I've done a stress echo and a holter monitor and blood work done.
SLE, Raynaud's And Sjogren's Together
I have the SLE-Raynaud's-Sjogren's package of auto-immune illness (listed in the order of diagnosis). The Sjogren's is the latest and most burdensome flavor of the decade for me. I was diagnosed with it about 3 years ago but was probably suffering from it for several years prior before the symptoms persisted enough to result in a diagnosis. I guess that's typical. It was with the SLE and the Raynaud's.
I can't imagine it could get any worse, but I get the impression that I might be "early" in the cycle and that scares me. No tears, corneal erosions, no spit, heroic (expensive and painful) dental treatments to save teeth that may already be doomed, pain, fatigue. Little annoyances that by themselves are "nothing" all together its a spirit crusher. Can it possibly get worse?
Sjogren's And Vasculitis
I've noticed a few times that after standing relatively still for long periods of time (i.e. at a concert), the lower half of my legs is covered with a strange rash by the end of the evening. It's not itchy, not painful, but very visible. Of course, standing for long periods of time is painful on my joints, etc., but the rash itself isn't painful. With that though, my feet often feel strangely swollen and hot after lots of standing; that part is a little painful. I finally looked it up last night after it happening again and came upon something called "Vasculitis." I've made an appointment with a Rheumatologist to discuss further, but I'm curious to know if others have have experienced this. I generally ignore my symptoms and power through because I'm no fan of fussing, but this strikes me as a little stranger than dry eyes and creaky joints.
View 21 RepliesDentures Due To Sjogren's Syndrome?
My dentist told me today that I need upper dentures due to Sjogren's Syndrome. Has anyone else had to get dentures and how did you deal with it?
View 1 RepliesSjogren's Syndrome :: Sea Buckthorn Oil?
Anybody tried it? I've just started. I'd been reading up on it on-line for some time. It's supposed to be the bee's knees for the whole sicca syndrome, and dry eyes in particular. As I was due to spend a few days in London last week, I debated getting some, but decided it was too expensive.
Then fate took a hand. As I haven't had dry eyes for months now, I didn't take my eye drops with me. That's the trouble with remissions - you forget you've got the wretched condition and get cocky! First night in the place where I stay it was a bit stuffy, so I turned on the air-conditioning for half an hour. One of those individual ones that blows air out fiercely however low you set it. I sat up in bed, facing it, watching the TV for just half an hour before going to sleep, but that was enough. I managed to get replacement eye drops the next morning, but now I'm in big trouble. Decided to invest in the sea buckthorn oil anyway, and have now been taking it for a week.
They say you're supposed to take four capsules a day for the first two weeks then cut down to two, but I'm being careful. Took one a day the first week, will start on two tomorrow and build up to four by the end of the month. I once had a terrifying experience on a low starter dose of Siberian ginseng. Just because something is "natural" doesn't mean it won't harm you!
Sea buckthorn is also said to be good for RA. The main ingredient is Omega 7, btw, but it also has Omega 3, 6 and 9 - though a different type of Omega 3 than fish oil. I'll be interested to see how that works out. I'm actually having an RA flare-up at the moment, but it seems to have peaked since I started my usual homeopathic treatment a few weeks ago. As I'm taking the oil alongside the homeopathic remedies, that will muddy the waters, of course. But I'll stay on the homeopathy for six months because it always works.
I hear you have to wait three months for Omega 7 to kick in, so I may be in for the long haul with the dry eyes. My right eye is already starting to bleed from a crack at the outer corner. We're having high winds here at the moment, which isn't helping things, particularly as my hips and knees have now improved enough to stand a 45-minute walk most days. I finally caved in today, and put on my wrap-around industrial goggles (provided by an optician in the UK). But I feel a right berk wearing them when walking around city streets - especially as it's not considered rude to stare in this country!
Relation Between Accutane And Sjogren's?
Is anyone aware of a linkage between isotretinoin (Accutane), used for treating cystic acne, and Sjogren's, which is linked to the epithelial cells? At 21, when Accutane first appeared, doses were higher than current (I remember my skin bleeding when scratching lightly with a fingernail). I am now 51, and have had Raynaud's for a number of years, and was just diagnosed with Sjogren's. Just curious if anyone has seen this?
View 2 RepliesBiotene Really Enough To Contain Sjogren's Syndrome?
My mother has been diagnosed with Sjogren's syndrome. Her main symptom is dry mouth and someone recommended us product called Biotene. Is Biotene really enough to contain this syndrome?
View 1 RepliesSjogren's - Foot And Leg Cramps?
I have severe feet and leg cramps can this be caused from Sjogrens ? I have take muscle relaxers with no relief
View 1 RepliesLyme Disease Or Sjogren's?
I have had a number of symptoms starting 6 months ago and have progressively got worse ever since! I've had MRI - normal, thyroid test - normal, neurologist tools lots of blood test looking for inflammation and tested for Lupus - all normal! He's now sending me for a lip biopsy! Here are my symptoms -
- Persistent swollen glands in throat (lots) - all reactive according to ENT
- thyroid nodules
- neuropathy
- Eustachian tube dysfunction (& muffled hearing)
- visual snow with all the trimmings (photosensitivity, increasing floaters etc)
- itching skin
- dull toothache
- tinnitus
- thinning skin (veins very noticeable and bulge)
- tickly throat and dry cough
- thick phlegm at back of nose
- occasional dry eyes
- ear ache
- muscle aches and pains
- joint pain
- on / off mild fevers
- tiny pin prick like spots on torso, arms, thighs
- blotchy skin
- pigmentation in skin (dark around mouth and nose and blotches in other parts of body)
- skin dents very easily / shiny palms / stretchy skin
- constant clearing of throat
- spaced out feeling
-dizziness and vertigo
- headaches
- stiff and aching neck and back
- random skin rashes that come and go but chest is red and blanches
- cold hands and feet
- shivers (get goosebumps all over body for no reason)
- Fingertips sometimes turn blue
- brain fog
- fatigue
- wart like tiny blister looking spots on palms and palms look extra wrinkled and shiny
- joint cracking especially neck
- night sweats (at the beginning, occasional now)
- constant buzzing feeling all over body
- can see heartbeat through clothes / palpitations
These a few more things but I won't bore you all with more!!
Anyone else with lyme had these symptoms? The most concerning is the vision and hearing which really concerns me! Can I have Sjogrens when all my bloods are fine?
Many thanks in advance!
Sjogren's Syndrome :: Often Bladder Infections
I get bladder infections quite often. For the last year I've had 6. I get very sick with them. I run a high fever and am in alot of pain. They last for a couple of weeks. I have to take antibiotics for them and worry about having to take so many. Does anyone else experience this problem or have any suggestions?
View 4 RepliesSjogren's Syndrome? Dry Eyes Are The Only Symptom I Have
I have had dry eyes for about 2 year now (I also had lasik in 2005). Within the last 4 months my have have gotten really dry. I have all 4 tear ducts plugged and I am on Restasis. I also use sclera lenses (more for vision but also helps the dry eye). My eye dr said he thinks I may have Sjogren's even though I have never has a Schirmer's test (I am not sure how accurate that would be since i have had lasik anyway). tested positive for ANA 1:80 titer with homogeneous pattern but negative for RF and SSa and SSb. Should I pursue this further? Dry eyes are the only symptom I have.
View 40 RepliesSjogren's Syndrome? Depression Is A Symptom?
I was wondering whether depression is actually a symptom of this illness. I understand that it is natural to feel depressed when receiving a diagnosis of chronic illness, but my current mental state feels like something much more insidious and severe. I have never felt depressed in this way before, even when I got a diagnosis of another painful AI condition 8 years ago. I also know that mental stress can negatively impact symptoms so it is vital to 'feel better' quickly in order not aggravate the condition. I am not sure how to start to do this and wonder whether systemically something is going on that is affecting my brain chemistry to feel this bad.
View 11 RepliesSjogren's And Systemic Sclerodermatitis - Exercises?
I have sjogren's and systemic sclerodermatitis. I have been told to do some exercises as these may help stretch connective tissues and alleviate some stiffness in scleroderma. With sjogren's, i just feel exhausted most of the time and I wonder if doing some exercises could help or aggravate my exhaustion. Is there anyone out there who could point out to me what exercises best suit me?
View 18 RepliesSjogren Syndrome - Living And Coping With It
My daughter was diagnosed with Sjogren's Disease I was just wondering if there is anyone that has this Disease, and to inform me how they are living and coping with pain and day to day living. She is only 20 years of age.
View 1 Replies