You Do Not Die Of Parkinson You Die With It? Confusing
Many professionals and the charity PD uk sat that you do not die of PD you die with it...BUT The world Health Organisation receive statistica from the UK about the Number of Deaths Caused By PD in the UK...PD is one of the leading causes of deaths in the UK... I haved PD and suffer from anxiety but it occurs to me on a regular basis that the lack of knowledge and information that is presented to us by a community of experts that all disagree is causing more confusion not only for the sufferers of pd , the public also find the whole thing a non starter. It is an illness for which there are no clear up to date definition and is therefore just seen an old person's shaking complaint
View 4 RepliesParkinson :: Apomorphine Challenge - Anyone?
i've been asked to do the apomorphine challenge has anyone done this,and with what side effects.
View 1 RepliesDifference Between Parkinson And Parkinsonism?
My father (now 81 yrs) was diagnosed with Parkinsonism some years ago. My understanding is that Parkinsonism is considered to be a "cousin" of full-blown Parkinson's disease. Is it as bad as Parkinson's?
View 2 RepliesDystonia Related To Parkinson?
Is dystonia related to parkinson's?
View 1 RepliesParkinson :: Sinemet Or Requip?
Sinemet has left me unable to handle my property management business. Shaky or disoriented to often. ( get about 3 good hours in am). Locals I know are on requip and seem to do better. Dr. wants me to see a Shrink. I am sure I have some depression and anxiety, but don't want any more meds. I took lexapro for about 2 weeks after a divorce. I thought i was losing my mind. Couldn't concentrate on anything. Scared the heck out of me!
What is the difference between the 2 ( sinemet- requip) and has anyone tried the fisher wallace stimulator?
Parkinson :: Dysphagia Due To Sinemet?
My mother took 2 sinemet tablets 5 times a day. And a patch once a day for rotigel. She went into a nursing home in March and they accessed her dysphasia as being a hazard and so her sinemet was lowered to 1 1/2 tablets 5 times a day . She now has severe off patches with panic attacks stomach pain leg spasms etc... Has anyone else had experience of these symptoms .
Fighting Against Anxiety Without Meds?
My question is that is there anyone out there that is fighting or cured anxiety without meds?
View 39 RepliesADHD / ADD :: Genetic Testing For Meds?
I have a 10 year old son who is diagnosed with ADHD, Anxiety, SPD/IPD and rule out of Asperger's/PDD in 2013. Currently, we have him on Methylphenidate ER 30mg per day, but lately we have been noticing issues. Mind you, the school hasn't been very helpful this year with information on how he is doing so I can only go by the vague messages received... the first 6 months, they say he was great! Though I have documents to prove otherwise - lately though, the teacher keeps saying he lacks focus, needs to pay attention and all that jazz. (I say it so flippantly because this teacher has been a pain to work with.
I spoke with the doctor and she wants us to come in next week to discuss his meds, but we have had issues with additives in the past and it's not a route I want to go... to sit and wait. His diet is modified already, we also work with a behavioral therapist and a chiropractic neurologist and he takes Taekwondo.
With all this, I'm wondering if anyone has tried the genetic testing (IE: HarmonyX or Genesight) to see what meds would work best with his specific genetic makeup?
I read all these stories of parents having all these issues and suddenly their kids are on Vyvanse or something else and it's a miracle. I wouldn't mind that... him being able to function better at school (academically and socially) ... he gets bullied (though he can start it up too) - I just wonder, what next?
Here is his medication history:
August 2011 – Vyvanse ??mg (very small amount)
September 2011 – Vyvanse 30mg (adjusted to 30 mg)
May 2012 – Trial samples of Intuniv w/ Vyvanse for two weeks. After two weeks he was out of school and parents decided not to continue the Intuniv.
September 2013 – Intuniv 2mg w/ Vyvanse
September 2013 – Concerta 36mg (removed from Vyvanse and Intuniv because he became over-emotional and violent/aggressive)
December 2013 - Concerta 54mg (Dr. Snyder prescribed)
March 2014 – Methylphenidate 10mg (3 times a day) (March 7th thru March 14th)
Methylphenidate 15mg (3 times a day) (started March 15th)
April 2014 – Methylphenidate 20mg (3 times a day) (started April 14th)
May 2015 – Adderall (adderall) 10mg (3 times a day) (started May 14th)
June 2015 – Adderall (adderall) 15mg (3 times a day) (started June 3rd)
August 2015 – Guanfacine 1/2mg (3 times a day) (started August 21st)
September 2015 – Methylphenidate ER 30mg (once a day) (started September 6th)
Gabapentin :: Stopping The Meds Can Cause Seizures?
Went to see new neurosurgeon on Monday and she has prescribed Gabapentin to add to the mix of my daily cocktail of drugs. Having looked it up though, it seems to have some pretty worrying side effects. For me, as I work full time, I am concerned about being drowsy, sleepy and generally spaced out at work. Apparently it is all magnified if you are also on opiate based painkillers too. I am also concerned that I may pile on the weight!
Can I ask what adverse reactions others have had to this? Also it says on the box that stopping the meds can cause seizures, but is this only in people that have epilepsy (the main reason the drug is prescribed) or can it cause that in people that have never had a history of epilepsy?
By the way, my meds had not changed since May 2007. Nobody has had the slightest interest in monitoring me, either in terms of if they are still suitable, dosage levels, if I am now addicted, if they are working well or even if they are harming my body. Some of the boxes state that you should have regular blood tests but I have never been offered any. Considering I have had two lumbar operations since last May and numerous problems since, it seems quite odd that this has been allowed to go on for so long with not one of the numerous doctors/surgeons giving a damn. I just order the meds from my GP surgery online and then pick up the prescription. That gives a review date, usually 6 monthly intervals, but nobody actually reviews me, they just put a new review date down on the records.
Apart from back pain my main problem these days is the burning/numbness the whole length of my leg and my locked up toes. Apparently the Gabapentin will help with this. But the worse of the problem is at night, hence the fact that I can function reasonably well during the day. But now if these new tablets are going to knock me out and render me incapable during the day, then I'm tempted just not to bother.
All in all the meeting with the new neurosurgeon went quite well. I will be having another MRI shortly (my 6th in 16 months) and hopefully I'll know more then about what is going to happen going forward. The bad news is that she thinks that a lot of the problems are from the internal scarring from the two operations and nothing can be done about that. Hey, ho, I guess I'll find out in time.
Substance Abuse :: Detox Meds?
Has any one every taken detox meds? If so which ones?
View 3 RepliesHow Long Does A Person Live After Parkinson?
How long does a person live after parkinson ...
View 2 RepliesParkinson - Exercises At The Early Stage?
I have recently been diagnosed with Parkinson's disease and am worried and confused. Are there exercises I should do? I am not on medicine but I understand that there are some that should be considered. Which ones are best for the early stage of the disease.
View 4 RepliesParkinson Progression With Restless Leg Syndrome
Started with a tremor in my hand last year saw a general neuro who thought its maybe related to chronic pain i suffer and to keep eye on it be re referred if it changes now it's gone to my arms and legs my balance is poor keep falling over my muscles are stiff as a board i get tremors after using my muscles say even drying my hair and also i keep stiffening up so bad my body just wants to stretch itself out from head to toe worse during the night i have also started with restless leg syndrome i'm also getting confused and forgetful has anyone else experienced parkinsons onset like this i'm wondering wether to be referred back to a movement disorder specialist?
View 7 RepliesFibromyalgia And Intolerance To Thyroid Meds
I am dealing with an intolerance to Thyroid meds. Having been diagnosed with Hashimoto's Thyroiditis 5 years ago my family doc has prescribed every Thyroid med she could think of and various strengths. Side effects were thick itchy rashes, shakiness, massive headaches and tremors. I stopped taking the Thyroid Meds for 2 years and believe me it was no picnic. I had no strength, terrible digestion, heat and cold intolerance, memory loss and on and on and on. I am now on a very low dosage.025mg. My last t3 & t4 test indicates that my levels are very low but because of all the negative side effects I have experienced my doc is terrified to increase the dosage. Along with Fibro,Celiac,Diverticulosis and Hashimoto's life is a bowl of cherries . I would like to hear from someone who is also iodine intolerant and is there a different path I could take..
View 4 RepliesThyroid Meds To Treat Fibromyalgia?
I went to a new rheumy who specializes in fibro. He spent an hour with me my first visit. I really like him. He typically treats many people with synthroid for fibro because he feels we really have a hypothyroid even though our numbers are good. i do have many symptoms of thyroid, always cold, used to have constipation, dry skin and eyes, heavy periods, etc
He called in a script for synthroid name brand for me, I haven't picked it up yet I guess I am nervous to try it.
He did do my bloodwork, TSh was in guidelines, free T 4 and T3 were in range but at 50% of the range.
COPD :: Inhalers / Meds May Work For You But Not For Me
Including, inhalers, ingested, etc.... To say it again, what works for one may or may not work for another person. I don't understand why people ask this or that inhaler or whatever med. worked for them? It, to repeat myself, may work for you but not for me. What I have realized in this whole journey of copd and other chronic diseases that I'm dealing with is that it is up to me to do everything I can to find out about the disease; ie. research, talking to people and pulmonary care. That's about it really.
View 2 RepliesHypothyroidism :: T3 Meds And A Pounding Heart
I have recently been been going through the transition of switching from levothyroxine alone (125mg previously) to a combination of this and liothyronine. I was given too much of both at the beginning of this transition and was told to stop Levo completely and I've only been taking 10mg of liothyronine for the last 4 days.
I'm starting to feel tired and colder (as I am now under replaced), but I am still feeling a pounding in my chest.
has anyone else experienced this side effect of liothyronine and does it get better?
i'm desperate to stay on the T3 as it helps a lot with the tiredness and brain fog and Levo alone just doesn't work for me.
Asthma :: Meds To Replace Advair For COPD
I am looking for a med or meds to replace Advair for copd.
View 1 RepliesAnxiety :: Supplements Safe To Use With Meds True?
I want to offer what help I can, I have dealt with anxiety/depression for years and want to share what I use to calm myself and to feel more content inside. Anyone ever researched Magnesium L-Threonate? Or the type of b vitamin called Inositol? There is a lab in California called Sabre Sciences that can make custom supplements based on amino acid testing they do for brain health, but they also have really clean otc supplements. They have a product called i-magT which is calming to the brain and can help take the edge off.
View 1 Replies