Brain/Pituitary Tumors :: Parapharyngeal Space Tumor (pps)
This is all very new to me so I hope I'm doing this right but I'm just looking for some reassurance. I'm 26 years old and was diagnosed with a parapharyngeal space tumour in late 2012. 2013 my surgeon attempted to remove the tumor by cutting my jaw and going through the back of my throat into the pps, unfortunately he was unsuccessful and didn't remove any of the tumor. We decided to monitor it over two years and see if a change in growth was noted. I should mention that for the last 4 years I've had pain in my left ear and face which has been gradually worsening, and around 10 months ago I lost hearing in the same ear which is now joined by a high pitched ringing. A mri in early December 2015 showed a growth in tumor so my surgeon decided to remove it, however he would need to take a wider approach to ensure he would get the tumor this time, he is concerned that it's involved with my lower cranial nerves so we may need to remove or damage them which would greatly alter my quality of life. Currently I'm looking at other options or other ENT over the world for more opinions.im desperate to find someone else who has been through something similar or if anyone has a suggestion of surgeon or alternative treatments. They are unsure the nature of my tumor so time is of the essence for me. Any help would be greatly appreciated. I have a 1 year old baby who I need to be around for to watch grow up.
View 1 RepliesPituitary Tumors :: Low Testosterone Levels
I had a pituitary tumor removed several years ago. I had a follow up MRI last month and an appointment with my neurosurgeon. All is well. I did inform the Doctor I have been tired lately so he ordered blood work to check hormone levels. Turns out my testosterone level is low. Actually looked at my bloodwork records just prior to tumor removal and all hormone levels were WAY OFF - They have all seemed to come back to normal levels with the exception of my testosterone. My surgeon is referring me to a endocrinologist. Working on making an appointment now. Has anyone else experienced a low testosterone level after this tumor removal and if so what course of action did you have to take? I am 46 now and I understand testosterone levels do begin to drop a bit in males once reaching the age of 40.
View 2 Replies15 Only And Hereditary Hair Loss
I'm 15 years of age and I'm seeing the first signs of baldness, with some hairline recession and the sensitive sensation. My hair loss is hereditary. My mom also had the same issue and she did a hair transplant surgery with the help of an expert surgeon in the Seager medical group, Toronto. I wonder whether I'm able to do the same at this age. I don't want to be bald at this age, it's affecting my confidence. Any thoughts?
View 1 RepliesCholesteatoma :: Three Times Now - Hereditary?
I have had a cholesteatoma three times now and was wondering if it was hereditary? as my little girl has had some hearing problems (only minor) but hoping that it is not?
View 1 RepliesHereditary Hemochromatosis :: Exhausted All The Time
A genetic test has just come back that I have this. Can someone help me understand this and is this why I'm exhausted all the time.
View 6 RepliesHereditary Hemochromatosis? Transferrin Saturation Above 55%
I am a 25 year old Male from Ireland (both parents are Irish) and I recently attended the doctor because I found two lumps, one under each armpit (one painful,one not). I asked the doctor what this could be and she told me they were probably blocked sweat glands. She wrote a prescription for some antibiotics and that was almost that. Before I left, I also mentioned that I had been getting persistent pressure like headaches in the top right corner of my forehead. They were not severe, merely an annoyance but their persistence was what worried me.
When I told the Doctor this she said it would be best if I had blood tests done.
I had the tests done and everything came back normal apart from my Iron levels. My transferrin Saturation was at 61%. My iron level was 36.8 umol and my TIBS was at 61 as well.
The doctor wrote on the results that a transferrin saturation above 55% was highly indicative of Hereditary Hemochromatosis (94% predictive).
I spoke with my parents and asked if there was a family history and found out that in fact, my whole family have a history of low iron levels and vitamin B12 deficiency.
The same applied with my brothers and sisters (family of 5).
Shouldn't there be a history of at least one family member with high iron levels?
Is there any way that transferrin saturation levels can be raised temporarily and result is a flawed blood test?
I gave a second blood test yesterday but was told that the screening process for hemochromatosis takes 10-12 weeks.
I have read up so much about the disease in the past two days and have really worried myself so if you have any information or previous experience it would be great if you could share.
Could any of the following have affected my results:
I Binge Drink once a fortnight/month
I Smoke 10-15 a day
I Eat a lot of takeaway food.
I Was taking Centrum Advance supplements sporadically in the lead up to the blood test.
This has been a wakeup call for me so I immediately quit smoking and focused on improving my diet.
Cervical Smear :: Are Fibroids Hereditary?
are fibroids hereditary?
View 1 RepliesTumors And Cayenne Pepper, Turmeric, Ginger Root, Thyme, Basil, Black Pepper
57 yo f with chronic pain for 33 years, diagnosed with Fibromyalgia (fibromyalgia), recent Pre- Diabetic, chronic pain all over with these tumors growing all over. They are leaning towards IgG4. For my pain relief I start my day with Cayenne Pepper, Turmeric, Ginger Root, Thyme, Basil, Black Pepper, Garlic, Cardamom, very little Fennel not each day, and Beetroot and Avocado, Wheatgrass, Kombucha and other Probiotics. I am not on any medicine yet, I can't do the steroids.
I have learned that these herbs really help me the tumors in my lungs disappeared. Can anyone else share a natural healing herb and support.
Endometriosis :: Could Be Genetic?
I been having all the symptoms of endo. The lower back pain, pelvic, stomach pain, bloating. I also have leg pain which im not sure is linked to endo but my pain is constant as i've had it non stop for a month now but feel worse when im on my period.
I have been to the doctors as he said it could be a possible ovarian cyst but he didn't really know so he is referring me for a ultrasound which wont be for a couple of weeks!! He did no other tests apart from a urine test (still waiting on results)
My mum has told me both my cousins have endo and im just wondering if its genetic?
Constipation Due To Genetic Illness
Because of a genetic illness, I'm chronic constipated. (for 3 years)
Probably because of a coordination issue in my bowels and reduced muscle strength.
I take Molaxole every day but it's not enough, I often have to take 8 Molaxole-doses in 6 hours to empty my bowels.
Is there something else that can help me have a good bowel movement?
Is there something that improves the movement of the muscle tissue in my bowel wall?
Eye Bags :: Run In Family - Genetic?
Seems like I have eye bags "running" in my family. My mom has them and she's been using numerous creams and potions and what-else to get rid of them but nothing seem to work properly. Is there something i can do to prevent them or I just have to get used to idea that i will be having eye bags?
View 1 RepliesPregnancy :: Genetic Testing?
I turned it down but I wanted to know if anyone else got it done...
View 2 RepliesLeukemia :: Low WBC Count? Genetic?
My wife's past WBC count was always about 5. She just recently had a test and it is 3.7 and has been flagged as low on her health records (nurse didn't mention it but she has only seen her online records since speaking to the nurse).
Now she is worried because her father died of leukemia. Is this white blood cell count dangerously low or unlikely to be anything serious?
Cystic Fibrosis :: Genetic And Inheritance
Can you tell me something about cystic fibrosis carriers for I am planning on getting pregnant but I am afraid that my baby could be born with cystic fibrosis for my mum has the illness and I know it is inherited and I know I am cystic fibrosis carrier. So do you think I should get pregnant with this cystic fibrosis carriers history and how could this possibly affect my baby health condition?
View 2 RepliesPregnancy :: Anyone Gotten A False Genetic Testing?
has anyone gotten a false genetic testing . They have told me my baby neck is 6mm away and it has to be 3mm . Has anyone gotten the same problem and later everything was fine ?
View 1 RepliesPregnancy :: How Accurate Is Genetic Testing?
How accurate are blood test
View 10 RepliesDepression :: Is Bipolar Genetic Disorder?
I just wanted to know if Bipolar is genetic. My was recently told that my grandad is bipolar and wondered if I was to as I believe I have some sort of mental problem. I don't really know much about bipolar and be good to learn about it also, not just from reading books and websites but from people who actually experience it themselves or with other people.
View 4 RepliesGenetic Test To Find Antidepressant For Me?
I have been taking antidepressant for almost an year. I changed few brands, nothing was helpful for me.
Recently I learned that there is a genetic test for antidepressant. I wonder if I can order it by Internet. I live outside of US and here there is no chance to find one.
Do you know if it's possible to order genetic test kid by Internet?
ADHD / ADD :: Genetic Testing For Meds?
I have a 10 year old son who is diagnosed with ADHD, Anxiety, SPD/IPD and rule out of Asperger's/PDD in 2013. Currently, we have him on Methylphenidate ER 30mg per day, but lately we have been noticing issues. Mind you, the school hasn't been very helpful this year with information on how he is doing so I can only go by the vague messages received... the first 6 months, they say he was great! Though I have documents to prove otherwise - lately though, the teacher keeps saying he lacks focus, needs to pay attention and all that jazz. (I say it so flippantly because this teacher has been a pain to work with.
I spoke with the doctor and she wants us to come in next week to discuss his meds, but we have had issues with additives in the past and it's not a route I want to go... to sit and wait. His diet is modified already, we also work with a behavioral therapist and a chiropractic neurologist and he takes Taekwondo.
With all this, I'm wondering if anyone has tried the genetic testing (IE: HarmonyX or Genesight) to see what meds would work best with his specific genetic makeup?
I read all these stories of parents having all these issues and suddenly their kids are on Vyvanse or something else and it's a miracle. I wouldn't mind that... him being able to function better at school (academically and socially) ... he gets bullied (though he can start it up too) - I just wonder, what next?
Here is his medication history:
August 2011 – Vyvanse ??mg (very small amount)
September 2011 – Vyvanse 30mg (adjusted to 30 mg)
May 2012 – Trial samples of Intuniv w/ Vyvanse for two weeks. After two weeks he was out of school and parents decided not to continue the Intuniv.
September 2013 – Intuniv 2mg w/ Vyvanse
September 2013 – Concerta 36mg (removed from Vyvanse and Intuniv because he became over-emotional and violent/aggressive)
December 2013 - Concerta 54mg (Dr. Snyder prescribed)
March 2014 – Methylphenidate 10mg (3 times a day) (March 7th thru March 14th)
Methylphenidate 15mg (3 times a day) (started March 15th)
April 2014 – Methylphenidate 20mg (3 times a day) (started April 14th)
May 2015 – Adderall (adderall) 10mg (3 times a day) (started May 14th)
June 2015 – Adderall (adderall) 15mg (3 times a day) (started June 3rd)
August 2015 – Guanfacine 1/2mg (3 times a day) (started August 21st)
September 2015 – Methylphenidate ER 30mg (once a day) (started September 6th)