Experiences? Reflex Sympathetic Dystrophy / Complex Regional Pain Syndrome

I am interested in anyone who has been diagnosed with RSD if you wouldn't mind sharing your story. How soon after injury you were diagnosed, who diagnosed you and what changes you saw and when. Do you have all symptoms like skin and nail changes and when did this happen ? My dr recons I have it but I'm still not convinced though I do have signs of it and no other explanation as to why I still can't walk five months post ankle break.

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Chronic Pain Syndrome Developed Due To Reflex Sympathetic Dystrophy

I've had RSD now for 2 years and now my doctors say I have unfortunately developed chronic pain syndrome and its to my understanding it's creating more pain that is feeding on the pain that is a viscous cycle and very hard to break my question is does anyone have CPS on top of RSD for just when I thought this is enough there's more .

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Reflex Sympathetic Dystrophy :: RSD Or Nerve Pain?

In pain after botched bunion surgeries by podiatrist, underwent reconstructive surgeries with OS. Still in pain, now was diagnosed by OS with RSD. 3 phase bone scan showed "increased blood flow and soft tissue uptake in the right ankle and foot. There is intense increased uptake in the right first metatarsophalangeal joint likely represent reactive postoperative change and consistent with postsurgical changes and reflex sympathetic dystrophy in the right lower extremely". Pain management said that as I DO NOT have swelling, change in color and temperature, it is not RSD and sent me back to OS, who already told me that there is nothing else he can do surgically. So I have terrible burning and stabbing pain and muscle spasms. I just want to understand if RSD is a nerve pain or is the result of some abnormal process in bones as was indicated in my test?

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Reflex Sympathetic Dystrophy :: Opana Helpng Pain But Destroying My Mind?

I am at the end of my rope!!!!!! I have crps following botched surgery almost 5 years ago. I was on percocet for the first 2.5 years until a new pm doc told me it was bad for my liver and changed me to opana - 5 mg, 3 times a day with oxymorphone 5 mg times a day for breakthrough pain. About a yr and a half ago I developed horrible anxiety which has stayed with me since. The doc said maybe the new formulation didn't agree with me but made no changes. I wake up from sleep in the morning screaming and crying, so agitated. The pain docs don't care as long as your pain is under control. the doc added methadone at my last appt to curb the anxiety in the mornings but I'm to scared to take it. I've read it's more addictive than all of them. I don't function anymore, don't leave the house, cry several times a day. Has anyone experienced this? I feel insane and these docs don't seem to care. Last year I went to a psychiatrist and spent the entire year trying every anti-depressant int the book but none worked. They just raised my anxiety. I really think it's these pills.

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Reflex Sympathetic Dystrophy And Sedation

I wanted to get feedback on sedation , I get procedures every 10 days for the pain I have my doctors so SGBs on one foot then the other for I have RSD in both feet and the surgeon uses versed to sedate me and I now I've built up a tolerance , they use 4 doses where as when I first started I only received 1 dose but now this last procedure I felt no relief so the sedation is not working and it's very painful to do these nerve blocks without sedation so I'm lost as to what to do I'm considering stopping the injections because of this has anyone experienced the sedation not working anymore and if so what did you do?

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Reflex Sympathetic Dystrophy :: Teeth Fracturing

I've had RSD diagnosed since 1987, and the rheumatologist who diagnosed me, made me think back and he actually told me that I've had it since a child. I'm 68.

My question is, has anyone had a problem with their teeth fracturing? I've always had good teeth, but this year 4 fractured and fell apart and out. This evening eating dinner I had another one just fracture up and it was gone.

I have asked my 4th Dr. now, if it was the Suboxone I had been on, he immediately said no, who told you such a thing? I said no-one I was asking you a question! I have bad TMJ, which I think is just another area of RSD.

On Pain Meds, I can keep active and fit, keep my joint mobility. I am a horse trainer, so it is imperative that I had my pain addressed. Well that stopped in Nov. Have not had a pain since then. My new Dr. had RSD himself, in his foot and physio fixed it, so he figures my is all gone. He told me to take a Tylenol 3 or Aspirin. I am getting pretty stove up right now, pain virtually everywhere. And now I have no backup.

I live in BC Canada, and when we moved to the Chilcotin, the Dr.s in the nearest town have gotten together and said they would no longer give narcotic type drugs to anyone, and they would not send any of their patients to specialists, because they gave their patients too many drugs they didn't need. Now does that make sense, they should listen to themselves.

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Reflex Sympathetic Dystrophy :: Laser Hair Removal

I have RSD in my right leg, hip, & lower back. I hate the days that I have to shave my legs because it causes me a lot of pain and makes me extremely grumpy, especially since I always have hair on my legs again within 24 hrs. I am considering laser hair removal so that I don't have to go through this painful process, has anyone had it done?

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Fibromyalgia Vs. Complex Regional Pain Syndrome

to understand fibro pain more 

look up complex regional pain syndrome on the NHS choices page its a fairly new article only placed there  today .your find it very interesting and might be a step forward to you understanding your pain better.

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Multiple Sclerosis :: Babinski Reflex, Hoffmann Reflex, Brisk Reflexes Symmetrical On Both Sides

I am a 42 year old mom of 2 boys.  I have been healthy most of my life.  In 2011, I noticed some numbness in my left hand and it seemed to be "clumsy".  My mom has MS so it scared me.  Considering my family history, my family doc sent me to neuro and to have an MRI.  The MRI and my exam turned out to be normal.  The neuro said it could be my ulnar nerve.  2012, another episode and this time with worst headache ever and blurred vision.  Once again I checked out fine.  Then in July 2014 while on vacation, I became dizzy and started to stagger.  I went to an urgent care and they told me I had vertigo.  After that the vertigo/clumsy remained, and I started having myoclonic jerking of my muscles and headache. I was checked by neuro when I got back from vacation. The vertigo went away but muscle jerking remained.  Normal exam and bloodwork.  August 21, it came back the vertigo/clumsy feeling, headache, my legs being sensitive to touch, and I occasionally  repeat things when speaking like my brain can't remember.  I went to a recommended neurosurgeon.  His exam revealed Babinski reflex, Hoffmann reflex and brisk reflexes. It was symmetrical on both sides  He ordered an MRI.  I couldn't get in for almost 2 weeks. The waiting is making me crazy.

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Ear Problems :: Stapedial Reflex Muscles - Pain From Normal Sounds

After numerous medical consultations and exams I finally was referred to Addenbrooke's Hospital in Cambridge to a specialist in the audiologist department.

It appears that I have an issue with the Stapedial reflex muscles. This causes me pain resulting from normal level sounds.

They have prescribed relaxation and sound therapy rather than surgical treatment at this stage.

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Anxiety :: Constant Pooping, Acid Reflex, Chest Pain, And Headache, And 9 Months Insomnia?

Constant pooping, acid reflux, chest pain, and headache, and 9 months insomnia.

How to cure without sleeping pills?

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Anyone Cured Regional Pain Syndrome ?

Has anyone out there with CRPS managed to return to work?

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Regional Pain Syndrome :: Foot Cold On Bottom And Warm On Top

I have been dealing with the first few months of CRPS which started as burning hot and has changed to a freezing foot that turns blue or purple. Lately I have noticed the bottom of my foot will be ice cold but the top of my foot is normal temp, my toes are like ice. Is anyone else experiencing this? I am battling the workers comp nightmare right now and I hate to tell them about this as it may complicate an already horrible experience dealing with them.

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Thyroid :: TSH With Reflex To FT4 - 19 ... How Bad Is This?

My latest lab results read:
TSH with reflex to FT4 - 19.825
T4 free 0.4

I keep seeing a lot lower numbers on this board and cannot find anywhere that shows more info on my numbers.

How bad are those numbers? My Dr just upped my levothyroxine but acted like it was no big deal.

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General :: Sensitive Gag Reflex

Ok I'm 19 years old and I think my health is good. Anyways, my gag reflex started one day after I was eating and I just looked at the food I was eating and suddenly didn't want it. At first it was just when I would brush my teeth and after using mouthwash, I would usually cough and heave or spit out water. And now I have noticed that after I eat, I can feel my gag reflex. Like I can feel that there is food stuck there (it's probably not, but I can feel something nasty there), and one time I touched my throat (outside neck area) and I wanted to vomit. Now I have an issue sometimes with the front of my shirt collar touching my neck area, because I feel suffocated and it makes the food feeling even worse.

I do salt gargling sometimes, but I still have it! Any help? I also get stomach aches more frequently now (I have gotten 3 so far in these past months and have thrown up.)

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Multiple Sclerosis :: Foot Without Reflex

The neuro scrapped the bottom of my foot and could not get it to jump like it used to.  he kept trying but nothing happened.  I thought this was important but nothing was said and when I asked my physician, he said this was normal.  what's it mean if the foot doesn't react?  

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Thyroid Disorders :: TSH , 3RD Generation With Reflex To FT4?

What is this test? I had this test done last month among others and this one came back as 7.46 mIU/L and the reference range is 0.40-4.50 . Dr. Wrote "elevated-over 7."

Also my calcium was high at 10.6 mg/dL and reference range from 8.6-10.2
Free T3- 4.3 ph/mL reference range from 2.3-4.2 , slightly elevated.
T-4, free- 1.5 B&G/dL reference range from 0.8-1.8

My main question is what is the tsh 3rd generation with reflex to ft4?

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Multiple Sclerosis :: Abnormal Acoustic Reflex

Anyone else with MS have this? I developed pulsatile tinnitus over the summer and saw an ENT recently to look into it further. It's only in one ear, which is coincidentally on the side where I have the majority of my dysesthesia. My hearing was fine, but acoustic reflex came back abnormal and there were no ear issues found, so he ran a CT scan to look for tumors. None turned up, so they are saying this could all be from MS. Seems strange to me, but many things are with this disease. Anyone think this sounds right or should I push a little more for answers?

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Sciatica But Knee Jerk Reflex Is Normal?

l went to a hospital appointment and my Consultant checked my reflexes, my knee jerk reflex was normal. Can anyone help me out?

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