Fibromyalgia Vs. Complex Regional Pain Syndrome
to understand fibro pain more
look up complex regional pain syndrome on the NHS choices page its a fairly new article only placed there today .your find it very interesting and might be a step forward to you understanding your pain better.
Regional Pain Syndrome :: Foot Cold On Bottom And Warm On Top
I have been dealing with the first few months of CRPS which started as burning hot and has changed to a freezing foot that turns blue or purple. Lately I have noticed the bottom of my foot will be ice cold but the top of my foot is normal temp, my toes are like ice. Is anyone else experiencing this? I am battling the workers comp nightmare right now and I hate to tell them about this as it may complicate an already horrible experience dealing with them.
View 2 RepliesExperiences? Reflex Sympathetic Dystrophy / Complex Regional Pain Syndrome
I am interested in anyone who has been diagnosed with RSD if you wouldn't mind sharing your story. How soon after injury you were diagnosed, who diagnosed you and what changes you saw and when. Do you have all symptoms like skin and nail changes and when did this happen ? My dr recons I have it but I'm still not convinced though I do have signs of it and no other explanation as to why I still can't walk five months post ankle break.
View 35 RepliesReflex Sympathetic Dystrophy :: RSD, CRPS, Reflex Sympathetic Dystrophy, Complex Regional Pain Syndrome
Yes, I successfully cured/healed RSD! It is possible!
I effectively "cured" RSD with holistic treatments. I encourage anyone who suffers with RSD consider the holistic regime I created for myself. You can do it too.
Brief explanation of my RSD journey:
Once, I, too, suffered severe Type II Reflex Sympathetic Dystrophy to my right foot and entire right leg up to my hip which presented itself after auto accident injuries stemming from both fractures and a ruptured plantar fascia in my right foot.
I was fortunate I had an early diagnosis (from my Chinese Doctor, who called it "nerve damage" and was first to diagnose RSD. Only because I was "pro-active" and pursued another opinion regarding my symptoms outside the closed box of conventional/allopathic medicine, which was the only treatment medical insurance will pay for.
After my initial nerve damage diagnosis, I brought this vital diagnosis to my allopathic doctors (who actually missed diagnosing it despite my detailed description of the pain and symptoms) who then concurred with my Chinese doctor's diagnosis and for the first time in my life I heard the words Reflex Sympathetic Dystrophy or RSD.
I refused allopathic treatment of RSD (4-6 "nerve block" treatments were recommended to begin by several MDs, including anesthesiologists, sports medicine doctors and Podiatrists). Why? Intuitively speaking, I considered the nerve block procedures to be far too invasive and risky, and which required general anesthesia (additional risks), the use of a fluoroscope (unhealthy exposure of radiation), injections of cortisone and a long acting local anesthetic marcaine, and worse, the end results were NOT at all promising.
Instead, I committed myself to a more holistic approach toward healing because I trusted the wisdom of the body's ability to heal.
Immediately upon my nerve damage diagnosis, about 6 weeks after the auto accident, I began my daily regime of holistic treatments, which included acupuncture, naprapathy, osteopathy, physical therapy, physical exercise physiotherapy which I did for the next 6 months. (As a precaution, in case I did not gain immediate results from my holistic regime, I did arrange advanced appointments with an anesthesiologist to perform nerve blocks. However, I later canceled these appointments because I began to gain positive results relatively soon after I began my holistic regime to heal RSD.
After the first six months of intense daily regime of holistic treatments, my acute and horrible symptoms slowly began to disappear. Gradually, the dark reddish-brown discoloration of my foot and leg began to fade, the inflammation/swelling slowly began to reduce, and the distorted and abnormal shape of my right leg and foot improved (which my husband likened to a "slab of red meat" that "looked like something hanging in a butcher shop"). The over the top excruciating nerve pain (which was off the charts, not in the 1 to 10 range, when asked I rated it "100+++!") to the slightest touch or even a sheet touching my foot was far too painful to bear, slowly began to dissipate into the 1 to 10 range. The complete loss of normal ambulatory function with my right leg and foot (I required a wheelchair or crutches to hobble around on my left leg) began to slowly improve after much treatment and with my determination to be pain free, to walk, run and dance again, I "pushed through the pain" with the physiotherapy machines and "re-learn" how to walk again. I literally reprogrammed my brain to walk again.
About six months into my holistic regime, I was again able to walk on my right leg and foot without the aid of a cane or crutches. However, each time I flexed my right foot to walk, it was painful, far too painful to walk long distances. I rated it an 8 on the 1 to 10 scale when asked by an anesthesiologist which I deemed completely unacceptable live with the rest of my life.
This anesthesiologist, with whom I had a 6 months post-RSD diagnosis exam (for medical insurance purposes) was the director of the pain clinic at Kaiser Hospital in Sacramento, CA. This anesthesiologist, who would have otherwise performed nerve block treatments on me had I surrendered to them, wrote in my medical records, "patient sought alternative treatments with acupuncture, osteopathy, naprpathy for treatment for RSD and achieved remarkable results..." My Kaiser podiatrist wrote, "patient had miraculous recovery from RSD with holistic treatments..." My Kaiser internist, my private St. Francis Sports Medicine, a medical doctor, my Kaiser physical therapist all wrote similar comments in my medical records which not only validated my intuition to take the risk to explore holistic treatments but provided substantiation that they were effective and beneficial which forced my Farmer's Auto insurance company to eventually pay for my holistic treatments which were all rejected. Two years later I was reimbursed for all my holistic treatment costs.
I want to offer another perspective into the closed, blocked mindset dogma of allopathic medicine and doctors. During my final exam with the anesthesiologist(as previously mentioned), although this doctor was quite expressive about her amazement of my then-recovery with RSD, she still remained stuck in her dogma when we discussed my pain level. She actually told me that I had reached the limitations of any more recovery because I had passed the 6 months window of time for nerve damage. She said, "I am sorry but I am afraid you will have to learn to live with the pain."
This director of Kaiser's Pain Clinic which treats RSD patients continued to reinforce her assessment that I would not improve, that I reached the limits of any possible recovery. She told me how lucky I was, how much better off I am than most of RSD patients who never get better and only worsen, etc., and I assumed she meant that I would waste my time and money if I continued with holistic treatment.
She shook her head when I told her I wanted to continue with acupuncture treatments until I was completely pain free. She may have meant well and didn't want me to have high hopes of recovery and then experience failure, or whatever. This anesthesiologist, who performs nerve block treatments, gave me all the information of what she knew based upon her 20+ years of experiences with RSD patients.
Fortunately, I did NOT accept her prognosis. Instead, I passionately said, "Doctor, I trust the wisdom of the body to heal and I shall continue with acupuncture treatments until I am completely 100% pain-free. I'll be damned if I willing to live with this pain and can't go for long walks, run or dance the rest of my life because a jerk ran a stop sign and plowed into me!"
Her expression spoke volumes. She was a bit astounded by what I said but not one word of encouragement was spoken. There was a long uncomfortable pause between us. Finally, I said, "One day I will return and prove to you that I am pain free and then you can bring in an acupuncturist, a naprapath, and an osteopath into your pain clinic to help RSD patients.
It took another six months of treatment before I was completely pain free and before my right leg matched the color and size of my left leg. My internist/primary doctor was thrilled by my recovery and accredited it primarily to my "positive attitude and determination." Kaiser wasn't interested in accepting my recovery was due to holistic treatments. Instead, it was just considered "miraculous" remission of RSD which, of course, does NOT give any credit to all the beneficial holistic treatments I had.
I am still pain free after 11 years and walk miles daily and go dancing twice every week. I am grateful for all of my holistic doctors, I hope my allopathic doctor learned from my experiences and success with curing RSD.
Hand :: Trapeziectomy - Regional Block Anaesthetic?
I am due to have a trapeziectomy shortly and think I will choose to have a regional block instead of a general anaesthetic. Has anyone else had this? I would be interested in hearing the experience of others.
View 2 RepliesLPHS - Loin Pain Hematuria Syndrome - Blood In The Urine With Horrible Pain
I am French. I’m 28, it’s being 2 years and a half that I have blood in the urine with horrible pain.
I had 3 ureteroscopies who have given nothing and now the professor who follows me told me I have the loin pain hematuria syndrome, and there was nothing to do. The only thing I can do is to wait till it’s going better. He refuses to make a biopsy and told me to take aspirin.
I wanted to know if you know doctors who offer other drugs. I've heard of self transplantation and kidney innervation;
I've been in different hospitals and doctors tell me that the pain is bearable and advised me to consult a shrink. I do not think my pain is psychic. I wanted to know if U.S. medical research is more advanced than the French one.
Sjogren's Syndrome? Pain On First Bite - Neuropathy, Blurry Vision, Muscle Pain
I came across this syndrome when searching the Internet about extreme pain I have when I take the first bite EVERY time I eat and sometimes drink. That this could be a symptom of this syndrome but I don't know. I do have some of the other symptoms, i.e. neuropathy, blurry vision, muscle pain, fatigue but these can also be associated with Type 1 Diabetes which I have. Also, came across parotid/salivary glands are affected which also can cause the jaw to ear pain I'm having. Has anyone heard that the Coxsackie virus can have anything to do with it? How do you know for sure if it is Sjogren's and what type of doctor do you see about it - a primary?
View 1 RepliesChronic Pain :: Myofascial Pain Syndrome?
I just started reading about this and it really sounds like I may have this but I'm not sure. I have headaches sometimes that are awful and seem to start from my neck and back of my head. I see a chiropractor once a month and my x rays showed problems in c5 and c6 in my neck. I also have notalgia paresthetica which itches me too death sometimes in my right back shoulder. We figure it's caused from the c5 and c6 in my neck. I never sleep all through the night, always tossing and turning. And I feel fatigued ALL the time no matter how much rest I get. I had a blood test and my vitamin D is low. I can find "knots" on my back, usually I can find about 5 or 6 of them, even on my sides. I work a very physical and mentally stressful job and this causes me a lot of pain. When I am working usually mid day I will get a horrible sharp pain somewhere in my back and it just stops me. It's like someone taking a hot knife and stabbing me with it. It's hard for me to straighten myself up. My pain is in my mid and upper back, rarely ever in my lower back. I do get dizzy sometimes also and feel off balanced.
View 4 RepliesTMJ :: Myofascial Pain Syndrome?
Have had TMJ Dysfunction for many years which was controlled. Then 12 months ago symptoms returned and did not respond to usual methods of treatment. At the same time had some kinesio taping for back problem. 3 days later my whole body went into spasm . I have muscle spasm pain , tenderness and trigger points. Attended acupuncture , osteopathy and had exercises and foam roller. Work was getting worse and was struggling in with great difficulty in pain . Last October virtually collapsed and had to retire. Went to local Hospital Dental clinic who said I had MPS as well as TMJ. Gave me exercises for jaw. January 14 also in pain from damaged nerve from operation 30 yrs ago wisdom tooth extraction. Have pain and Tinnitus taking pain killers muscle relaxants also having massage. Feeling lost. You have to have this MPS to know what it is like. Can anyone advise on coping strategies?
View 2 RepliesChlamydia :: How Long Does It Take To Be Cured?
When I went in for a routine pelvic exam, I tested positive for Chlamydia. I immediately received treatment, and informed my partner that he needed to be tested and treated as soon as I was able to, which was 5 days after. Of course he wanted to have sex (even after I told him the news) and I finally agreed, but only with a condom on. He then got treatment the following day. We were informed by our health clinic to abstain from having sex at least 7 days after receiving treatment, but of course like the absolute idiots we are, we didn't. Because I am the big idiot that I am, I had to receive a second round of antibiotics which meant him and I both took them the same day following intercourse with protection. Not sure what our issue with being celibate for 7 days is exactly, but we had sex this past Tuesday with protection, but only a day after taking the antibiotics. I felt a little bit of discomfort when urinating afterwards, but assumed it was due to having sex. Just this morning, he prompted me to have sex again, and we did with protection, but afterwards he continued to try to have sex this time without a condom. I don't need anyone to tell me how idiotic it was to allow him to have sex with me without a condom, but I can't change what happened now. After having sex a second time, unprotected, this morning I had the most excruciating pain while urinating. I wanted to cry it hurt that bad. My partner has also experienced some discomfort while urinating after having sex this morning. I guess what I would like is some guidance, answers, suggestions, possible diagnosis? I am currently assuming the worst that him and I have indeed re-infected ourselves, but just wanted to throw my predicament out there for some outside opinions.
View 1 RepliesBacterial Vaginosis Cured
I cured my BV by drinking LOADS of water. Maybe 4/5 litres a day.
I tried everything I could afford to try as a broke student. So from garlics to yoghurt to antibiotics to overpriced creams. I visited 4 doctors and none of them helped me much. I burnt the inside of my vagina with all the nonsense I did. My vagina got so bad that I couldn't want for longer than 5 minutes because I would be in so much pain and desperately need to scratch. I used to spend all day in my room with my legs wide open because my genitals wore swollen and they hurt so much. I even remember crying and not being able to sleep. LOL! It was horrible!!
Anyway I started noticing the only time my vagina felt half decent was when I was weeing. So I started drinking more water so I could wee more and the more I weed the less I itched. I drunk 4/5 litres of water for 3 days and really tried to flush out my system and then it just stopped. No more itch. No more discharge, no more stink.
The sad news is I have it again. It's quite mild at the moment but I'm going to start drinking water like crazy again. Hopefully it works again.
Bacterial Vaginosis :: Cured My BV
I have suffered for years with bv and tried just about everything! Here's what worked for me, it kinda happened by accident but I've been bv free for almost two months, I have been sexually active and even after my period it has not returned. There is no douching of any kind in my cure. Hopefully this helps all or some of you as I take into account that every body can react differently. Best wishes and relief to you all!
Upon waking (before eating) have large glass of water with a good squeeze of fresh lemon. Take a femdophilus pill with water.
After breakfast take an Alive Once Daily women's ultra potency multivitamin.
Drink water with fresh lemon throughout the day at least 3 large glasses.
That's it! Also, Try not to eat tons of sweets or too much red meat.
Supraventricular Tachycardia Cured?
About a year ago I asked my doctor to diagnose the episodes I had been having most of my life.
These episodes that made me feel detached, listless, dizzy and sometimes short of breath, would last for 10 or 20 minutes or sometimes two hours. The doctors, I had previously presented to, could find nothing wrong with the lungs or heart. I was once sent to specialist who thought it might be a type of migraine.
Anyhow my doctor thought it might be atria palpitations of the heart so I asked him if the next time I was in town, and had an episode, could I come in to see him. He arranged for an alert to be put on the receptionists' computers so I would get a ECG reading/printout immediately.
And so it happened, the resultant reading showed the heart beating 140 bpm ( should be 70 bpm for me)
“Ahh SVT!” the doctor cried, - Supra Ventricular Tachycardia, the electronic pulse finds a quicker way to go but in doing so causes the heart to beat faster.(Not as serious as Atria Tachycardia.)
“Don't drink any alcohol, coffee or tea.” said the doctor.
There are techniques on how to reset the heart back to normal.
I found the best way was to just lie down on the carpet for 10 minutes or so. It was a relief to actually know what the condition was at long last. I could live with it, or so I thought.
There were times when I couldn't reset it and it would last longer and made me feel completely debilitated.
Not wanting to go through the ablation surgery or have a pacemaker fitted, (not having any faith in these procedures), being a Christian I decided I should pray about it and leave it at that.
With a busy life and everything happening, now that the family had arrived from England and living with us, I had forgotten about that prayer time. Then one day, about three or so weeks later I said to my wife “ you know I haven't had an SVT episode in over three weeks?”
So in my next prayer session I thanked God in faith for the healing.
That was six months ago, and, praise God, I haven't had another episode. I drink the occasional glass of wine with my meal and drink coffee and tea every day.
I sometimes get the flutter in my 'solar plexus' area, that previously would indicate to me that an SVT episode was about to start, but now it just stops.
The only cures I have seen offered are ablation, dietry, drinking lots of water and taking a supplement of potassium. I didn't try any of these.
I haven't read of any 'spontaneous healing's for SVT, such as mine, have you?
So I do believe that God can heal you. It just takes honest fervent prayer.
Lyme Disease :: Anyone Ever Cured?
does anyone get cured
View 8 RepliesCramps :: Cured By Quinine
I was getting severe leg cramps several times a week. Since being prescribed one quinine tablet before going to bed, they have completely disappeared. The cramps were sometimes in my calf muscles but mainly in my ankles, feet and the muscle at the side of my leg.
View 2 RepliesHepatitis C :: Cured By Harvoni
I don't post a lot on here but wanted to share with everyone the miracles that exist now for treating Hep C. I saw my doctor on Friday and she let me know that my 12 week post treatment labs after 24 weeks of Harvoni came back with a negative viral load and that I am now cured (12 Week SVR). This was my 3rd treatment and thanks to God, it worked. There is hope for all of us. I have had Hep C for 30+ years and am a Genotype 1A, with a Fibrosis level of 3+. As a 3+, I still have an increased risk for HCC, so I will continue to get lab work done every 6 months, ultrasounds every 6 months and a CT scan every 18 months. I encourage everyone to keep on treatment - we are at a place where so many of us now have a chance for a cure!
View 6 RepliesHepatitis C :: Cured Of HCV But Now Positive Again
My new girlfriend, who I like very much, was very open with me about the fact that she had a blood transfusion as a baby for several surgeries she had to have, which left her HCV positive. She and I were about to move into the sexual part of our relationship, so we both got tested for STDs to show each other we had a clean bill of health. Well as it turns out, her bloodwork showed she was HCV positive again...this is after achieving SVR (not sure for how long she had achieved this yet). She told me and was very upset, so I obviously just gave her a hug and held her. No other way to respond she was so upset. I'm curious, does anyone on here have any experience with this? Possibility for false positives or possibility for her to need to seek additional treatment? I hope you can forgive any questions that may seem ignorant. I am mostly focused on her health, but naturally I'm also concerned about the implications for our future relationship (I understand it is very low risk to pass it to me through sex, but still, I'm human, and I'm just carefully looking at this situation). If anyone can shed some light on her situation, I'd love to hear it. She's a great woman and I'd like to get any info for her that could help.
View 5 RepliesArthritis? Chronic Pain Syndrome?
Has anyone else been diagnosed with this condition? I shall explain! for 10yrs i've been told i had arthritis in my right hip and right hand giving me chronic pain, only to be seen by 5 different doctors due to a recent change in location and investigations i've now been told i have , mild osteoarthritis in my right hip and the joint between my thumb and index finger.
Not only that but all differnet 5 doctors have said it was different things. seeing my own doctor today, she said (or applied) that the pain might be in my head, then to turn round and say that she was certain that i had A chronic medical condition and what it was she was unsure of.
Is this Chronic pain syndrome another name for they havent a clue whats going on?
Fibromyalgia Syndrome :: Pain And Bad Flare Ups
I was diagnosed with fibromyalgia about 18 months ago and I'm having a really bad flare up at the moment and still trying to work full time! I'm a beauty therapist so I Found I don't go in I let people down! I'm struggling to walk and my back and wrist is really swollen, I'm taking nurofen and paracetamol but they're not touching it.
View 26 Replies