Recurrent UTI With Pain Near Ischial Tuberosity
I cannot find any doctor to help me. It started in November .. I thought I was having some back pain and went to the DR and found out I had a UTI. I was optimistic I would take the antibiotic and all would be fine. Well after I completed the Cipro the UTI was still there. They switched me to Macrobid and it cleared up. I continued having the pain in my back, hip and near my ischial tuberosity (sit bone). The sit bone felt very tender upon palpation and when i would press on it, it would also then initiate an anal reflex. (I think a sphincter is somewhere around there). I have gone to orthopedic doctors, and I have an appointment today with a Urologist as the UTI has come back twice since then. It all seems interconnected. I also have these shooting pain up and down my labia ... to my hip as well. It is all on my right side as well.
View 1 RepliesIschial Tuberosity Bursitis - Cortisone Injections Every Six Months
I've had this nasty problem for almost 5 years now. I was in a severe vehicle collision where I fractured my L1 vertebrae, and then about 6 months later, I started getting this nagging pain in my left sit bone and down my leg.
I was misdiagnosed for the first 3 years of it. At first they thought I had piriformis syndrome ( which is most doctor's first diagnosis since it sends pain down the sciatic nerve. I did 6 months of rigorous physio/chiro/needling to attempt to fix the pain, but nothing helped.
Then they thought it was a bulging disc radiating pain down my back from the injury.
All the while, my pain was getting worse and worse. Taking more and more pain medication. Getting heavy into the opiates. Then after losing my career in the military, and after a year of wasting time. I finally got in to see a spinal specialist. one who teaches around the world and after 5 minutes of asking questions and a couple of manipulations, he diagnosed my with Ischial Tuberosity bursitis.
While I was happy to finally KNOW what it was. It hasn't been fixed. I get cortisone injections every six months, and unfortunately the relief is is not the best. I am taking a Fentanyl patch for consistent pain relief.
It sucks that a pain in my butt is a constant in my daily life. It's depressing and it makes it so i can't live like a normal person....doing normal things....movies, dinners, socializing, driving... etc.
All I do, is try to keep on moving......moving....trying to stay flexible...doing my stretches....trying to keep in decent shape and health.
If anyone wants to chat about their issues with Ischial Bursitis, I'd be glad to. Or if anyone wants to know about treatments etc....ask away.
Ischial Tuberosity (sitting-bone) Pain :: Physiotherapy Aggravated The Issue
I've been having pain sitting, standing, & walking very far (at all) for over a year now. I had a spinal fusion done at the L -5/S -1 level back in 2002, & my docs keep close tabs on my back. I've had a tiny tear in the L-4 for many years, but most the docs feel my current problem has absolutely nothing to do with my spine - I agree. I have been diagnosed with a hip labral tear in my right hip socket about 4 months ago, but not bothered enough to do the drastic surgery. Doc injected left hip socket due to pain, but again, not my main problem.
I've had physical therapy (which aggravated the left socket), steroid injections into the ischial tuberosity bursa (both sides) - due to the doc thinking probable ischial tuberosity bursitis, which it is not, & am scheduled for an EMG down both sides of my lumbar spine (I hate those tests - they really hurt!). Meanwhile, I've been working with my chiropractor who does adjustments, percussion massage, iontophoresis, & cold laser treatment on me twice a week.
NO ONE knows what this is, WHERE to send me, or how to FIX it!
Heel Pain / Hurt After Standing Or Walking - Patellar Tendinopathy
For several years now both my heels hurt after standing or walking for a little while. After a couple of days rest I am able to walk for maybe 30 mins before it becomes unbearable and standing seems to be worse. I have seen podiatrists, followed stretching plans, bought new shoes according to my gait analysis, customised insoles and the job lot. I was wrongly diagnosed with Achilles Tendonitis and Plantar Fasciitis which were cleared after an MRI and ultrasound scan. No heel spurs or cushion problems etc and back MRI scan has ruled out root nerve issues although a nerve conduction study presented some mild root nerve S1 weakness. A little further info is that my left foot is significantly worse than my right and my left knee has been diagnosed with patellar tendinopathy.
I'm in IT and do spend a lot of time at a desk but get out to the gym a couple of times a week for some light cycling and stretching. I have found that my core is pretty weak and the likely cause of my Patellar Tendonitis. I'm now working on core stability and looking to fix any muscular imbalance.
My consultant is stumped and does not know whats causing the pain so I asked her to rule out Baxters nerve compression which she is looking into.
I would really like to get any help with this as it's been causing me pain for several years and not allowing me to get on with day to day activities as I can't walk or stand for short periods of time.
Ischial Sit Pain - Piriformis Syndrome? Ablation OF L2, L3, L4, L5 And S5
I've been dealing with sit pain for almost 4 years. Mostly feels like on the bone on my left butt cheek but from time to time moves to the outside of iT (along panty line) or to the inside between bone and groin. I can't pinpoint any particular event that caused it. Been mis-diagnosed as piriformis syndrome, have had tons of injections, PT for SI joint issues, sciatica injections, ischial bursitis injections, when pudendal nerve (but didn't pursue that) & today I had RF ablation oF L2, L3, L4, L5 and S5. I've not had back pain except once in awhile an ache in lower back & hips feeling out of alignment (probably self inflicted trying not to sit on my left butt cheek). Anyone else having the same issue or found a solution?
View 12 RepliesArthritis :: Fibrocystic Change In The Greater Tuberosity?
Findings: -
AC Joint: There is mild AC joint arthrosis present.
Osseous Structures and Articular Surfaces: The glenohumeral cartilage is normal. There is fibrocystic change in the greater tuberosity. There is normal signal in the glenoid.
Rotator Cuff: The supraspinatus, infraspinatus, subscapularis, and teres minor are intact. There is no retraction or atrophy. No fluid in the subacromial/subdeltoid bursa.
Labral-ligamentous Complex: The biceps anchor is intact. No definite labral tear present.
Additional Findings: No mass lesion in the quadrilateral space or suprascapular notch.
I was in a bad car wreck Feb 15th , luckily i didn't get hurt to bad, just banged up pretty good with alot of bruising , i really didn't have pain in my shoulder until 2-3 days later i started feeling a sharp stabbing pain in my collar bone, i kinda ignored it and went about my business thinking ok its just from being banged up. I then went to work on a saturday and noticed that the pain started to get worse and noticed a bulge in between my collarbone and shoulder , i proceeded to put ice on it and just kept working, then i went into work sunday and still same thing but i started to feel very weak and ill . so i told them sorry i am unable to come back to work the next day and made a doctors apt . he scheduled an MRI i got it done and that was in march 9th , he said they didn't see any tears or broken bones, but i do have Mild ac joint Arthrosis , he sent me to an Orthopedic surg. and i have been doing physical therapy since then and he did give me some shot in the shoulder. the pain in my shoulder is a deep ache pain with a burning sensation in my upper arm, then i lift my arm or turn it it pops, clicks , crackles and crunches, the pain stays mostly at a lvl 3 and some days can go to a 5 . If this ac joint is causing all this my god i just want it to go away . I already have degeneration in my spine with herniated and bulging discs in my lower back . Mild bone spurring in my middle back and neck . he wanted me to do 4 more weeks of therapy but so far its not helping the burning sensation seems to be getting worse I also feel like i have a tennis ball in my shoulder (scapula) area when i sit in my car or lean back in my chair . the areas are very tender to touch . I am taking diclofenac for the inflammation . i am supposed to be going back to my DR. may 24th to possibly have him clean and scope my shoulder to see what is causing all this !
also what does this mean ? The glenohumeral cartilage is normal. There is fibrocystic change in the greater tuberosity. There is normal signal in the glenoid.
" There is fibrocystic change in the greater tuberosity." ?
I am just wondering if anyone else has had the same problem with there ac joint doing that ?
bc i am to a point lifting anything real heavy, sweeping and mopping my floors, drying or combing my hair , mixing or stirring anything with that arm ( left ) side .. just makes it worse ! i've heat it iced it , but it gives a very short relief
Autoimmune Disorders :: Vitamin D3
I am male and so likely have had less severe autoimmune manifestations than females since they seem to have stronger immune responses. However, I have had some difficult times with autoimmunity. It started in 1972 with antiphospholipid antibody syndrome which caused deep vein thromboses in both legs. I started taking coumadin at this time but the dosage was not high enough to prevent some further clotting and a number of the clots travelled to my lungs causing pulmonary hypertension. Eventually, in 1994, this became severe enough to cause heart failure and the clots were removed via a pulmonary thrombo-endarterectomy. Subsequent to this, I developed lupus symptoms and lost both my adrenals and thyroid to it. The other lupus manifestation was regular pleurisy attacks. Also by this time, despite the coumadin, I was getting regular small blood clots on the skin on my feet and ankles, many of which subsequently turned into painful ulcers. In 2006, after reading an article on the internet by a doctor in charge of a hospital ward who was giving his patients 5000 units of vitamin D3 to prevent them getting sick, my wife and I started taking 5000 units of D3 ourselves hoping to avoid colds and flus. The vitamin D3 worked in stopping the colds but, in my case, it had another even better effect. The blood clots on my feet stopped and I have had none since.
In addition the pleurisy attacks almost ceased. With some additional experimentation, I found 10000 units of vitamin D daily (in split doses morning and evening, stopped the pleurisy attacks altogether. I remain free of the autoimmune effects since I started on the higher D3 dosage. I discussed the dosage with my hematologist and he felt up to 15000 units a day should present no problems in causing calcium over-retention (stones). I would recommend to anyone with auto-immune problems to try at least 5000 units a day of vitamin D3 to see if it reduces autoimmune problems. If you are concerned, you can discuss it with a doctor first but I have been taking 10000 units a day for several years now with no ill effects.
Do Parasites Cause Autoimmune Diseases?
I have recently completed 2 stool sample tests that have rendered the same outcome, positive for parasitic organisms but unable to identify. Now I have to complete the exam a third time. I have still not received any treatment and have experienced some serious health problems over the past few years, including an idiopathic cardiomyopathy a little over 2 years ago. Two years before this I was hospitalized for a serious virus that could not be identified. This involved a very high fever, diarrhea, vomiting, and the start of kidney failure, however I went to the emergency room at the right time. One month later, I had mono, then 4 months later, had a palsy in my left foot, then less than one year after, started experiencing chest pain, serious headaches, and extreme fatigue. The emergency room kept sending me home telling me it was a virus. Finally several months had passed after numerous visits to this ER, I went to a different hospital where they found a cardiomyopathy. My ejection fraction was 35%. I am only 37! Just after this, I noticed one day that I had experienced severe itching in the rectal area with several days of white discharge that had an odor of infection. I waited for a couple of months to see if things would get better, and they didn't, so I went to the ER. I told the doctor about the cardiomyopathy and previous mysterious illnesses, he completed a brief rectal exam, and said it was probably internal hemorrhoids. I asked if a parasitic infection was possible, and he said it was very unlikely because I hadn't been out of the country in several years. So he never tested my stool. Two years have passed, and I have had the same/similar problems since, and have reported this to the doctors over and over. For the past year and a half, I have developed new symptoms. Extreme fatigue, weakness, joint aches, headaches, constipation and diarrhea, greasy, yellowish stools, sweat that smells like ammonia, skin peeling out of my mouth, gas, burping, bad breath, weight loss and loss of appetite. In addition, I have mysterious skin rashes with hives on a daily basis, and started taking pictures of them to document this. In December of 2012, I tested positive for lupus with a positive ANA, and my doctor ordered the test because my eosinophil percentage had consistently been flagged on my blood reports as high. I still was not getting any answers, so I switched all of my doctors and have been going to the city. This is a world renowned hospital. Upon meeting my new doctors, they ordered a repeat of blood tests. This time the lupus was negative. The doctors quickly dismissed the lupus results prior, and said that sometimes people just test false positive, with no further explanation. Back in April of this year, my doctor informed me that my vitamin d level was very low, 12, should be between 30-40 he said, so I have been taking prescription vitamin d. I met with an infectious disease specialist a month ago, and she said she didn't think that I had parasites, but she would test because of my eosinophils. Bingo, I do have them, and now the doctors are trying to say they are parasitic but may not be causing my symptoms. For several months I have noticed that there is strange looking debris after blowing my nose into a tissue. Last night, I am about 99% certain that it was a small worm, certainly looked like one, and I was a teacher, so I am fairly well educated. I saved it in the tissue and put it in a ziplock bag. I don't know whether to call my doctor or not on Monday morning, as I don't trust him, and think he will once again be dismissive. I already went through the HIV phase with him, and told him I didn't have it, as I've only had 4 partners my entire life, have never had unprotected sex, I don't rim, and had an HIV test. I haven't been sexually active in about three years, so I knew I couldn't have it. I retested a couple of months ago to satisfy him, and it was negative once again. I have asked him if any of my past symptoms are connected, and he didn't think so. I disagree. The only diagnosis I have is another one of idiopathic nature, urticaria, (spelling) and says my blood work is fine, which it isn't, because my vitamin d was very low, and my eosinophils are still high. Any advice on what I should do? Prior to all of this stuff over the past 5 years, I was very rarely I'll. now I can no longer do many of the things that I used to, as I don't feel well enough, and I would really like to get some normalcy back in my life. Is there a doctor who can answer this without telling me that I am imagining things? The test results obviously indicate that I am not.
View 52 RepliesAutoimmune Disorders :: Muscle Weakness
I am a 29 year old female and I was diagnosed with Hashimoto's Thyroiditis at the start of the year. I have been having problems with my right eyelid in that over the course of the day it progressively becomes droopy and the only thing that relieves it is when I close it. When it becomes droopy it makes my eye feel like there's something in it and I end up rubbing it. It's only when I look in the mirror that it's droopy.
In January my endocrinologist ran an autoimmune profile (but not for every single antibody) and rheumatoid factor and these are the results of it:
Rheumatoid Factor - 9IU/mL (<20 negative)
HEP2 - Positive
Type - Speckled
Anti-DSDNA - 7IU/mL (<30 negative)
(Positive antinuclear antibodies but no significant disease association found)
ENA screen - Negative
Autoimmune profile
Antinuclear Abs - Positive
Anti-Smooth muscle Abs - Negative
Anti-Parietal Abs - Negative
Anti-Mitochondrial Abs - Negative
Anti-LKM Abs - Negative
Anti-Thyroid Peroxidase Abs (Anti-TPO) - 141 kIU/L (<34 negative)
I am posting here because I have a suspicion that I have Myasthenia Gravis. Not only have I got the problem with my eyelid but I tried to follow some physical tests for muscle weakness such as holding my arms out straight in front of me and deep knee bends.The results of these home tests I did:
Holding out arms stretched in front for 60 seconds - pain in both arms when it came up to the 60 seconds and left arm dropped slightly
10 deep knee bends - did all 10 knee bends but the last 3 made my legs feel weak and shaky
5 sit-ups (sitting from lying down) - could only manage 4 sit-ups
I have an appointment with my GP on Friday and since this has now appeared I'd like to mention my concerns to them.
My main concerns are :
Wouldn't my endocrinologist have tested me for Myasthenia Gravis if it's an autoimmune condition? If so what antibodies would she have tested and would any of the ones I had tested have shown I have Myasthenia Gravis?
Who do I need to request to see to get a confirmed diagnosis?
If it is indeed Myasthenia Gravis would it be because my current autoimmune condition made it worse? I have read that this is possible and I became very hypothyroid yesterday as I had very bad Reynaud's flares when out and about.
Autoimmune Disorders :: Do Your ANA Patterns Change?
So now I feel like a complete hypochondriac. Ladybud (who is fabulous, btw) has helped me tremendously. I am wondering if any of you have had your ANA patterns change. I am having muscle aches, dx with small fiber neuropathy and Raynaud’s, my RBCs and C-reactive protein have been low throughout the last 3 years. I now have been dx with a reactivation of the Epstein Barr virus and alopecia due to “granulomatous Dermatitis” (getting 2nd opinion later this month).
These are my titers and patterns over the years:
10/2011 ANA Titer: 1:320 Pattern: Homogeneous
11/2011 ANA Titer: 1:320 Pattern: Homogeneous
10/2013 ANA Titer: 1:320 Pattern: Homogeneous
5/2014 ANA Titer: 1:160 Pattern: Homogeneous
AND NOW:
6/2014 (AVISE SLE 2.0 TESTING (1st time with this test) ANA Titer: 1:80 Pattern: Diffuse fine speckled
Negative on all markers. I am HLA-B27 Positive, but negative for ankylosing spondylitis (AS).
Now my rheumatologist stated all my blood work appears to be normal and I have ZERO autoimmune positivity.
Huh? I feel like such a hypochondriac.
Treating The Autoimmune Part Of Sarcoidosis
Has anyone looked into treating the autoimmune part of sarcoidosis, if so, what was the outcome?
View 17 RepliesLichen Sclerosus Seems To Be Autoimmune Disease?
Does that mean that we women are more susceptible to viruses, respiratory infections, etc.? Do most follow a certain diet ?
View 25 RepliesNo Probiotics For Autoimmune Disease / Hashimoto's
Has anyone read or been told by their doc they should "not" take probiotics if they have Hashimoto's or other autoimmune illness?
I read somewhere that one with autoimmune problems should not take probiotics that it could cause systemic yeast infection. Now I can't find that article. Everything else I read states probiotics good for autoimmune disease.
Azathioprine For Autoimmune Hepatitis Disease
I have been living with AIH for 14 years, first diagnosed when i was 14 years old. Luckily I am fairly stable with the odd flare up now and again. I am being looked after by the Queen Elizabeth Hospital in Bham and they are brilliant. Currently i'm on 50mg of Azathioprine a day and its brilliant with no side effects. I have been on Prednisolone in the past and i've not got on well with it. My doc keeps mentioning the possibility of me having to go back on it in the future but I don't like the side effects.
View 41 RepliesAutoimmune Diseases :: Prednisone And Hydroxychloroquine 200 Mg?
What can I do while I wait to see what medication is going to help me. Predisone and hydroxychloroquine 200 mg
View 1 RepliesIron Deficiency With Several Autoimmune Disorders?
I've just heard from my GPS surgery that my most recent blood test shows I have virtually no iron! As I have several autoimmune diseases including autoimmune hepatitis, rheumatoid arthritis, SLE (lupus), Raynauds, Sjogrens, acquired autoimmune hypothyroidism) , I'm rather afraid that this could be pernicious anaemia or hemolytic anaemia, as I've never had a low iron level until now. I was taken off methotrexate due to respiratory problems (side effect) and am on prednisone 25mg/day. Does anyone have any experience of sudden iron deficiency please?
View 4 RepliesGraves Disease With RAI :: What Happens To The Antibodies (autoimmune ?
Say you have been treated for Graves Disease with RAI and that deals with the hyperthyroidism (not so much with the eyes though!), what happens to the antibodies that were attacking you thyroid with such vigour and verve? Do they just go home because there's nothing left to attack? Are they always in your system waiting to attack public enemy number 2? And why do these things decide to attack the very thing they are meant to be protecting? Is it genetics? Childhood illness (whooping cough, measles and mumps in my case.) Environmental factors? Stress? Diet?
I am sure there are many schools of thought and theories to all of these questions but I am curious still about where these wee anti-bodies go after the illness (or symptom of your illness) has been irradiated in my case.
Autoimmune Disorders :: Positive ANA And Anti-SSA/Ro
I was diagnosed with fibromyalgia years ago due to constant and sometimes debilitating muscle and joint pain. I am seeing a new PCP and she ordered some blood tests. The first was just a general screening but my c-reactive protein came back as elevated (also my platelets) so the doc ordered an ANA with reflex if positive. ANA came back positive (no titer information - it was just a positive/negative test I guess) and anti-SSA came back at 8.0 (negative range is 0.0 to 0.9). But RA factor, anti-centromere B antibodies, anti-dna (ds) qn, anti-jo-1, anti chromatin, anti scleroderma-70, rnp, anti-SSB, and smith antibodies are all normal.
Besides my muscle and joint pain I have had periods of alopecia (losing quarter to half-dollar sized patches of hair on my head), full-body rashes during especially hot times, asthma, and suspected endometriosis (currently controlled by depo-provera). I also used to never get sunburnt but my face especially gets really red now if I am in the sun for more than a little while. I have darker skin so its sometimes hard to see but lately my cheeks and nose seem constantly flushed.
All of these symptoms have been spaced out and gradual so I never thought anything of each individual symptom. The alcopecia was blamed on "stress" when I went to the doctor for it. The rashes I blamed on a simple "heat rash". My pain was diagnosed at first as carpal tunnel and then as fibromyalgia. But now with the ANA and anti-SSA tests I am thinking it all may be related. But I don't know and my doctor is out of town, and although I know she will refer me to a rheumatologist now as we have talked about that, who knows when I will actually be able to see the rheumatologist. So any thoughts would be greatly appreciated. I am thinking maybe SLE (lupus) but with only that one anti-SSA and none of the others I don't know. Also I do have flares 2-3 times a month where my pain gets much worse but it constantly hurts and aches the rest of the time regardless, which doesn't seem like typical lupus. Oh and I also had severe fatigue until my doc put me on Savella which helped with the fatigue but not the pain. So now I am on gabapentin also but it doesn't seem to help too much either.
I would do almost anything just to be pain-free for even just a day. I am hoping with the ANA results now the doctors will not only maybe be better able to treat me but also will take my pain seriously.
Autoimmune Disorders :: Positive ANA's Just Mean Inflammation
I was just told by an opthamologist I saw ystrdy for a new patient visit, that my blood work that's been coming up positive for ANA since 2012 just means there's inflammation in my body. Not an autoimmune disorder.
last week a vessel broke in my right eye and it felt weird under the lid. It disappeared the next morning. Then I noticed one a few days later in opposite eye in the morning putting on my mascara, So my husband told me I MUST see an eye dr.
I brought copies of my labs and said that I'm referred to see a rheumy dr.because of positive ANA's.
I had to write down my whole history upon a first patient visit so he knows I have osteoarthritis throughout my body in different parts.
BUT, I didn't mention the strange rashes and how I just out of the blue mopping a floor tore and blew out 60% of my knee meniscus and needed surgery. The right knee feels like something is growing in it. and it clicks when I go down the stairs as if it's catching on something. so when I saw my family dr. for my knees, he only ck'd out the injured one and said he doesn't think it's rheumatoid arthritis but thinks it may be lupus, and referred me to see a rheumy dr. but I can't get in right away. I had to wait 3 months, but the day I went my car didn't start which wound up being a dead battery. I called the office and told them what happened and they couldn't put me in for ANOTHER 3 months. so I'm now waiting almost 6 months to see this so called excellent dr.
I get strange pulls and inflammation in muscles or tissues, like out of the clear blue sky I had pain that radiated down the right side of my buttock and it got to the point where it ached all the time. My rheumy dr. who no longer is in practice, sent me for MRI and it wound up being the psoas muscle. I had to see a radiologist in my local hospt. to get a special injection put thru the hip to get to the psoas. IT HURT LIKE you know what!!!! next day too.
never had it come back. How on earth did I pull my psoas?? the largest muscle in the body. it keeps you from falling off your chair.
My left hip hurts so bad at night that it wakes me up and an old mri says there's a sprain in it??? plus arthritis.
I also have had raynauds syndrome which started during my divorce in 1998. plus numbness in hands, arms, fingers at night and even the scalp.
keep losing hair and breaking off at the edge of my scalp and going bald on sides of head. I have osteoporosis diagnosed many years ago which I refuse to take medication for cause of side effects. I just take calcium.
the list goes on. I used to have a lot of pain everywhere and was diagnosed with fibromyalgia back in 2004. but I don't get those symptoms any more like I used to. so did I actually have it or not? wouldn't I still have the symptoms?
My c-reactive protein level was positive one time only. but the ANA started in 2012 till now. I get blood work done each year.
So Is it just inflammation because of my osteoarthritis? do all people with osteoarthritis have positive ANA tests?
The opthamologist made me feel like I shouldn't even bother going to the rheumy dr.
am I just making a big deal out of nothing?