Sarcoidosis :: What's Next?
I have been very unwell for sometime now and have had numerous tests for different things including TB and now Sarcoidosis. Reading what people are saying on here is very uplifting.
When I went to see my consultant again a couple of weeks ago I still did not have a clue what was wrong with me. He then said ok let's go with Sarcoidosis, then you ask what is this and he comes back with Granulomas, small tumors on you body organs. Ok here goes I then ask is this a condition for life will it go away? He said that we will discuss this when you come back next time after putting me on six steriods a day, which I have been taking and have now put on 5 pound in weight.
I am a very happy go lucky lady and will be 49 in May.
The posts that I have read in most cases have been positive.
It is now 3.54 in the morning and not for the first time I am waking up in the middle of the night for a couple of hours then getting up and going to work. Will the mortgage get paid if I don't go to work and would I be covered by critical illness. Such worrying times.
Sarcoidosis :: Anyone Get A Very Hot Head?
does anyone get a very hot head
I feel dizzy and hot but when I put my glasses on the top of my head and take them off it's just wet having to wash my hair every day sometimes morning and night.
Sarcoidosis Along With Fibromyalgia And Asthma
Just been diagnosed with sarcoidosis of both lungs. Also have Fibromyalgia, Asthma and various other medical problems.
Had bronchoscopy and biopsies on Tuesday, felt every one taken from my right lung was in complete agony. Had x-ray 2 hours later and was told there was no pneumothorax and sent home.
On Wednesday I was in a lot of pain, but as I was seeing my consultant on Friday decided to wait to see him and it had subsided somewhat by then. Told him about the pain and he sent me for another chest x-ray which confirmed I had a pneumothorax, which he said would heal on its own.
I have to go back next week for another x-ray to see if it has healed.
He said that he wouldn't prescribe steroids at the moment and will be sending me for another lung function test in the next 3-4 months to see how things are going.
Just feeling very tired and slight pain from the pneumothorax.
Penis :: After Circumcision - Still Swollen Part Under The Tip
I was circumcised 12 years old i'm 15 now and I still have the swollen part under the tip, i feel no pain and it's no longer swollen, it is just like excess skin how do i deal with it?
View 1 RepliesSarcoidosis :: Crazy Itching - No Allergies
I have lumps in my lower legs, shortness of breath (COPD) that is getting worst, even though I haven't smoked in a year. My eyes are not affected, just had them tested. I have been on leflunomide 20 mg for 2 months and lumps are going away. Doctor also put me on O2 at nighttime. My entire itches and that is driving me crazy, I take a baths only every 3 days, and have used all kinds of skin cream, nothing works. I have itches for 5 years, not allergies, that has been ruled out. Sometimes I itch worse than other times. I have also had all kinds of blood tests and the results always come back being OK.
View 11 RepliesSmall Boil On The Inside Of My Nose Led To Sarcoidosis
Well I had a small boil on the inside of my nose for months and it just wouldn't go away. I visited my NHS Dr who prescribed some cream, nothing happened - he advised to continue using it and suggested perhaps getting it cut off. Anyway I visited the Dr at work who advised getting it cut off which I thought would be end of it. But to my dismay they did a biospy on it and found out it was Sarcoidosis. My mum has this so I was aware of it. I was devasted. This followed with CT scans, lung test, blood test which confirmed Sarcoidosis on the lungs and enlarged nymph nodes. After a long consultation it was decided not to treat it yet as I had no other systems. But a couple of months later I developed a cough, two months later I am still coughing and on exertion (netball albiet quite a bit of running around) I end up having a sort of ashtma attack. Anyway to cut a long story short this is all related and have been prescribed steriods and some other stuff to counteract the side effects. I am really reluctant to take them but after reading the different views on this site with all the different effect I feel I should start taking them (waiting for the NHS to reluctantly prescribe them) before it gets worse. I am wondering now if I have had this for ages as the symptoms of tiredness, aching neck and shoulders I have always had but just thought it was me. My mum was diagnosed 20 years or so ago and it has only just flared up again but in the bones of her ankle. She has trouble breathing which they have said is asthma...
View 1 RepliesSarcoidosis Stage 3 Is Back After 13 Years - Relapse
I recovered from stg 3 Sarc (in lungs, lymph, joints, sinus) 13yrs ago, after 5yrs of illness and 2yrs of steroids.
I now have Erythema Nodosum (sp?) - red painful bumps on lower legs.
Research suggests that 'EN' is associated with a specific version of Sarc, Lofgren syndrome, which is usually resolves quickly and without treatment.
I'm scared to go to the Dr, as I don't want to face the tension & round of tests to exclude a Sarc relapse. It's not something I want to go through again...
I wonder if it's very likely for a relapse to come with a whole new presentation of the Sarc? Or is it unlikely to be sarc, as I never had EN the last time?
Does anyone have any experience or advice which may help me decide what to do?
Best wishes to all who are currently battling with their Sarc, I truly understand your pain and your exhaustion. I was not expected to recover last time - but I did.
Sarcoidosis :: Caused Enlarged Spleen And Liver
Due to Sarcoid I have an enlarged spleen & liver. It seems that other sufferers have the same problem. Question; has anyone found a solution to this problem. I have not heard any discussion on this topic ever?
View 2 RepliesPainless Red Spot On The Upper Part Of My Nose
So I have this red/pink 'spot' on the upper part of my nose (just slightly below, for instance, where your glasses would sit on). It's not exactly a spot, other than it's circular and red, it's flat and painless. With some concealer you wouldn't see it as the skin is not raised. It's about 5 mm in diameter.
Now the issue is that is has been there for at least 3 months... and because my skin is very fair, this red/pink circular mark is very visible! It doesn't do anything, doesn't change shape or grow. It just sits there looking red and rosy.
Can you help shed light on what it is? How can I get rid of it? I've googled around for answers, possibilities are broken blood vessels/veins under the skin.
Arthritis :: Egg Helps In Treating It ?
My healer told me, that eggs can sometimes help people with arthritis in hands if it helps at least one person...........he also said not to eat citrus or red meat
View 1 RepliesRheumatoid Arthritis :: Normal To Bruise Easily As Part Of Having RA?
I am still in the process of being diagnosed with RA but my doctor is very sure that it is, I've been referred to a rheumatologist. Is it normal to bruise easily as part of having RA? And for the bruises to last longer than normal?
View 4 RepliesKidney Stones :: Stuck In The Lower Part Of Urethra
recently been in hospital with renal colic but have not passed the stone yet it appears that it's stuck in the lower part of the urethra. I'm back at home now with medication. Has anyone else had this problem if so what was the outcome. I'm hoping it's going to pass on its own but no signs as yet .
View 10 RepliesRaynaud's :: Colour Change On The Lower Part Of My Fingers
so I went to my doctor since I've suffered pain since February 2012 following an injury in pe class. At the time it was put down to a not bad sprain, worsened by not using the affected wrist. I finally persuaded my mum we should do something since it hadn't cleared up after all this time. He said its raynauds, wear gloves, you'll be fine, etc etc. however, the pain has only worsened since then, the temperature of my wrist and hand has continued to decrease, the pain spreads towards my elbow/shoulder at times and I'm noticing a definite decrease in ability to use my affected wrist. It is difficult to write, open things, turn pages, and most seriously of all my daily journey on the bus is near impossible due to the pain of holding on to the bar. Is all this a consequence of primary raynaud's or is my doctor wrong?
I'm experiencing some colour change on the lower part of my fingers too, which I know is a definite sign of raynaud's.
Sarcoidosis :: Mri Scan - Found 2 Small Nodules In Lung
I had a Mri scan for back pain, result found 2 small nodules in lung. Seeing specialist in July, I get a little short of breath and a little wheezy at times nothing to alarm myself, but I have terrible fatigue also have red lumps on forehead chin and buttocks. Worried this could be sarcoidosis my father had this sadly died 26 years, I have read different views on this being hereditary, so worried seems ages till July I am female age 55 & a smoker, any thoughts ?
View 32 RepliesHealth Anxiety :: Obsessed With Checking Every Part Of My Body
I have health anxiety and it is literally ruining my life! I am obsessed with checking every part of me to find changes and when I do find something it's intense fear and panic like impending doom. I can't remember the last time I woke up and felt like I wasn't unwell. I am on a counsellor waiting list just don't know what to do in the meantime. Anyone else suffer this bad? Please only genuine sufferers reply as this is embarrassing enough as it is. I have never told anyone about my real problems with fear of being ridiculed.
View 33 RepliesProctosedyl Worked For Treating Piles?
I've just been diagnosed with hemorrhoids. From what I can tell, I've had them for a while. They advised me to change my diet to include a high amount of fibre and absolutely no straining when passing a bowel movement. They also prescribed me proctosedyl for it. However, from the packaging, this just seems to be pain relief or to ease discomfort.
Is this true or am I misreading something? Do I need this to treat my hemorrhoids or will they heal up and go away by themselves if I change my diet?
Molluscum Contagiosum :: Treating With Tea Tree Oil - Gone Red Around Outside
My daughter is seventeen and has Molluscum Contagiosum all over her neck. She also has some on her arms and I fear maybe getting them on her face. This is extremely distressing for a girl of her age. She has had them for about eight months. I have been trying the tea tree oil and giving her extra vitamins. They have gone red around the outside, but I wondered if that was just because I am burning them with the tee tree oil as it smells quite strong. Does anyone have any more information about this terrible condition.
View 1 RepliesHPV Or Herpes :: Small Bumps On The Inside Part Of My Labia Majora?
I am 25 years old, married and 3 months pregnant. In august of this past year I had a Pap smear that came out fine and normal. I then noticed these two small bumps on the inside part of my labia majora. They are not next to each other or in a cluster. When I pull the lab is outwards, it seems they are on the same row as little pores. The two bumps are flat, one is a little darker in color and the other is the color of my skin. They are both flat, do not hurt, soft to touch, but one sometimes gets "swollen" and resembles a skin tag. These have not spread anywhere, my husband does not have any, and two weeks ago I had another normal Pap smear. Is it possible these are HPV?
View 1 RepliesDental Health :: Pain In Upper Right Part Of Jaw - TMJ Or Wisdom Tooth?
I'm a 27 year old male with no serious issues in my medical history. A few weeks ago, I woke up with a pain in the upper right part of my jaw that hurt when I opened my mouth too wide or moved it from side to side. The next day, it seemed to be fine. A couple days later, the pain was back, and has stuck around. It doesn't hurt when my jaw is in a neutral position or even really when I eat. The pain is high in the jaw, kind of by my ear. I THINK it has gotten better over the last couple days; I don't seem to have any pain opening my mouth wide (just the side to side movement, etc), though it's possible that this is just wishful thinking and that maybe I'm just avoiding painful movements.
I don't think I grind my teeth, but I do have anxiety and perhaps clench my jaw sometimes without realizing it? I'm not sure, but I've been thinking of it as a TMJ-related problem. Only recently have I considered that maybe it's a wisdom tooth that needs to be removed. I know the only way to truly figure this out would be to get an in-person diagnosis from a medical professional, but I have very bare-bones insurance and limited funds to cover costs. As I understand TMDs often go away on their own, though, if it seems more like that than a wisdom tooth, I'd just as soon wait and see.
The pain isn't having a concrete impact on my life right now -- I'm eating and speaking without any problems. It's just frustrating and always in the back of my mind. There are some clicking/grinding sounds sometimes when I move my mouth, which leads me to think it is related to the TMJ. I also have heard that the pain relating to a wisdom tooth is pretty intense -- really a "you know it when you have it" kind of thing.