Chronic Fatigue Syndrome :: Numbness In Face, Neck Legs And Around My Wrists
All been having a few new symptoms . numbness in face just one side and neck legs and around my wrists anyone else have these symptoms . also lent on my elbow its really gone sore very red and skin coming off something that has never happened before i used to bruise very easily before but nothing like this . i,ve been trying to find out what sort of help out there for me and not really getting anywhere i was wondering what sort of help others where getting.
View 4 RepliesTingling & Numbness Is A Symptom Of Chronic Fatigue Syndrome?
I was told I had post viral fatigue in 1997 - in 2004 I was diagnosed with Chronic Fatigue Syndrome. I had to give up on my career but made a new one, working part-time hours. I've been lucky enough to scrape by.
This January however, I started to get symptoms new to me. Walking and veering to the one side, tingling in my hands and feet and numbness too. Also a terrible stiffness that affects my walking and my ability to pick things up. The worst new thing is terrible problems swallowing.
I had to give up work completely - I just couldn't do it and I am back to sleeping 14 hours a day.
My GP sent me to a neurologist. After a 13 week wait in pain and discomfort I finally saw neuro 2 days ago.
Her attitude really pissed off. Chronic Fatigue was talked about the whole time. I couldnt feel pin pricks on my face, feet or hand. I had a positive reaction to the Babinski sign (I know about it as I have a friend who is a GP). She told me, it's not MS, it's CFS.
BUT, I am being sent for an MRI, to see a speech therapist for the swallowing problems, a physiotherapist for the stiff legs, a psychologist for my memory problems and I am being put on pregabalin painkillers. (The NHS is great once you are in the system).
What I would like to ask, after years of CFS, I didn't think numbness and tingling were part of CFS symptoms.
How many of you have these types of symptoms?
Cold / Flu :: Numbness In Arms, Legs And Face
Last month i had a very bad bout with the flu. My whole body was paining. It started with my upper legs. Almost like someone gave me charlie horse in my muscles. Then my feet and bottom of my feet started paining. I could not even walk. I wore memory foam slippers on my feet the few times out of bed. My hands had the same painful sensitive sensations as my feet. a few days later my lungs started to hurt and I had something pneumonia. When i started recovering, the pain and numb sensations stayed on the bottom of my feet, my hands legs and arms. Not to mention the weakness that still exist in my limbs. Also, which is confusing and worrying me most now is the numbness on my face and in my mouth, it feels like dental freezing leaving my mouth. It's been at least a month since i recovered from the flu. I have seen my Dr. and have been scheduled for a CT scan. Has anyone had these symptoms before?
View 4 RepliesHypothyroidism :: Head Pressure, Tingling/numbness In Face, Arms And Legs
I was just diagnosed as being hypothyroid, Tsh 10.65, my question is does anyone else experience tingling/numbness in your face, arms and legs and also have head pressure?? I've had some anxiety and I think maybe its the cause any thoughts?
View 3 RepliesCervical Spondylosis :: Neck Pain, Numbness In Arms / Legs, Dizziness, Vision Problems
I was a raving hypochondriac, have suffered cs for 5 years,had mr scans,ct scans,myelograms and lumbar punctures,see my specialist regularly and just given different medication,vi suffer neck pain, headaches,numbness in arms and hands,but also have severe numbness in legs and feet,my hands and feet are permanently icy while the rest of my body burns up,feel permanently dizzy and nauseous,i have vision problems and incontinence problems,for past few months i have got steadily worse and not able to walk more than few yards,and cant get outdoors without aid of wheelchair,as pain in my joints and muscles is so bad,the nerves that are trapped have moved down my spine which is causing the leg pain,i have seen 3 specialists and a professor of m.s,i have meltdowns every so often as i always have been so active and cs can just bring you to your knees,i find that the specialists i see seem to think i am neurotic,i asked him to have my pain for a week and then come back and tell me how he feels...i feel people just don't understand how debilitating cs is and because outwardly you look ok and you do your hair and put some slap on your face,but walk a mile in my shoes when at 3am im walking the floor counting the hours till can have another pain killer,my last visit to my specialist i was given morphine patches,but suffering from ibs and gall stones was warned by my doctor that they would have adverse effects and they were so addictive.
View 1 RepliesChronic Fatigue Syndrome :: Genetic Testing To Rule Out Causes Of Fatigue?
I am just wondering whether anyone has had genetic testing to rule out causes of fatigue? Myself and my brother both suffer with extreme tiredness and I'm wondering if it's worth asking for it to be investigated down the genetic route.
View 9 RepliesChronic Fatigue Syndrome :: POTS With Sjogren's Syndrome
I have Primary Sjogren's Syndrome but was born Hypermobile. It was only after my present Rheumatologist diagnosed that I have scoliosis that I started to research. I found the Beighton Scale and the Brighton criteria which I match completely. I explained my research to my consultant and she agrees. However while she and another consultant both agree I do have POTS so far I don't have an appointment to see anyone to help me. I have had ECGS and a bubble ECG but they have been taken while lying down. Now the POTS I really noticed post the birth of my last son 29 years ago is getting much worse, can anyone advise me as it has taken decades to get this far, I don't feel time is on my side
View 4 RepliesChronic Fatigue Syndrome Or Fibromyalgia?
I'm a thirteen year old girl with an unhelpful doctor who literally doesn't want anything to do with me because I'm 'hard work' to diagnose. My family believes it's chronic fatigue syndrome, fibromyalgia or both. So that's the home treatment path I'm taking. My symptoms have been going for 6 months now and they are diarrhea, nausea, joint aches, headaches, fatigue, confusion, dizziness brain fog, tenderness, weakness and muscle pain. I've been tested for crohn's, ulcerative colitis, hypothyroidism, hyperthyroidism, parasites, dysbiosis, virus, infections and celiac disease. I also have eczema, restless legs, irritable bowel, anxiety and gastroesophageal reflux disease. I'm not under any stress at the moment.
View 3 RepliesChronic Fatigue Syndrome :: Holiday With ME/CFS
Just wondered how other people cope with the family holiday. Being out of your normal routines and in a new place perhaps. What do you put in place to help you cope?
Being at home knackered is one thing but being in a caravan, apartment or hotel etc. is much different. Having to be mobile and do holiday stuff with the kids, can and is an overload for my system. Do you avoid going away because of things like this or is it just me?
The last 10-day holiday we took has taken me 4 months to get over! (Moreover, I was still feeling rough after 4 months…) I know I am lucky to be able to grab a family holiday, but I do wonder at times, if it’s more harm than good taking a holiday with ME/CFS.
Chronic Fatigue Syndrome Is A Disability?
I am currently applying for jobs, but I am unsure answer yes or no to the do you have a disability? question. I do have CFS, which does impact my life, although I am able to work. What do you think?
Chronic Fatigue Syndrome :: Fast Heartbeat
Went to see my gp yesterday and told her about my heart beat readings I've been having recently of 115 just to walk downstairs, 124 to walk upstairs, 135 to walk downstairs on a bad day. My heart rate goes up from 74 to 105 when laying down to standing. She took my heart rate as a sat there and it was 98. She's now sending me for an ECG. She thinks it might be to do with the sack or lining around the heart? She told me the official names but I was silly and didn't get her to write it down. Now I can't remember what she called. She said she has seen cases before.
View 3 RepliesChronic Fatigue Syndrome :: Constantly Thirsty?
I was wondering if anyone else diagnosed with ME is constantly thirsty? I've had all the blood tests (and have been diagnosed with ME), so diabetes is omitted. It seems to be worse on an evening and I'm always topping up my fluids with water and herbal teas-so plenty hydrated! It's not my worse symptom, but just wondering if it was common?
View 28 RepliesChronic Fatigue Syndrome :: Unexplained Bruising?
Just wondering whether people get any unexplained bruising or get easily bruised? I get them quite often and it's worrying me. My rheumatologist said that it can happen as our body is over sensitive.
View 12 RepliesChronic Fatigue Syndrome :: Exhausted Following Little Exercise
I am a 32 year old female. My question relates to Exercise Intolerance. I am very unfit and am wanting to get fit for the first time in my life but whenever I start even an easy exercise program, I get really wiped out. I usually feel okay after my "workout" (barely a plausible term) session, but feel extremely fatigued the next day. Which interrupts my program. This can be very irregular tho, sometimes I can do quite a bit and feel fine the next day. I had bulimia, starting at age 17 for 10 years and am wondering if this is still the effects on my body. I have no other side effects from the bulimia. Apart from that I have suffered Chronic Fatigue Syndrome, but these symptoms disappear if I don't exercise. I have had my heart and lungs checked out, blood tests etc, all come back fine. Can someone please, please shed some light as to why I get so exhausted following even a small amount of exercise. It doesnt seem to matter be it cardio or weights.
View 1 RepliesCannabis :: Marijuana With Chronic Fatigue Syndrome
Anyone smoke with CFS? I dislike drinking a ton so I was wondering if anyone smokes marijuana? I've seen online it's good for it and it doesn't make it worse... Anyone ?
View 13 RepliesChronic Fatigue Syndrome With Vitamin D Deficiency?
Hi everyone, I was diagnosed with CFS/ME a year ago and since having surgery last November it has got so bad that I am unable to return to my job I am only 22 and it's really making me upset.
I have had all the blood tests available and all came back negative apart from today my doctor called and said I have a vitamin D deficiency and has given me 3 months worth of medication. Has anyone else with CFS/ME got a vitamin D deficiency? Also did supplements help your CFS? Or even cure it? How long did it take for you to feel better?
Chronic Fatigue Syndrome :: Dizzy Spells
I had stuff to do today that I could not leave. I have since had several dizzy spells. I get these when I do the school run. Has anyone fully passed out?
View 9 RepliesChronic Fatigue Syndrome :: No Injections Which Contain Adrenaline
As we were chatting about teeth earlier on the spectacles thread I thought I would start one specifically about ME and teeth.
I think I have mentioned this before, but when I saw my dentist a while ago and told him that I had been diagnosed with ME he informed me that if ever I needed to have a local anaesthetic injection he would give me one which doesn't contain adrenaline ....... because anything with adrenaline is a complete no no for ME sufferers.
One of the theories about the cause of ME as some of us know, is that for some reason we are unable to 'switch' off adrenaline as a 'normal' person would and as a result we just drain all our energy, and the only way to regain it is by resting. I am convinced that there has to be an awful lot of truth in this theory.
Several months before I was diagnosed with ME I had extensive reconstructive work done on my upper teeth (my generation didn't have fluoride toothpaste and many of us subsequently have soft teeth), and I often wonder if the dozen or so adrenaline injections triggered something. Also, I had a lot of amalgam fillings removed, and I wonder if the lead from these was released into my system during the drilling.
Who knows - but hopefully one day we will find out what causes this wretched illness :?
So folks ..... no injections which contain adrenaline.
Chronic Fatigue Syndrome :: Weight Gain
I am currently waiting to see CFS specialist hopefully in the next two weeks. I am b12 deficiency and also have underactive thyroid. Since the end of February I have gained around 1 stone. I have an extremely fussy diet as I don't eat Red Meat, Fish or Pasta. My diet is mainly Vegetables, Chicken and Potatoes but have gained weight like nothing on earth. Before all this CFS i was doing exercise classes twice a week but now can't get out of bed most of the time. Anybody else have similar experiences? I still go for a country walk at the weekends when I feel up to it but apart from that I'm at a loss at how to shift the weight. My GP has been monitoring it but he said there is nothing we can do at the moment.
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