Perthes Disease Never Goes Away
I have had perthes disease since i was 6 i was on the bed rest i am now 24 years old and i still have it.
i also have arthritis too in my hip and i also need a hip replacement now all because of perthes it has made my live very hard.
Perthes Disease :: My Experience
I am 39 years old and was diagnosed with Perthes when I was 5. My treatment started with going into hospital and having casts put on my legs so that I could have a set of splints made which kept my legs apart with a bar in the middle, I wore these for 22 hours of the day for about 18 months, I think (it was a long time ago). Little bit awkward for walking but great if you pivot around on your good leg and get your older brother in the shins with the bar! The splints didn't work so they tried traction and that didn't work so I ended up having five ops from about the age of 7 through to the last one at 19. I must admit that I do get a lot of pain with it (by the indication given in the information on this site, I think my case was quite bad)and movement restriction, but I have worked my lifestyle around it and there are things you can do if you don't want to go for more treatment. I have decided that I'm not, so I do yoga which keeps my joints supple and helps me sleep, hot baths with lavender essential oil is very good also, keep your legs warm and don't let your feet get cold because I find that also causes more pain. I've had me fill of hospitals and ops, so I'm going to do my thing and let my hip(s) get on with theirs. My regards and best wishes to my fellow sufferers. Don't let other folk tell you what they think you should do (when they haven't got perthes) deal with it anyway you want to, after all it is your pain.
View 1 RepliesPerthes Disease - Pain Again After Distractor On Hip?
My son was treated with a distractor on his hip 4 years ago now and it worked great .... unfortunately now he is starting back up with pain, in his hip - is this normal.....
Perthes Disease :: Came Back - Looks Like My Right Leg Is Smaller Than The Other
My hip area is aching at it looks like my right leg is smaller than the other
View 2 RepliesTotal Hip Replacement Following Perthes Disease
I am ten years post a Perthes-related total hip replacement! It really has been a godsend for me.
Briefly- I had Perthes diagnosed aged 8, but they caught it late so hip ball was pretty badly misshapen- cue osteotomy, hip spica etc- followed by 2 more osteotomies before the age of 13. By 15 I'd developed secondary osteoarthritis and the joint deteriorated rapidly (v v painful) and pretty much as soon as I stopped growing my consultant opted for a full hip replacement (I was 19). I had a custom made joint designed after a number of scans, partly due to thickening of the femur from my previous ops, and it is a ceramic plastic composite (ceramic ball onto plastic cup I think).
The initial 3 months post op were fairly hard going, you are not able to move beyond 90 degrees abduction so can only sit of high seats- and need a special raised loo seat! I was in a student house at the time so it was a bit embarrassing but I was kitted out by the Red Cross who lent me all the stuff needed for those 3 months- my housemates got so used to the special loo they said they missed it once it was gone! :oops: But after lots of physio I can honestly say that it made the world of difference...within days of the op my pain levels were far below what they'd been, I was off crutches within 6 weeks, and cycling a bike again at 3 months (after not being able to cycle since 13!!)- and 6 months later I spent 3 months SCUBA diving in Malaysia!
At first I had yearly check-ups (x-rays), then every 2 years, until 2 years ago when I was discharged (at least temporarily) from my consultants care! The hip is still not showing any sign of wear- and I am active- walk a lot, have had 2 children with the new hip etc.- so although the initial prospect had been of it lasting only 10-15 years we're now hoping for 20. Anyway crossing each bridge as we come to it. The pain in my hip is 99% gone, but I do suffer a touch with my back and my "good" leg's knee- but both have had to bear the brunt of a lot as I grew up so it's inevitable really... And I see a good (private admittedly) physio fairly regularly to keep on to of things, and try to swim whenever possible...(but not breast-stroke- that's a big no-no for those with hip replacements!). I do still have a leg length discrepancy (2cm) which is partly what causes my back/knee issues.
Perthes Disease - Johnny Jump-Up
A Johnny Jump-Up is a swing /jumper that hangs from a door way that allows babies to jump.
If you were diagnosed with Perthes Disease or are a parent, did you or your baby use a Johnny Jump-Up?
Perthes Disease :: Suitable And Correct Treatment?
My son who is two years old he, after the X-ray and MRI examination it was found that he is suffering from perthes disease .
I would like to ask for the suitable and correct treatment for this rare medical case which usually occur in four years old.
Perthes Disease :: They Put Me In Steel & Leather Frame
I was diagnosed with perthes disease when i was 9 years old in 1957 after 10 months of going to gp i was in agony for all that time until he decided to send me for an xray i then had to wait to see specialist who then said i would have to go into hospital after a few weeks i had to go and be measured for a frame when i was admitted they put me on this frame which was made in the shape of your body they put a long strip of plaster with tape to tie your feet to the frame was made of steel & leather then they bandaged both legs up one on either side of bed then they put these metal strips over top part of body then they put a leather strap on my left hip so as not move it was agony for first week & that's how i stayed for the next year
View 1 RepliesDiagnosed With Perthes Disease At 18 - No Treatment For Next 10-15 Years
My doctors tell me I developed the problem when I was about 8 but was never diagnosed because I didn't complain of any pain. They said my case is very rare.
As I am now fully grown I can no longer be treated for the disease other than by hip replacement, although they said I will have to wait 10 - 15 years until the pain becomes unbearable as I am too young for the surgery at the moment. Until then, I basically have to put up with it an have simply been told to not wear high heels and to not put on any weight!
My left hip is left flattened and shortened and my leg in almost an inch shorter than my right. It constantly feels uncomfortable and sometimes extremely painful, especially when walking long distances, laying on my left side, sitting for too long (eg. during long car journeys) and I end up feeling very frustrated!
I have tried physiotherapy, pain killers, a digital pain reliever and swimming to help the pain - all with very little helpful effect.
Perthes' Disease :: Diagnosis At 50 - Physiotherapy Rather Hip Replacement?
After recent x-rays for chronic hip pain, (as well as frequent knee and lower back pain),, my GP diagnosed me today with Perthes' Disease. Several years ago, after a fall in a martial arts class that hurt my back. My chiropractor had x-rays performed, which showed that I had, indeed, bent my tail bone at a right angle... as well as revealing my malformed hip joint for the first time.
I am a 50 y.o. female. For a variety of reasons, my GP is opting for the physiotherapy route for treatment/management, rather than hip replacement surgery. My femoral head is flattened (the X-ray Technician even exclaimed, "Oh! I've never seen one shaped like THAT before!", and even showed me the x-ray film.
I have been doing some further research about the disease, which mentioned a link with hypothyroidism, delayed bone growth - I was diagnosed with hypothyroidism when I was about 11/12 y.o., at which time the specialist told my mum that I had the bone structure of a 9 y.o.
I used to be quite active, and used to run, practised martial arts, bicycling... Since the pain worsened and is now pretty much a daily thing, I have eliminated those activities. I do walk fairly frequently now; but, I often wind up in pain that keeps me awake at night. Now, I am curious to know how successful and helpful physiotherapy is likely to be at my age, and what I can, reasonably expect. At what stage, will hip replacement be the "best" option?
Women :: Preeclampsia Related To Perthes Disease?
I had Perthes disease diagnosed aged 8, it was pretty bad and to cut a long story short I had a total hip replacement aged 19 (ten years ago!).
Since then things on the hip front have been good
I fell pregnant with my first child when I was 25, and sadly my pregnancy was badly affected by pre-eclampsia, resulting in my son being born at 30 weeks (he's fine now).
I've been doing some research about both Perthes and Pre-eclampsia, separately, and come across some articles that suggest both could be caused by blood clotting probs (thrombophilia/factor V Leiden etc.).
I just wondered if any ladies who suffered with Perthes as a child had any incidence of preeclampsia during pregnancy or pregnancy-induced-hypertension?
Legg Calve Perthes' Disease :: Terrible Pain In Knee And Hip
My son who is nearly 8yrs old has recently been diagnosed with perthes.
After a few hospital visits for pain firstly in his knee and then in his hip, being in terrible pain and being unable to walk or put an weight on his leg. we being told he has perthes.
We were advised to return to the hospital in 1 month ( next week) for his hip to be re x-rayed (his previous x ray was normal) and to look up the disease on the internet. Hence how I found this site and others.
My son is not currently in any pain unless he does too much where he then says it aches. his leg is very stiff and has no movement and his foot is turned in.
My immediate fear is will pain (which was horrific to witness!) return or is it possible that the pain is over?
Also has anyone been able to obtain an information booklet on the disease that is appropriate for his age?
Legg Calve Perthes' Disease :: Is The Knee Swelling Normal?
My 8 year old son was diagnosed with Perthes last July and we were advised by his doctor to minimise weight bearing so we did the usual things - crutches, Wheelchair and such!
The perthes was caught at the very first stage and the diagnosis at his last visit was good and that my son should only use one crutch now!
However he is in alot more pain during the day and at night he wakes up in pain.
I have been refereed to Stanmore now but my question is is the pain due to the weight bearing and should all his pain be in his knee as his knee is swollen still from first diagnosis.
Is the knee swelling normal!
And do perthes sufferers usually have problems with wetting?
Legg Calve Perthes' Disease :: LCPD Since 27 Years, Now Having Pains
Diagnosed LCPD when i am 11 yrs old now i am 36. now i am having pains, is there any treatment for this ....
View 43 RepliesLegg Calve Perthes' Disease :: Lower Back Pain Years After
I was diagnosed very early around 5, so I just had to wear a brace with yearly trips to the Shriners hospital for ortho checkups, the only issue is my right leg is slightly shorter and have had to wear a lift in my shoe. My question is, has anyone had lower back issues possibly due to the Lcpd? I've had lower back issues for several years, I'm 36 is it possibly just older age.
View 19 RepliesLegg Calve Perthes' Disease :: Running Hurt Me Or Make My Condition Worse?
I was diagnosed at age 9 and had surgeries at ages 9,11, and 15. I quit running because i would get to about a mile and it would catch with pain. I love running though and am trying to lose weight so i am curious if running would worsen my condition?
View 2 RepliesFrozen Shoulder :: Bilateral (left And Right)
I have bilateral frozen shoulder - idiopathic. Several professionals have stated my left is "severely affected". Right is manageable and seems to be on recovery but full ROM is not there yet. Ortho is considering MUA with a scope to clip any scar tissue on the left. I'm wondering what is the true pain level of this surgery? How soon after were you to "functioning"? I have 3 kids (9, 6 and 3).
View 11 RepliesBilateral TMJ Joint Replacement For 24 Years Old
My 24 year old son was diagnosed with TMJ Arthritis and the surgeon wants to do a bilateral TMJ joint replacement. That seems extreme to me. I would like to know if anyone has had a jaw joint replacement and if you have had jaw problems post surgery.
View 13 RepliesKnee :: Recovery After Bilateral TKR 6 Weeks Ago
i thought I would share info. First 2-3 weeks, barely sleep. Pains as opposed
to aches, lost 15 lbs and my taste for food. No appetite. And exhausted.
approaching 6 weeks Tuesday and not as tired, doing constant PT in office and home.. Slowly getting appetite back, sleep somewhat better. Pain has migrated to itching and aches. Let's not forget stiffness in AM or after idle.
I can walk it off a bit, but never really without that dull ache feeling. I have good ROM. Stretching helps. I am 71, but in great shape. Two knees is not for the faint heart or out of shape. Glad to answer any questions. The recovery is slow, but one can see it come, "ever so slowly". I am physically ahead, but one must let all the tissue and nerves recover..reading other experiences is a bit of a comfort. Not alone.