Bowel Disorder :: Budesonide For Ulcerative Colitis
I was diagnosed with moderate-severe ulcerative colitis this week and have been given Budesonide, which I take 3x, to calm my first real (and painful) flare. However, I don't feel like it's working fast enough, as my bowel movements are still as frequent and bloody after my fourth dose.
I put a call into my doctor to discuss dosage, but I was wondering if this medication takes longer because of its slower release than pred? I am new to all of this and would appreciate insight from those that have been there.
IBS And Ulcerative Colitis Together - Symptoms? Treatment?
Anyone on here been diagnosed with ibs as well as ulcerative colitis? I have been getting daily abdo pains and doc thinks I have Ibs alongside
uc which hopefully is in remission! Sometimes food relieves pain and sometimes a bm stops the pain but I cannot pin down any reason for the pains. I have been prescribed Mebeverine 135 but so far hasn't stopped pains. Would be pleased to hear from anyone else with IBS and UC and what their symptoms/ treatment are?
Endometriosis And The Bowel Symptoms?
I'm wondering what the symptoms are when endo attaches to the bowel?
View 4 RepliesUlcerative Colitis :: Smoking - Quick Fix To Relieve Symptoms
Stopped smoking last march when feeling good was ok using a vapour until november starting to flare december and first 2 weeks of jan i was ill so i started up again every time i quit flares are much worse, keep reading posts about how nicotine helps its the carbon ect, but im thinking no its not.
if uc is caused by the immune system attacking the colon smoking causes a weaker suppressed immune system this giving relief from uc symptoms not advising anyone just to start smoking but it was my quick fix to relieve symptoms i take mesalamine but see this as just putting a coating over it.
Endometriosis? Primarily GI And Bowel Symptoms
I saw my GYN today, and he thinks I may have endo.
Basically, at the same time of the month, every month (the week before my period), I experience severe nausea, and sometimes vomiting and stomach cramps. I've actually thought it was food poisoning, except that it literally occurs a week before my period starts. The first episode I remember was last April (the nausea was so bad, that my husband had to come pick me up from work), and again with really bad episodes in November and January (in January, the stomach cramps were so painful, I ended up in urgent care). With the last episode, the nausea persisted through the duration of my period.
But that being said, I don't feel like I have typical period endo symptoms. Cramps hurt, but are manageable. I tend to spot a few days before I start full flow, and I have heavy flow for 3-4 days, but then my period's gone after 7-8 days. Sex isn't painful. I feel random lower abdominal discomforts here and there (some twinges, or crampy feeling mid-cycle), but nothing that I feel is remarkable.
My GYN did an ultrasound today, and everything looked normal (no cysts or anything). He said, though, that given the timing and cyclical nature of my symptoms, endo is a possibility. My question is, has anyone else experienced purely GI symptoms? If so, what did you do to alleviate them? Did you have any other type of diagnostic test (lap, colonoscopy, endoscopy)?
Ulcerative Colitis :: Salofalk Enemas Seem To Make Symptoms Worse
My son had a colonoscopy and told may have Colitis..he was prescribed a month's supply of Salofalk enemas and took first one last night...but today he has had to poop about 7 times with some blood ...the frequency of the pooping is now more than it was before using the Salofalk and I'm wondering has anyone else experienced this...he is only 18 and afraid to leave the house..It is not diarrhea but it's just he needs to go so often...I am afraid he will loose a lot of weight...If this is normal using this product I can relax...can someone please reassure me
View 9 RepliesUlcerative Colitis And Anxiety
I have UC and have had this for the last three years. At the moment it is quite settled however my anxiety and my social fear is taking over my life. I have a fear of not making it to the loo on time when I am out and am constantly thinking of where the nearest toilet is, and although I don’t require it I work myself up so much that I do. This mostly happens when I am stuck in traffic or if the train just randomly stops for a while- as I then get scared that I need the toilet. This brings me very down as my life has changed as I am always fearful and feel low and depressed at time.
Any help or advice will truly be appreciated please as I am longing to have a normal life with my family and friends without having a fear of needing the toilet.
Many thanks in advance.
Ulcerative Colitis Bad Flare Up
I am a Diabetic and have been for over 10 years. Since then I have also been diagnosed with Ulcerative colitis, cervical Osteoarthritis, and recently Diverticulosis. I had a fusion and discectomy on C5/C6 August 2014. Since the operation I have had such a bad flare up and I have trouble controlling it. I am now on steroids and hopefully this will take some control. And now I have been told I have high Potassium levels, not sure why this is, could this be because of infection?
View 3 RepliesUlcerative Colitis - Apriso - How Much?
21 year old female diagnosed with left sided UC after 2 colonoscopies over a 6 month period.
I went from 3 to 4 capsules of Apriso daily, which isn't working, to now having just done my 4th Remicade treatment. I still have diarrhea all the time, and occasionally with blood in the stool. I spoke to the Gastro who has said our next steps might be to increase the Apriso (I have one friend who takes 8 capsules daily!), or to try stopping the Apriso all together and seeing how I do. I have tried to get my stress under control-I am a full time student that travels between two campuses and work about 30 hours a week, and even dumped a boyfriend because he added too much stress to my life, lol. I have found stress makes me flare up quite bad.
Is anyone else on Apriso? How much were you prescribed?
Thanks for anyone's experience and wisdom you can share. My Mom and I are about at our wits end trying to find a balance for my life that lets me heal and still lead a somewhat normal life.
Ulcerative Colitis :: Exercise To Help Flare Ups ?
I was just wondering if anyone has found any particular types of exercise that help flare ups? Or help to ease the pain... I read swimming is good but is there anything I could do at home?
View 1 RepliesUlcerative Colitis :: Mild Flare Up
Evening all I was told I had colitis back in April
Was given mes 1g 4 to be taken daily.
They said I had not mild colitis but couldn't confirm
If it was colitis or crohn's. Anyway I do get blood mucus tummy pain when I go toilet. But no pain
Which I am thankful of. I am have a flare now which I meds are not helping they can't seem to kick it. So I am awaiting steroids.
The thing is my tummy makes some loud rimming noises. Is this normal with colitis. Little bit peed off
That they can't say it's colitis or crohn's.
Ulcerative Colitis :: Coming Off Prednisolone
I have been taking prednisolone since August following a severe UC flare up (my first!!) which landed me in hospital for a week. I was on a slowish taper (starting on 40 mg per day and reducing by 5mg every fortnight). I am due to take my last 5mg tablet tomorrow (I am also on 8×pentasa a day at the moment) and am worried about withdrawal/side effects. Anyone experienced any from gradually stopping the steroids?
View 2 RepliesAloe Vera Gel For Ulcerative Colitis?
I have recently started working in a salon and we sell the Aloe Vera range including a gel which is supposedly good for colitis? Has anyone tried it and seen improvement? I am on mesalamine oral tablets and mesalazine enemas - only been diagnosed a few weeks.
View 1 RepliesUlcerative Colitis :: Constipated On Azathioprine
I have left sided colitis and have been on azathioprine 75mg x 2 daily and two 5mg prednisolone tablets. Have been on the full dosage of azathioprine for four weeks and now suffer from constant constipation to the point where I have to take laxatives and eat prunes. Has anybody else had this problem? Have purchased a tub of benefiber but unsure as to whether I should use it.
View 10 RepliesUlcerative Colitis :: Frequency Of Suppositories
I've been diagnosed with ulcerative colitis yesterday and was given 30 x 500 mg suppositories but the consultant said I would have my next appointment in 3 months time.I have to use one per night.Do I use them just for 30 days or should I ask my doctor for some more after 30 days ? It's all very new to me.
View 5 RepliesUlcerative Colitis :: Smoking Is Beneficial
I was first diagnosed with UC in my early 20's, no real problems until I gave up smoking when I found out I was pregnant at 33 years. Major problems throughout pregnancy, but symptoms stopped almost immediately when I started smoking again after the birth. 7 years later I decided I wanted to give up smoking and did so successfully - until the UC returned with a vengeance - my consultant was at his wits end what to do until I came right out and asked him - would my symptoms stop if I start smoking again. He knew I had done some research into the link between smoking and UC and indeed confirmed that although he could not advise me to start smoking again, there was documented evidence to support that smoking in patients with UC can be beneficial.
I AM IN NO WAY ADVOCATING THAT ANYONE START SMOKING
I want to know if anyone has any experience of this as I feel someone should be doing more research into what it is exactly in cigarettes that is helping with UC, as I have previously tried patches, herbal cigs, etc etc and nothing worked. I hate being a smoker but I would rather suffer the consequences of smoking at a later date than suffer the horror that I endured when I was not in remission.
Ulcerative Colitis And Pregnancy - Medicine?
I am 25 yrs old and I was diagnosed with UC when I was 16. I am currently on 2000 mg Pentasa twice daily and 75 mg Imuran ( azathioprine) once daily. I haven't had a flare up in over a year. So all is good only now my partner and I would like to try for a baby.
I have discussed this with my consultant and she advised not to come off any medication as a flare up would be worse for the baby than the meds.
The only thing is, I have been looking into the effects of Imuran and it gives awful side effects including miscarriage and fetal deformities.
I am just looking to see if anyone has any info on what I should do. And if any women out there have taken this medication through pregnancy.
Ulcerative Colitis :: Remicade - Any Improvement?
Just wondering how long it took people to get any kind of improvement in their colitis symptoms with renicade. I had my first loading dose today and the dr said it would take some time to see any kind of result.
Also did you experience any itching or headaches after? About two hours after i started expiencing itchy eyes and started to get a headache, now 8 hrs after the infusion finished my hands, arms and face are itchy. My eyes are still itchy and my headache is still there.
I had an allergic reaction to 6mp but it was far more intense itching than this.
Vedolizumab For Ulcerative Colitis - Feedback?
I have recently been diagnosed with Ulcerative Colitis after a bad flare up that put me into hospital for a a few weeks and then off work for a couple of months. Much better now, but I am knocked out on cyclosporine and will be taking azathioprine for the next few years, which in itself can be unpleasant and has associated risks/lifestyle changes such as avoiding sunshine because of the increased risk of skin cancer.
Does anyone know about this new drug coming forward called Vedolizumab? Apparently it is much easier going on the system and doesn't act a general immunosuppressant but rather targets the specific response that causes Ulcerative Colitis and Crohn's. I can see it'll take time to get accepted into the UK because of the NICE (ironic name) bureaucracy, but what are the stories coming out of the US about this drug?
I am on a LOT of medication and whilst most will taper off in the next couple of months, I could do with a one hit drug for UC and I have been tole Vedolizumab might just be ut.