Multiple Sclerosis :: Vitamin D Or MS Or What?
It all started with the feeling of hot water being poured on my right foot. Started out slowly, then became very frequent and has slowly gotten better - now I only feel a sensation of "heat" pressing on my right foot occasionally. The worst of it lasted nearly 8 months. During that time I also had a worsening of many other symptoms such as: fatigue, horrible tremors, dizziness, nausea (from the dizziness), brain fog, chronic headaches/migraines, weakness in my entire right side, thighs that twitch and "pop" when I get warm, severe muscle cramping, vision changes also when I am warm, and urinary frequency problems. I say worsening because I have had some of these symptoms for years and just blew them off. In fact, I had a period of time about 20 years ago when I believe I was having something like the "ms hug" (really sever and unexplained pain in my ribs), as well as a hot feeling on half of my face, and my neurologist at that time said "you probably have some autoimmune disease that will show up later in life". I've had chronic daily headache and migraines for more than 20 years, and an essential tremor for about 10 years that has worsened lately. I also have an unrelated autoimmune disease, which I have been told makes it more likely that I have another (but which one?!). MS was suspected so...
I've been seeing a neurologist (and a PCP and a rheumatologist) for these symptoms for a while now and feel like I've had every test under the sun. I've had a normal cbc, sed rate, hemoglobin, basic metabolic panel, tsh, b12, all kinds of vitamin and mineral levels, folate, lyme test, MRI of brain and lumbar spine, MRI of brain, and an EMG. I have not had a c-spine MRI and wondering if there is a reason it was not included in these tests. So far the only thing that has come back was a positive ANA (which I believe is from my other autoimmune thing) and a low vitamin D (23), which fell from a level of 58 in under a year. I've been supplementing for more than 4 months. My neuro did not think that ALL of my symptoms could be from the D. Some, perhaps, but not all. Why does he think this, I don't know!
I recently finished a taper of prednisone and feel like the "fog" has lifted, like my brain is working again - hooray. My main symptoms now seem to be fatigue (it's insane), urinary problems, and some newer problems with my left foot (not the foot I was originally having problems with) - where it will cramp up for days and days (two and a half weeks one time), just like a never ending cramp. When it's not cramping I get feelings of heat, or sometimes just a vibrating feeling. The cramping can be very painful, the "hot" feelings are just strange. I've also now started having problems with jumping/twitching muscles in my left hand and arm (different than my normal tremor). I continue to have some right-side weakness.
So I'm wondering, do these symptoms sound as though they could all be because of the vitamin d? I've got a month until I see the doctor again, and he has been trying to push some meds on me, but I wouldn't want to start something if it's all because of the D. Since supplementing, I have had some improvements in my cognitive symptoms, but not much else.
Lastly, my neuro said he may send me to an MS specialist for a second opinion if I am still having problems next month... but if my MRIs are all clean, then there surely must be a more likely explanation, right? I just don't know why he is so sure that the low d couldn't be causing everything. He said that it was very unlikely because my levels had previously been ok and the severity of my symptoms would more match someone who had been very deficient for a much longer time. Does that sound logical? Would an MS specialist be able to tell me anything new?
Vitamin B12 And Vitamin D Deficiency Experienced Nocturnal Anxiety?
I was diagnosed with with B12 and Vitamin D deficiency. Both levels quite low. I have been taking my Vitamin B12 shots for three weeks now. Also I am on supplements for Vitamin D 60000 IU once a week. Most of my symptoms like tingling numbness and headache have gone. But since a few days i have been experiencing this weird feeling in my chest and entire body, the kinds when we are nervous, with palpitation while sleeping. I wake up and sit for sometime and then I seem to be fine. However, it happens again when i am about fall asleep. My GP said its anxiety and prescribed clonazepam. It did help for three days. But yesterday I tried sleeping without taking clonazepam and the same feeling of anxiety and palpitation came back. Is it a part of the vitamin D recovery process? I don't want to take clonazepam regularly. Any suggestions?
View 1 RepliesVitamin D Deficiency - Below 30
Hi I have recently been diagnosed with vitamin D deficiency after years of pain and tiredness. I have quite a long history but have had surgery twice on my right foot. The first time was a straightforward bunion op and the second one I am now wondering if was caused by Vit D Deficiency as I was in so much pain after first op I needed the 2/3/4 metatarsals cuttings and replacing into different positions.
I also have Carpel Tunnel in right hand and been told I need surgery on it due to muscle waste, inflamed tendons and slight loss of sensation.
There isn't a part of my body that doesn't hurt and I am a 36 year old female. I am self employed and a mum (which can be very challenging with all the pain and tiredness at times!).
I have been prescribed pre d3 20,000 iu 3 times a week.
It turns out that I had a blood test in 2011 that showed I was low on vit d then so I have spent the past week battling between my GP and hospital to try get the levels and find out who did the original test and find out why nothing was done years ago for me. I am starting to feel fobbed off as no one is giving me a clear answer. The hospital won't give me the answers and told me they have to be faxed to GP which I asked for and after waiting days for this and chasing up twice the GP rang today to tell me they have recent blood test result which showed vit D below 30 if that makes sense to anyone?
They weren't sent the 2011 results so have had to chase up again!
I am concerned after having pain for years that this may have done damage. How long does it take to see a difference on that dosage?
My main pains are in lower right back, back right rib, hips, feet, hands, neck.
Vitamin D Deficiency Can Cause Depression
I know vitamin d deficiency can cause depression but can it affect anxiety. my doctor put me on vitamin d and i've noticed a drop in my anxiety. i am taking it once a week and forgot to take it yesterday. today i noticed my anxiety had increased. could it be related?
View 3 RepliesMinerals :: Causes Of Vitamin B12 Deficiency?
What are the causes of vitamin B12 Deficiency?
View 3 RepliesVitamin D Deficiency Cause Neuropathy?
In May I was told I had a vitamin d deficiency. My level was 11. Right before i was told about my low d i had burning pain throughout both of my thighs. If anything touched my thighs it felt like bees were stinging me. I went to the neurologist because I was also getting numbness in my arms. He told me i had mp or another name for it is lcpn from wearing tight pants. I bought new pants and waiting six weeks. Saw him again and now he thinks it's because my d levels were so low. D is up to 50 s now so why am i still in pain. I had an emg done on my legs and it was normal. Emg on arms showed mild carpal tunnel. I was tested for hiv 5 months after any exposure results were negative. He tested me for a bunch of other stuff all was negative. Could all of this be vit d
View 2 RepliesPossible Damages Due To Vitamin D Deficiency?
I wanted to ask about vitamin d deficiency and possible side effects of it .
I am a 25 year old male , and my vitamin d level was very low (7ng/ml)
compared to the one I tested a year and a half ago that was 25 ng/ml.
The problem is that I had very little or even no sun exposure the past year and half because of medications I was taking for my acne including accutane , I wanted to test my levels six month ago but my doctor basically said that there was nothing to worry about , now that I know that my vitamin d levels were this low , I want to find out what is the possible damage that was caused by a year and a half of deficiency ?
and should I urge my doctor for more tests like calcium levels or bone density?
I'm just really worried that I've done damage to myself
of course now I'm taking supplements and I can also go back in the sun so I hope my vitamin d level will become normal , but it's very important for me to know if I need to have more tests done or what kind of damage may have been caused ?
Pregnancy :: Vitamin B12 Deficiency?
my wife is 13 weeks pregnant. And her B12 levels are 81 and Ferritin is 31.2. kindly Suggest that is it ok or any treatment will be need to be taken for it as Haemoglobin is 12.2
View 1 RepliesMultiple Sclerosis :: The Possibility Of MS
Hello everyone,
Back in March of this year I ended up heading to the emergency room for this strange numbness feeling that began in my hands and feet and then travelled throughout the rest of my body; it lasted about five or six days and then went away completely. I was in the hospital for four days and while I was there I had a CT, lumbar puncture, and an MRI of my brain, all of which were normal. I ended up with a diagnosis of 'post-viral acroparasthesia' and was told that I would be fine.
However, this numbness came back again a couple weeks later. I went back to the emergency room and they said that it wasn't that out of the ordinary for this happen again but gave me a referral to a neurologist who then ordered three more tests: 1) peripheral nerves, 2) evoked potentials, and 3) an MRI of my spine. I've done the peripheral nerve test and that was normal and I have to wait a bit to go to the other tests. I've also had my blood tested for pretty much everything and it's all been normal.
But throughout all the months that I've been waiting to follow-up with the neuro, the numbness as well as some other strange symptoms keep coming out of nowhere (seemingly) and going away. I get really bad tension headaches, lightheadedness, numbness and tingling, fatigue, frequently urinating (sometimes I wake up four times throughout the night), feel a massive brain fog, and more generally I just feel a great deal of malaise. I usually feel like this for four-five days in a row every couple of weeks and then feel completely fine.
These symptoms are pretty ambiguous but MS is something that I'm pretty worried about. My dad has it and is in the latter stages so the doctor's are considering it a possibility. I've seen quite a few doctors now and they haven't been able really figure this out. The most insightful thing that I have been told is that I could have some type of virus, which sometimes may last for a long period of time, and this might explain why I'm getting sick so frequently. I have just been told that I'm going to have to wait to see the neurologist and have anything neurological ruled out.
Whatever is wrong with me is very frustrating. I'm 22 years old working on my university degree and being sick so frequently has taken a huge tole on my academic performance. Also, financially I'm not doing so great and have been cycling through jobs...I mostly end up quitting or getting fired due to the fact that it's been very hard to work like this; it's really causing me a lot of stress.
Prior to all of this I have been quite healthy. I'm very athletic and go out of my way to eat healthy. I don't drink any alcohol, don't do any drugs, and quit smoking cigarettes back in January.
Anything to suggest? Whatever is happening to me is really messing up my life. I can't afford to be so sick all the time and I feel so desperate to know what's wrong.
Multiple Sclerosis :: Symptoms After 50?
I have noticed some symptoms that I have developed in recent years that I believe to be symptoms of MS. I am 62, female and concerned that I may have the disease. It's affecting my arm, hand and head and I didn't put it together until I went to a yoga class and it just came to me to check out the symptoms. I have been having tremors, spasms, sometimes painful, in my arm for a few years and it's gotten progressively worse. Last year I noticed my head would shake if my arm was in a certain position. I went to an orthopedist and he said it was due to an old cervical fracture so I let it go. I am going to see my primary doctor and ask for their opinion. But I would like to know if I'm too old to develop MS.
View 3 RepliesVitamin D Deficiency Causes Reactive Hypoglycemia?
Have suffered from RH for 2 years very badly, it has basically taken over my life.
Recently I read somewhere that it can be caused by vitamin D deficiency. Well that would make sense timing wise, I live in Scotland (no sun here) and I stopped sun holidays 3 years ago due to drop in income.
I was excited by this discovery but well 8 days in (5000iu) and no improvement. I know it probably takes a lot longer and I'm still going, but I hope it's not just a red herring.
Vitamin D Deficiency, Hyperparathyroidism And Heartburn
Can anyone relate to having muscle and bone pain with being deficient in vitamin D ? I get severe pains in muscles down my back and this has spread into my shoulders and up my neck into my head at the back. The pains come and go but i always feel tender and stiff in these area's. I get sharp shooting pains, burning pains and the feeling that my muscles are sore to touch. I also have felt like the muscle is tearing when i turn to reach something, the tearing sensation is really painful. I get shooting pains in my right leg in the hip/buttock joint which makes walking difficult at times and causes my left knee to give as i try to keep weight off right leg. The bone pain is usually in my lower back. When the pains in my neck muscles started it seemed to be triggered after i heard a cracking sound and got sharp pains in the back of my neck.
View 33 RepliesVitamin B12 Deficiency :: Can't Seem To Locate Tablets
following recent routine blood test, my GP said I was deficient in Vitamin B12. Rather than go straight to injections, she suggested I buy some Vitamins. I have got some Vit B, but can't seem to locate Vit B12 tablets. does anyone know if taking Vit B is OK, or if not where can I get Vit B12?
I am 63 yrs old and consider that I eat a good varied diet (fish etc)
Vitamin B12 Deficiency :: Pain In My Both Calves
i had a vitamin b12 test yesterday. the result recd today is 277. i am having pain in my both calves and i get tired very quickly. please suggest what it is ?
View 1 RepliesPossible Role Of Vitamin D Deficiency In Dry Eye Syndrome?
Many new articles on the net about the possible role Vitamin D deficiency may play in Dry Eye Syndrome. Some of the articles state that taking D3 may also improve dry eye symptoms. I went to the eye doc last week and she told me to take 2000 mg. That at the time was because i didn't go outside as much because I just developed DE in march and right now I'm quite light sensitive. Anyway I looked up D3 just to see if it might help the condition.
View 5 RepliesVitamin D Deficiency - Advice On Supplements?
Anyone ever told to take Vitamin D, my lab work came back that I was deficient in it, was told to take Vitamin D 1000 daily? I don't know what my level was, but I am looking it up on the internet and see there is D3 and D2? Looks as though the D3 is best?
View 31 RepliesVitamin A Deficiency With Dry Mouth Symptoms?
I'm just wondering if anyone who has or has had a vitamin A deficiency has also had dry mouth as a symptom?
I know that vitamin A deficiency can cause dry eyes, and I'm reading from a few sources that a deficiency causes 'dryness of the mucosal membranes'. I've had dry mouth for quite a while now and I wanted to find out whether this particular deficiency may have contributed to it (if i have it in the first place).
Dizzy And Off Balance With Vitamin D Deficiency?
I am 29 year old female and for the past 2 years I have been feeling off balance and sometime dizzy, but mostly off balance.
I have went too 2 different Neurologist, A E.N.T, and A Cardiologist. I have endless blood work, A CT of the brain, and a MRI of the brain. Everything was always NORMAL! Once I was anemic and my b12 was low which is normal now.
This past weekend I was dizzy, and I got scared, I went to the ER which was nothing but a waste of time, they just told me sometimes people get dizzy and that's all.
I went to a doctor I had seen before but not alot she had looked at the blood test that one of the Neurologist had order and found out I was anemic and had a b12 deficiency and re-order blood work so she knew I had been having this problem for quite some time.
I went and did my blood work the next day she called me and told me that everything was back but my VIT-D but everything was ok, she said my b12 was on the low end of normal and she was gonna give me a shot once a week in case my body was just needing more than normal. I said thanks and went on my way at work. I was truly starting to think I was crazy.
The next day while at work, she called me again to tell me my Vit-D was low. It was a 19. And that is why I was getting Dizzy and Off Balance. I can't tell you how happy I was to finally have a answer!
So my questions are:
1.) Did anyone here get dizzy or off balance with a Vitamin D Deficiency?
2.) How long to I feel better? I am taking Vitamin D 50,000 units once a week for 8 weeks then going to re-check...
Pituitary :: Low T, Ultra Low LH And FSH, Vitamin In D Deficiency
Very healthy adult male, with these numbers:
LH: <0.2 (undetectable)
FSH: <0.2 (undetectable)
Vitamins D, 25-hydroxy: 27.4
T: 154
All of these are abnormally low. I feel fine, but I suffer from ED, low libido
Doctors 'note' on the bottom of the test results were:
Needs to see endocrinology specialist AASAP!
Ok, nobody likes to see ASAP! Written by a Physician... How worried should I be?