Gallbladder Surgery :: Persistent Mild Dyspepsia, Mild Nausea And Appetite Loss
RECENT HISTORY
First, I am diabetic and have had a fairly normal healthy life except in the last two years where I gained 40 pounds, did not control my blood sugars well, and went off the rails. I have had a lot of issues this year, but to focus on my most recent issues, I had a A1c of 10.5 two month ago and went to 9.1 a month ago finally to 7.6 right before my single incision laparoscopic with robotic-assisted single-incision surgery to remove my infected gallbladder (Hida Scan 11% no gallstones). 6 month ago i started experiencing a lot of bloating, indigestion and took charcocaps that helped a lot after meals.
Two weeks ago I went out for a cup of iced coffee (huge coffee drinker 3-4 cups a day for a long time no problems for years), and something hit me, it felt like a sharp pain and instant feeling of bleh no appetite and sick feeling the rest of the day. This continued for a week before I knew something was wrong, I could not have anything acidic or felt like I could eat anything. I had just seen my doctor for a bike accident a month prior to get a referral to a PT and osteopathic doctor. I had a l3/l4 compressed nerve with a twisted sacral (this is much better now with some minor spasms in my right leg from time to time). With all of that pain (took hydrocodone and muscle relaxants to sleep, sleep was poor) and school, I figured I must have given myself an Ulcer. My doctor game me a ppi-omeprazole (i've never had reflux and didn't then) since I had symptoms of some burning sensations and this chronic dyspepsia so this would treat the possible Ulcer for two weeks while I was sent for an ultrasound to check out my gallbladder (family history - Mom, aunt, and uncle had their's out with gallstones). The ppi sort of helped but I just was fatigued, could not eat anything but a bland diet, I had chronic dyspepsia and general nausea that I could never shake. My daily caloric intake decreased with each new day and food just made me generally feel sick, however if I skipped meals it would still be bad, worse with food.
TEST RESULTS
After the Hida scan came back positive with an ejection rate of 11%, I scheduled my new a1c test, ekg (family history of heart disease), I was cleared and scheduled for surgery. I stopped taking the ppi as I believed this to be the cause of all my problems. btw, I was 254 the end of june and lost 25 pounds by the time of surgery (average daily caloric intake ~900-1200 prior to surgery
POST SURGERY
After the surgery 7/21-one week ago, I had my two days of pain and adjustment, and recovered decently with a soft food and liquid diet. I noticed the general sickness was gone! Hazzah!, except on Saturday I was feeling bloated, cramping, and I could not eat a solid one bite without feeling sick. I knew I was constipated. I stopped the pain meds the day before and I knew I had not eaten too much but it was over a week since i went. I took magnesium citrate and nothing after 7 hours, I drank another 1/2--then BOOM it was insane. I was sooo wiped out and tried to replace lost liquids but I believe I was dehydrated. I was sick that night and stomach was not happy.
Sunday was much better but I was wiped out still and felt generally just depleted of all my energy. I ate, walked a bit and then came back home. That night I started feeling very uncomfortable and the symptoms were somewhat similar to prior to surgery of the general dyspepsia and nausea chronically. I could not sleep because of my back problems (had to sleep upright on my back all week). I woke up in the middle of the night turned to my side and then all of a sudden I felt a warm rush of something just above my stomach and the constant burn in my stomach no reflux. I could not sleep until the morning.
NOW,
I have had really bad gas (low fat diet) for the past few days. I was getting and feeling better on day four but now this!
I felt extreme discomfort all day, felt like a low grade fever 98.6 (no fever) incision site is also slightly red, but the doctor said to call if I had a fever. I was worried about an SSI. The pain was like I threw up (I never have even starting out back in at the coffee shop) and that ache afterwards. The burning sensation let up later in the day after I took some antacids and saltines (I must have some acid issues, but I have read a lot of people suspecting many people may actually have low acid).
The thing is a lot of people have episodes after food, but mine is chronic with mild discomfort, burning sensations, upper abdomen and stomach discomfort (with some nausea), and food helps it initially and then it comes back. I feel week, slight low grade fever even though I don't have one. I keep thinking I have an infection of H. Pylori or something. Food takes a while to do much, I walk after I eat everything. I feel like I could eat but I get so much bloating and indigestion that it is uncomfortable. I drink plenty of water, but I wonder if I am low on essential things for the long ongoing low calorie daily diet. I can't eat more then 800 calories even with smaller meals-since Thursday.
Why was my gall bladder inflamed in the first place? I had no stones, and the surgeon said I had a very long a big gallbladder (ready to rupture!) that was really inflamed including a little on the liver. Pathology reports came back negative. I theorize my rapid change in weight and blood sugar levels inflamed the organ or an infection.
Possibilities:
diabetic Gastroparesis
H. Pylori
Peptic Ulcer (was never officially tested)
Gastritis
Anxiety
Low/High Stomach Acid
Low bile leak?
Sphincter of oddi dysfunction
What I feel could help:
HCL Betaine
Digestive Enzyme (Garden of life chewable vegetarian)
ppi (I would hate to take them unless I had to)
something to coat my stomach if I do have an ulcer to heal
ability to eat more so I can have more assimilated minerals, ect.
Anxiety med (first year i've had a lot of anxiety-mainly school related and upcoming wedding planning for next year
more tests!
My burning anxiety questions:
When will I get my appetite back?
(i really suspected my odds were decently good that I would get better after surgery, I had a great surgeon)
Did anyone have any of these chronic symptoms? Is it due to an infection or some issue with surgery?
Have some people eventually been able to eat what they wanted after a period of time?
How many had these excessive bloating, indigestion, nausea and general malaise through the day, worse a little while after food or between meals?
Mild Soreness Just Below Rib Cage/mild Nausea
I have a VERY mild soreness (if I can even call it that) just below my rib cage towards the right side, but only if I move in a certain way--it doesn't really hurt to the touch. I have no diarrhea, no fever, no back pain, stools are normal color---only a brief pang of nausea now and again, but it's not constant. Also, it doesn't bother when I eat greasy or fatty foods. I find it hard to believe that it's gallbladder related, but not sure whether I should see a doctor or not. It has subsided since the beginning of the week. Anyone else have this and it not turn into anything serious?
View 3 RepliesAnything About Secondary Hyperparathyroidism?
Does anyone know anything about secondary hyperparathyroidism at all?
View 1 RepliesThyroid :: How To Cope With Hyperparathyroidism?
I was diagnosed with this some years ago after suffering for years with kidney stones, they did try and remove my parathyroid glands but couldn't find them, mine aren't where they should be and further tests have come up blank as to where they might be in my body (looking for a needle in a haystack was the term used!) I take Bendroflumethiazide (sp) alternate days to alter the acid in my urine. I'm constantly tired and fed up being told i need to watch my weight and i should exercise more, i'd love to exercise more but some days it's all i can do to get my head off the pillow. I could go on and on here just wanted to know if there was any sufferers out there and wondered how they cope with this condition?
View 14 RepliesIs Hyperparathyroidism A Permanent Disorder?
I was originally diagnosed in 2010. I have recently been told I have a urinary infection, but apart from the fact that two lots of antibiotics don't seem to be working, all my symptoms relate to this, especially an irregular heartbeat and confusion.
Hyperparathyroidism - Nephrologist Or Endocrinologist
My husband as i look back on some of his Calcium levels the last 18-24 mo they are slightly above normal. He also had a kidney stone a few weeks ago. His Vitamin D level is low, and his PTH is low normal. He has been feeling really exhausted and wants to just sleep. His 24hr urine calcium is elevated.
Also his BUN and Creatinine levels have gone up rather rapidly and a little too much for comfort as far as i am concerned.
His creatinine in his blood has doubled from 1.1mg/dl to 2.4mg/dl
His BUN has gone from 25mg/dl in june to 41mg/dl when the test was taken the day he had the 2.4 creatinine .
He passed the stone and it showed on CT not to have been really large, but after about 2 weeks, his urine dipstick test for blood still says he has a large amount. I found site where there are doctors in Tampa, Fla that only do hyperparathyroid cases and surgeries.
The problem is that our family doctor knows little about this disease and the Tampa Docs say a lot of Endocrinologist don't really know a lot about it. So now an endocrinologist that has not seen my husband yet is telling us to see a nephrologist.
I think that he needs at least 3 PTH results to at least see where he is falling in the range. Naturally nobody moves very fast on this kind of thing, Doctors just don't want to talk to you, as if you can't understand the tests...well i can and can carry on a conversation about it, but i think because of their lack of really knowing a lot about this disease, its easier to avoid me and to send to this doctor and that. I don't want a bunch of different viewpoints i want the doctors to come together and at least discuss what the other has to say about his case. I am trying to save him as much "wild goose chase" as possible. Any advice on what I should do, ask or insist on from the doctors, while my husband is probably getting worse.
Fatigue Is Becoming An Issue With Hyperparathyroidism
Recently his symptoms have got drastically worse but hospital keep sending him home saying very little. His fatigue is becoming an issue and causing him to miss school and yesterday I couldn't actually wake him! Anyone else had similar symptoms?
View 55 RepliesHypocalcemia Due To Surgery For Hyperparathyroidism
I had surgery for Hyperparathyroidism a year ago. I had 4 gland hyperplasia, which meant they removed 3 plus a part of the 4th gland. Immediately after surgery, I of course developed hypocalcemia. Since then, my Calcium numbers have fluctuated and I have had better and worse readings. However, my PTH has never gone above 19, and my last reading was 14. My Vitamin D is at 43 and my "active" D is apparently doing what it should be doing so I do not require Calcitriol to get things working. But, I still have issues with keeping my calcium up, and of course the attendant tingling, and etc.
My real concern is two-fold. One, is it safe to keep taking supplements given the conflicting data on males taking calcium, and Two, is there any harm in long term chronic hypocalcemia? I have read about heart issues and hypocalcemia, but I am assuming this is with respects very low and long term calcium issues. Also, anyone know of any ways to raise PTH at all? Funny how high PTH was an issue before surgery and now low PTH is...
Thyroid :: Hashimoto's Disease - Possible Hyperparathyroidism?
I have Hashimoto's disease. Over the last year or so I have really started to experience some of the symptoms of hyperparathyroidism such as super bad fatigue, LOTS of pain in my bones, etc. Are the two connected?
View 2 RepliesHyperparathyroidism? Calcium And Vitamin D Levels
So I just got blood tests back and my vitamin d was 26 which is low and my calcium was 10.3 which is a tad high. I am 25 year old female. Should I be concerned about hyperparathyroidism?? I didn't get my PTH checked but my thyroid is normal. I don't know if they have anything to do.
View 2 RepliesThyroid :: How Common Is Primary Hyperparathyroidism ?
I just wondered if anyone has any idea how common it is to have primary hyperparathyroidism?
View 5 RepliesVitamin D Deficiency, Hyperparathyroidism And Heartburn
Can anyone relate to having muscle and bone pain with being deficient in vitamin D ? I get severe pains in muscles down my back and this has spread into my shoulders and up my neck into my head at the back. The pains come and go but i always feel tender and stiff in these area's. I get sharp shooting pains, burning pains and the feeling that my muscles are sore to touch. I also have felt like the muscle is tearing when i turn to reach something, the tearing sensation is really painful. I get shooting pains in my right leg in the hip/buttock joint which makes walking difficult at times and causes my left knee to give as i try to keep weight off right leg. The bone pain is usually in my lower back. When the pains in my neck muscles started it seemed to be triggered after i heard a cracking sound and got sharp pains in the back of my neck.
View 33 RepliesThyroid :: Natural Treatments For Primary Hyperparathyroidism?
I've been diagnosed with hyperparathyroidism on Thursday 5th of November, I was wondering if anybody has had natural treatment for this please?
In the meantime I'm going ahead with being put on the waiting list for an operation, I have my ultrasound scan tomorrow, Tuesday the 24th of November .
It would be good to hear from those members who have used natural treatment for primary hyperparathyroidism and to find out how you are getting on now please ?
I have had "M.E. " for 19 years , I'm being treated naturally, this helps with my weight and also some of the other symptoms , however I'm still not well enough to work and need help at home etc
Thyroid :: No Mini OP / MIRP In UK For Primary Hyperparathyroidism?
After a very painful kidney stone problem and thus being told I have Bilateral kidney stones; I have just been diagnosed with Primary hyperparathyroidism. The docs want to operate to remove the faulty gland(s) but I am very concerned about the procedure in the UK which does not seem to include the mini op or MIRP operation. Has anyone had this type of surgery in UK(either mini or other) and what were your experiences? I am wondering if I should travel to Florida for it?? I also have low vit D and they want me to take vit d supplements. I think this is dangerous to elevate my calcium level even more?
View 2 RepliesSleep, Fatigue, Anxiety - Hyperparathyroidism And Pregnancy
I am 32 years old and was recently diagnosed with mild hyperparathyroidism (HPT), because I have borderline high levels of calcium and parathyroid hormone. I feel that I have some symptoms - increased thirst and urination; needing 9+ hours sleep; fatigue; anxiety. However I am not sure these can all be attributed to HPT. I was planning to become pregnant for the first time this summer, and I wanted to hear if anyone has HPT and became pregnant. I am debating whether it would be better to have surgery to remove inflamed glands prior to conceiving.
Thyroid :: Red Bumps And Skin Irritation With Hyperparathyroidism
I noticed before I had surgery I would have red, irritated and swollen bumps that would turn into nothing short of a raised mass on my inner thighs. It really hurt! After the surgery they all left. Well it's been since October 26th 2015 that I hadn't seen them until today. I have them again which leads me to believe that the hyperparathyroidism was not completely cured. They took one adenoma but left a complex nodule. I ask the surgeon to look at all of my parathyroid hormones and he flat out told me no. I'm concerned that when I go back to the doctor that my levels will be back up. If not then there is another issue I don't know about. However, I still believe my skin irritations are from nodule he refused to look at. I'm no doctor though. But if anybody is having this issue and still feels really weak in their muscles I could use some advise as to how I can help myself feel better. I still ache.
View 2 RepliesBlood Pressure :: Hypercalciuria, Hyperparathyroidism And Meds
I have posted on this forum for about 7 years. For a long time I got decent control on a 50/12.5 combo of cozaar and HCTZ. A few years ago, my BP stopped cooperating and I had a series of BP spikes that were quite high. Lets fast forward to today. At my constant nagging and ignoring my various physician's insistence that my assorted symptoms were "depression and anxiety" caused, I finally received a diagnosis of hyperparathyroidism. I am scheduled to have surgery in July, and am hoping that this surgery will provide at least some relief from my myriad of symptoms.
Now, my question. lisinopril used to be a very effective drug for me, but I couldn't tolerate it. 10 mg would tank my BP by 30 points. So, when I started having the spikes, I figured, I'll tough out the side effects to keep my BP down, and go ahead and take the lisinopril However, now even 40 mg. of lisinopril doesn't do anything for me, and neither, it seems, does the cozaar. I am currently on 240 mg of diltiazem and that seems to at least keep the pressure around 140/80, most of the time.
I am hypercalciuric, which means my kidneys are excreting the excess calcium caused by the HPT that I supposedly have. I was wondering if anyone here has heard of any medical situation in which lisinopril or cozaar might actually exacerbate BP issues? It seems really odd to me that a formerly very (almost too) effective a drug, now does nothing, and even seems to make it worse. Any thoughts?
Thyroid :: Primary Hyperparathyroidism Sickness - Nodules Removal
I have recently been diagnosed as having hyperparathyroidism and I am currently on the waiting list to have two nodules removed. On reading up on the condition sickness is a symptom but for some reason my consultant wouldn't say that my continued sickness for the last 18 months is being caused by my overactive glands. I am getting desperate now so is there anyone on the Forum who is suffering / suffered the same problem and after having the op felt human again ?.
View 5 RepliesMild Asthma Still Have The Flu Jab?
So it's getting to that time of year again and I'm wondering if I should have the flu jab. I have mild asthma ( I only have symbicort and ventolin) and have never had a proper attack or flu. I was only diagnosed two years ago, but it's likely I've always had it (I'm 19) according to the nurse given that I have a history of breathing issues.
Last year the surgery I was with didn't receive any of the vaccinations until december. I was offered on but refused as it wasn't convenient at the time. I'm a student and had a two weeks of term left, full of exams and assignments. As I always feel unwell after jabs I didn't want to risk it!
Personally, I don't feel that I need it and I don't want to have one when people need it more than me, but I also don't want to be stupid and refuse it and then end up unable to breathe!