High Heart Rate And Blood Pressure On Standing (rise)

I am a 41 year old mom of four and a foster son.  I was diagnosed with sarcoidosis of the lungs about 10 years ago and soon after began experiencing numerous cardiac symptoms.  I  experience extra beats, which I have had occasionally since I was about 21, but have also experienced incredible pounding and pressure in my upper belly, chest, neck, and up into my ears. It is similar to feeling like someone turns up the pressure of my blood vessels like turning up a hose or something and you feel every heart beat so strong and powerful. This would happen with any slight exertion (sitting up, standing, trying to walk up a slight incline etc.) My blood pressure and heart rate would rise drastically (once documented in the hospital my bp. went from normal 114/70 to 167/100 and hr. went from 70 to 160s just from standing slowly)   My husband, for a while, had to carry me up the stairs because of the pounding and pressure.  I would have to do a little bit of exertion and then stop to let the pounding up my throat, neck, head etc. die down some and them take some more steps.  or whenever I stood/stand up have to wait for the rush of pounding pressure to lessen and then start to walk.  I have been on metoprolol for about three years now to help extra beats and also to control the surge of my bp. and hr.  The docs can't figure out why its happening. The meds have helped a little so that I can walk around now but not much more then that.  Thing are worse around my period and that's the only pattern I have figured out.  The extra beats make me feel like I'm a slave to them . I feel like they control what I do and I don't do.  I don't want to leave the house so I won't experience them when I'm away from where I feel the most safe and comfortable(home)  My life has changed so much.  I use to play volleyball and be active and miss it so much.  I stay at home and my family goes to hike. Even when I'm having a better day and Id like to try and do some activity I'm so petrified that I'm going to do too much and something is going to happen.  I'm so tired of feeling this way.  I feel like I don't have a second that I'm not thinking about my heart and is it going to stop, or should I try to walk up the stairs cause I know that it makes me feel worse and leads to extra beats, pounding etc.  I tend to notice that lifting, bending, sitting up from laying down tend to bring on extra beats, but sometimes its just after I sit or lay down.  It makes it so hard to just relax cause I'm always wondering when the next one will come and how bad will it be and how bad will it make me feel.  I tend to yawn and burp more when I having more pvc's/pac's