Fibromyalgia? Neuralgia? Spinal Spasm And Aches
I have never been so lost with my health. Someone smashed into me in recent years. From that moment, the list of what I've suffered is absolutely endless. So much so that I've lost confidence and most days don't know where I am with myself. Been to see two orthopaedics, yet they can find little wrong with me. Been referred to a rheumatologist under the question that I may have fibromyalgia. I was tested on "point" scale. Not only was I tender on all of the fibromyalgia points, but everywhere else, too. Then I get forwarded to a Consultant Neurologist. I get a diagnosis of Functional Neurological Symptoms.
Here's a list of some of the things I'm dealing with each day and night:
Spasms - Can be everywhere, but mainly through the spine and left side.
Shoulder and shoulder blade ache
Itching (very uncomfortable) but almost permanent and throughout the body and left side.
Collapsing. Mainly the left side, lower back, left hip and leg. No warnings, just gives way. Permanent pain in these areas, too.
Reduction in grip strength, plus some pain when trying to grip. Also, some pain when not trying to grip.
General muscle and joint aches and pains and nagging.
Neuralgia and nagging from neck upwards. Horrendous when trying to eat hot or cold food - so it usually has to be room temperature now. Yet can still get neuralgia.
Balance problems. Won't walk anywhere without my partner. I often drift, or body gives, or spasms, etc, so I have to hold on to him.
Crawling sensations throughout the skin (really uncomfortable) and awful restlessness. Often takes me ages to drift to sleep, even then I wake up tossing and turning. Which is unusual, because when I'm up and "trying" to do things, I feel permanently tired. I've felt lack of energy for very long now.
My mind goes blank, often in the middle of the sentence. Not only do I get words back to front, but I also say one word when I mean another, and they'll have no connection whatsoever.
I'm permanently forgetting things, which can be dangerous, because I'll put something in the oven and completely forget, which is why I will insist on waiting until my partner comes round to my flat.
The pain and discomforts I suffer can include the following and, often, all at once; muscle tightness, burning, itching, tingling, stabbing, shooting and I get cramps every day.
I suffer other symptoms, too. I also struggle to digest now.
When I do slightly collapse, ie, body gives (which is most days) the pain can be horrendous, even if just a threat, yet when I fully collapse, it is excruciating and I cannot get up off the floor for ages and then without help.
I don't know whether I have fibromyalgia or the diagnosis from the Neurologist, or both.
Fibromyalgia Syndrome :: Short Sharp Or Short Burning Aches
A month ago I was fine, no pain, no aches, nothing.
Then a small burning ache started in a precise spot on my right thigh.....then my breasts started to hurt.....then my elbow on my right arm..... Both sides of my ribs under my armpits.....my shin on my left leg and my inner thigh......then my whole left arm from wrist to armpit.
I feel like I've just been punched all over!
Blood Tests - normal
Urine test - normal
Stool sample - normal
ECG - normal
The pain isn't all the time, but in short sharp or short burning aches, it's stopping me from sleeping properly and its sometimes really scary when I get a sharp pain in my chest and left arm. It takes my breath away sometimes
I also get these strange "rushing" feelings in my chest/head when I lay down to sleep at night. Its almost like the rush you get when something makes you jump, but it lasts only a few seconds then it's gone. But I can have 3 or 4 of them in a row. But of course it's quite scary when you've no idea what they are.
Been in and out of doctors for weeks now and spent nearly £100 on prescriptions that haven't helped.
Been put on Amitriptyline 10mg for the pains but no change yet after a week, will keep taking for now though.
Im not convinced it's Fibromyalgia, but my doctor isn't the easiest to talk to.....
If anyone has any insight and can help me understand this all or maybe has any ideas please comment.
I'm 28, only other issue is PCOS but that doesn't give me much hassle.
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