Endometriosis :: Symptoms Returned After 2 Years
After years of pain, heavy periods, aches and really bad PMT I was finally diagnosed with endo about five years ago after scans and internal examinations. I was operated on and was ok for a couple of years. Then the symptoms returned and only after breaking down in the GPs room did they do the same again.
Just less than two years ago I started a new job but have had time off sick as my symptoms haven't improved. I'm tired, run down, back ache, stomach ache, pick up every could/bug going etc etc. Now I don't know what to do. My boss has called me in for a meeting about my sickness next week.
The Dr hasn't prescribed me anything but I feel all these symptoms are linked to endo and to the cyst I also had removed during my first op. I struggle almost daily. I'm sick of going to the doctor and begging, telling them I feel like rubbish.
Endometriosis :: Effects Of Norethisterone After 3 Years Of Use?
I have a burning question on the extended use of Norethisterone (5 mg). I have been diagnosed with endometriosis and my right ovary was surgically removed three years ago. Since the surgery, I have been put on this medication and I'm wondering whether I am the only one taking Norethisterone for 3 years and what kind of effects will it have one me?
View 3 RepliesBulky Uterus - Endometrium Is 14 Mm In Thickness?
I am 35 years old.. My ultrasound scan of abdomen says uterus bulky, ante erred measures 10.7 *6.7 * 4.4 ... Endometrium is 14 mm in thickness.. What does it mean??
View 2 RepliesIrregular Periods :: Varied In Color, Thickness, And Smell
I'm 22 years old, normally had heavy menstrual period, often had irregular discharge (varied in color, thickness, and smell depending on weather, amount of stress, and the amount of chemical I interact with - I'm a nail technician).
I began to be involved in sexual activities and birth control pill in February. I also had a pap test in February. Everything was normal. No irregular discharge between periods anymore, but did have brown discharge for days after period.
Two weeks ago, I changed to a new pill (from Reclipsen to Microgestin Fe 1/20) due to rashes side effect. I had intercourse on Friday of the first week of the new pill. On Sunday, I began to have dark brown color discharge (no odor, itch, burn, or discomfort). The heaviest discharge was on Tuesday with watery, dark brown, dark blood color, with some light/bright blood cloth. It is Thursday now (day 5) and I'm still having discharge, although lighter color (orangy-brownish). There are still no odor, burning, or itching feeling except for a small pimple on the labia majora - which might due to the fact I've been wearing mini pads for several days, making it too moist.
I went to see an Ob/Gyn doctor for a test and consultation today. The doctor looked at the color and say it might be infection due to its orangey-cloudy color. She also said it might be completely normal.
I'm very worry but the result won't come in until next week. My questions are:
1/ Is this really vaginitis infection?
2/ If yes, can it spread during intercourse? In other words, will it affect my partner?
3/ Can I rule out STD since the first pap test (in February) returned normal?
4/ I had worse symptoms before (with color and odor) but it was before I have a partner. Most of them last a week or more, but all went away on their own. This time, is the discharge the same - due to my irregular menstrual cycle?
Additional information:
-I'm in my final exams week, with lots of stress recently
-I've been engaging in a diet, which caused me to lose weight drastically (2.5 pounds/week)
--> Can this also be a cause?
Endometriosis :: Endometriosis After Myomectomy
I just left my post-op appointment for fibroid removal via abdominal myomectomy only to find out I have severe endometriosis. My OB/GYN says I have blocked fallopian tubes. I'm completely distraught. I'm 32, single, no children (would like all that sooner than later) and had the fibroids removed so that my uterus would have the "all clear" for babies someday. My doc says there was no way to know this prior to surgery and that the most severe cases are asymptomatic. As he spoke, I zoned out. I recall him saying he tried to remove the scarring and tried to see if the tubes would open bla bla bla. I don't know why I didn't ask for a pathology report or pictures, sizes weights.
Looking back, when he visited my hospital room the third day after surgery, I was told 4 fibroids were removed, but was initially told I had 7. I was in an anesthesia induced haze, so I didn't really hear much else. Today I asked about the 4 vs 7 fibroids and he said he removed all the fibroids that he could see. What the heck does that mean? Does that mean I still have 3 in there somewhere or did they shrink from the 5 months of hellish Lupron injections? I've noticed when I'm in shock, I forget to ask important follow up questions such as "Soooooo are there still some in there?"
At this point, I'm not sure what to do, with so many issues going on. In addition to dealing with this, I have other issues such as intense muscle spasms that can't be diagnosed, thinning hair and a balding crown. I'm not ready for children, but I'm extremely worried. I don't want to go through complicated pregnancies (if I can even get pregnant), miscarriages, IVF. It's just too much. According to the doc, I'll be reproductively old in 3 years (thanks for the added pressure)! I'd appreciate any advice anyone can give. I was only prepared to deal with the fibroids as endometriosis does not run in my family and I have no idea where it came from.
Menopause :: Endometrial Atrophy
I wonder if anyone has been diagnosed with endometrial atrophy. I am 52 and post menopause. After 14 months without periods, I bled fairly lightly for about 5 days in December 2013. I went straight to the doctors and was sent to gynaecologist for scans and biopsy. All came back normal. 11 months later, November 2014 it happened again, but this time was like a full on period. On both occasions I had sore breasts etc beforehand and the hot flushes disappeared. Again, just before Christmas I went back to the gynaecologist and again repeated scans and biopsy. This time they diagnosed Endometrial atrophy as the lining was very thin. There was nothing nasty, no lumps or fibroids etc and the lining was normal, just very thin. The gynaecologist prescribed Vagifem pessaries for 6 months to put a coating on the lining as she said it was due to low oestrogen. I really didn't want to go down the route of HRT as I am a bit nervous of it, so decided not to use the pessaries as the bleeding had cleared up. However, I now am bleeding again and so I guess I don't have much choice but to try the pessaries. I know there is a lot less risk with them as they are not systemic. I have had a white discharge too for a few months and my GP took a swab last week to rule out any infection. I was just waiting for that to come back before I started to use the pessaries, but began bleeding a couple of days ago. I have read that when the lining is very thin it can become ulcerated and presumably that's why it bleeds. Has anyone experienced endometrial atrophy on here, and if so, was you prescribed the pessaries and did they work?
View 40 RepliesEndometrial Ablation 10 Weeks - Still Bleeding Every Day
3/21/13. Just for reference, I'm 48 with 2 kids and have never had any health problems of any kind. 71 days ago, I had a fibroid resection by hysteroscopy followed by a Novasure balloon ablation - and haven't had a single day without either spotting or bleeding since. I'm very upset - and am wondering if there are others out there like me? I'd love to hear what kind of followup information you've gotten.
I'll try not to write a novel (knowing me, it'll be close), but here's how it all went down: in December my doc ordered an ultrasound to look into why my periods had gotten heavier over the past couple of years. I didn't bleed for very long (4 days exactly every 28 days) but I bled a lot and it was getting to be sort of worrisome, not to mention inconvenient, and while I was only borderline anemic, I was often tired and got out of breath easily. The ultrasound showed a small, submucosal fibroid (only about 2cm) so my doc referred me to a Seattle hot-shot gynecological oncologist to remove it. Because I have always taken a conservative approach to my healthcare, I asked my doc if I really needed to remove this thing and she proceeded to terrify me with a story about one of her patients whose fibroid had prolapsed and she'd begun to hemorrhage and ended up in the ER, after having nearly bled to death (she'd told me the same sort of horror story when I wanted to try a vbac after my first c-section - needless to say, I went ahead with the second c-section - AND the fibroid removal).
So I went to see this hot-shot. After he explained in detail what he'd be doing to get rid of the fibroid - going in vaginally to re-section with a metal scraper thingy then using a roller-ball to cauterize the site AND my entire uterus, I realized he was describing a second procedure as well... an endometrial ablation. I didn't actually understand this until I was sitting in his "library" (don't all hot-shot docs have Libraries?) waiting for my pre-op instructions from the nurse. I saw those two words: endometrial ablation on the consent form and realized that was the procedure my doc had been trying to get me to do for a couple of years and I'd always declined (in her office, they use the Her Option procedure so I'd not known it by any other name. I'd said no several times over the years. My period's not THAT bad. Like I said, I take a conservative approach. So anyway, here I am realizing the hot-shot (who actually specializes in female cancers, not necessarily fibroid removal and endometrial ablations) has tacked on something I didn't want done, without asking me, without explaining to me, without giving me any literature about it nor briefing me on possible risks or complications. So I called him back into the Library and asked point blank: "Is this something that needs to be done?" and his response: "Well yes, see, we want to go in there and do this now so we don't have to go back in in two years"... Now, I took that to mean this rollerball procedure was necessary for the successful removal of the fibroid and would prevent others from forming in the 4 or so years I have until menopause. So, once again, I fell in line with blind faith and went ahead and let them schedule me for surgery.
The fear was the worst part of the procedure. I'm not that comfortable with hospitals and even the idea of general anesthesia makes me sweat (I'd never been all the way out before) - but all seemed to have gone well because I woke with essentially no pain and no bleeding and laid low for a few days (which I never let myself do so that was a luxury). The only complaint I had at that time was that while I was coming back out of the anesthesia, hot-shot went out to the lobby and told my waiting husband that I was to be on pelvic rest for 4 weeks (news to me) which meant no sex (fine - hey, my husband and I have been married for 18 years, what's 4 weeks?) but also, no riding my horse (not so fine). He'd never mentioned that I'd be grounded from the saddle - my horse and I are in training. It's kind of a big deal to suddenly stop what we've been working toward for a month. I was upset - why the hell didn't he me this BEFORE the surgery (we discussed my equestrian pursuits during the consultation appointment)? But oh well - I scraped together the pennies to pay my trainer to ride my horse while I recovered.
But it was on the 5th day that I began to feel I'd been hoodwinked.
It was an easy day at the barn - no riding, just grooming, bending over to pick hooves and lifting the blanket up to slide it on and off my horse - when I suddenly felt a GUSH. When I checked, I found that I'd just bled about 2 tablespoons worth of pink/red blood. Because I'd been given nothing to read, no handouts, no followup literature or online links to help me know what to expect post-procedure, I called the office to ask if this was normal. The assistant who answered (she was apparently brand new there) decided it was probably that my "sutures" from the fibroid removal had dissolved and sometimes there's a gush of blood after that happens. Not to worry unless I started flooding a pad in the space of an hour. I was only spotting by that time, so I tried not to worry. But from that point on, I started doing my own research and was HORRIFIED to discover SO MANY negative after-effects of this procedure! I felt like kicking myself for not digging deeper beforehand - and mostly, for being so careless with my own body that I put it wholly and completely in someone else's hands, hot-shot or no.
During this research, I discovered that an ablation has absolutely nothing whatsoever to do with whether or not a fibroid removal is successful. And it certainly doesn't prevent the recurrence of fibroids. I hadn't needed to have this done. I'd gone into this whole thing completely uninformed. I actually wrote hot-shot a letter outlining my dismay at the lack of information I was provided prior to this surgery. I was upset and I let him know it. I let my doc know it, too. After all, she was the one who referred me - and she sent me to him specifically for the removal of the fibroid - NOT for an ablation. But, I figured, hang in there. What's done is done and he said the worst that could happen was that I would still get a period. Since I actually hadn't gone to him intending to get rid of my periods - only to get rid of a fibroid - that didn't seem like a very bad worst-case scenario to me...
Well - it CAN get worse. And it has.
During my follow-up visit at 5 weeks (at which time I was still spotting daily and had already had a post-ablation period - which was about 2/3rds lighter than my pre-ablation periods - still more than any of my friends bleed when notes were compared, but lighter for me), I learned that hot-shot didn't end up using the roller ball after all. He said after he removed the fibroid, my uterus looked so smooth and well-shaped that he used the global method of a Novasure thermal balloon instead. So not only had he not gotten my INFORMED consent to even DO an ablation, he didn't use the technique he'd told me he was going to use. Next - I found out the assistant who took my call on day 5 was mistaken - that gush of blood couldn't have been from sutures dissolving - because I didn't even HAVE sutures! I was starting to have a very bad feeling about this...
And my gut was right. Hot-shot called last week to see how I was doing and I proceeded to tell him that I haven't had a single day since surgery of NO blood (that's 71 days today!!). Some days are worse (like around ovulation when I dump a bunch of brown, mucusy stuff over the course of 5 or 6 days - sorry, TMI - and have to wear tampons to keep from having embarrassing leaks) while about three days a month consist of just a tiny bit of pink or tan on the toilet tissue. Every other day is blood. Pads. Tampons. Using them all.
Turns out, this isn't normal. Surprise surprise. He tells me: "Of all the patients I'd especially want this to work for, it would be you since we sort of got off on the wrong foot." Yeah. No sh*t. Alas - not the case.
Not only did it not "work", but it has made my life worse. Where I bled for 4 heavy days once a month before - and always on schedule - I now never know when a gush is on its way and I have cramps with nausea at least half the month (I didn't have cramps before this. At all.) I wear either a pad or a tampon at all times and sex? We weren't worried about 4 weeks. But 10 weeks is starting to feel like some kind of sentence.
I'm scheduled for an ultrasound in a month to see what's going on. Hot-shot wants me to go through a third post-ablation period first because, as he put it, "if I look into my crystal ball, I really feel this is all going to clear up on its own." But his next guess is this: the balloon didn't properly cauterize the site of the fibroid removal so it is still an open wound and just as it starts to heal, the shedding with my period proceeds to slough off any scab that might have formed. On top of that, the reason I'm still having a period, his words: "sometimes the balloon doesn't reach all the way up to the top of the uterus and some endometrial tissue can be left behind." Really???? Then why the hell use it??? Why didn't he use the roller ball he told me he was going to use? If these turn out to be the reasons for the continued bleeding - guess what? We do a repeat procedure. Hospital again. General anesthesia again. A month off my horse again. $30,000 again. Seriously, this all cost $30,000! We would then be hitting $60,000 - for something that really never needed to be done in the first place. Unbelievable!!! And we wonder why our health care in this country is in such crisis??
The whole thing was not only a bust, but has rendered me a slow-leak mess. I've been keeping a daily diary since day one and I'm exhausted. I'm sick of having to write down every dribble, smear and gush. I'm tired of describing all the different colors. I'm discouraged, depressed and angry. I feel like suing for malpractice. Some hot-shot, huh?
Endometrial Resection - Bleeding After 9 Weeks
I had my the lining of the womb taken away 9 weeks ago. I still have bleeding everyday. It's not heavy but mild to medium. It's everyday.
View 2 RepliesCould I Be Pregnant After A Tubal Ligation And Endometrial Ablation?
I am a 35 year old woman who had a tubal ligation 10 years ago and an ablation about 7 years ago due to heavy periods. I am the mother of 2 wonderful daughters and do not plan on having any others. I have read a lot of postings about women who haven't had a period since their procedures, however I still get my period. My system has always sort of been out of whack (periods every 2 weeks or every 2 months). Recently I have been concerned about the lack of my period (almost @ 7 weeks) and wondering, if by some chance I was pregnant, what that would mean? Tied tubes and lack of uterine wall surely cannot equal a pleasant outcome. I have taken a pregnancy test which turned out negative but if my system is out of whack, how accurate could it be?
View 14 RepliesEsmya :: To Stop Bleeding After Endometrial Ablation
I had an endometrial ablation back in July and bled for over 3 months the consultant put me on ESMYA to stop this. I stopped bleeding after 2 wks of starting the tablets which was mid October however over a week ago I started bleeding again. I am not sure whether it is a normal lighter period or whether I am going to go back to constantly bleeding again. Is anyone else on ESMYA and having similar symptoms?
View 4 RepliesUterine Fibroids :: Endometrial Ablation - Esmya
Hi All - I had a Polyp removed in March where they discovered I had a 12 cm Fibroid - I had an Endometrial Ablation to remove the fibroid and I went for the option of keeping my fertility, this Op was at the beginning of July, since this time I have had only 4 days where I haven't bled. I have just had my 3 month check up with the consultant and he has suggested that the Fibroid is growing back and to start taking ESMYA saying that this will reduce the fibroid and will stop bleeding.
I believe that this is a stop gap with the intention that I will take the tablets for 3 months but once the bleeding starts again I will probably have to have a full Endometrial Ablation.
Has anyone else had an Endometrial Ablation with similar effects and has ESMYA stopped the bleeding? AS you can imagine bleeding for over 3 months solid has become somewhat frustrating.
Endometrial Resection - Recovery Time - Still Bleeding (18 Days)
I had this operation done 18 days ago. To remove the lining from the womb. I am still bleeding. It isn't as heavy as it was before operation. But still like a light to normal period. I suffer with very lower left back pain, this has been worse since I have been bleeding heavy & it is still there. Anyone else had endometrial resection?
View 1 RepliesHeavy Periods / Clotting - Hysterectomy Or Endometrial Ablation?
I have had a bit of a journey over the last 3 years, increasingly heavy periods, which are now 2 - 3 weeks long, with severe clotting (sorry tmi). I have had a laparoscopy (GA), mirena coil (twice), right ovary and tube removed due to large cysts, and I have a large fibroid. I have tried tranexamic acid which had no benefit. I am now being offered an endometrial ablation or a hysterectomy. Having read some stuff on forums, the experience of EA doesn't seem to be good. I am inclined to go straight for the hysterectomy in the sense that it gives complete closure to this whole sorry experience, and the on going post op pain with an EA seems well documented. Just wondered if anyone could offer any helpful insights?
View 36 RepliesLess Blood For Tests - Thickness Of The Blood And The Small Veins
Weekly blood removal was ordered by my hematologist. Being needle phobic I knew it wasn't going to be fun. Since being misdiagnosed since 2007 my iron levels were greatly increased. After going for my first blood removal, I was concerned since after trying both arms, they were unable to get the 500 ml due to the thickness of the blood and the small veins, I believe they were only able to get 50 ml Has anyone else experienced this? Or does anyone have any recommendations on how to get more blood out?
View 6 RepliesEndometriosis :: Could Be Genetic?
I been having all the symptoms of endo. The lower back pain, pelvic, stomach pain, bloating. I also have leg pain which im not sure is linked to endo but my pain is constant as i've had it non stop for a month now but feel worse when im on my period.
I have been to the doctors as he said it could be a possible ovarian cyst but he didn't really know so he is referring me for a ultrasound which wont be for a couple of weeks!! He did no other tests apart from a urine test (still waiting on results)
My mum has told me both my cousins have endo and im just wondering if its genetic?
Laparoscopy For Endometriosis? Need Advice
Long story short, I've been suffering from excruciatingly debilitating cramps every single cycle,this started three ish years ago I spend hours in the ER I've been admitted few times as well and it's the same bloody routine every single time
I'm in immobilizing pain, cold and hot flashes, nausea, vomiting fainting poor appetite dehydration low blood sugar levels heart palpitations weakness fatigue exhaustion crankiness moody insomnia etc etc
All these symptoms I experience up to two weeks before my period then during the first 3-4 days of my period then total exhaustion few days after my period and I'm symptom free a week before my period give and take. I should also mention that I've had several x-rays, ultrasounds and all kinds of blood tests and everything comes out good healthy and no problems yet I have these symptoms that just don't seem to go away, last stop for me was a visit to an endocrinologist and he's taking care of my thyroid problem given a new doze a little over a month ago and things are looking fine on that end I had a referral from him to see a gynecologist in mid September but having been bed bound with all the symptoms and persistent pain on my right abdomen I spent the night in the hospital and everything came out good both the blood and the urine tests and the ultrasound and regardless of how many drugs were given to me via an IV I was still experiencing bad persistent tedious excruciatingly painful pain on the right side of my abdomen so the gynecologist today discussed laparoscopy with me and I felt so comfortable around her and being as fed up as I am with all this pain I said I'll go for it
It will be a Diagnostic Laparoscopy for Endometriosis she put it as urgent and she'll be the one performing the procedure I'm happy things will finally start to clear out and hopefully I'll be in my way to some kind of cure hopefully but I'm so nervous please help any words of comfort or advice will be greatly appreciated. I did half the paper work already and I'll have some more to do the day of I have a really good doctor guiding me thru this call me weak or crazy but I'm incredibly nervous.
It would be nice to hear from anyone who's done this kind of procedure please BTW I'm 23 years old, healthy no health complications non smoker or drinker
Endometriosis And The Bowel Symptoms?
I'm wondering what the symptoms are when endo attaches to the bowel?
View 4 RepliesCataflam For Severe Endometriosis?
If I use Cataflam for severe endometriosis, should this drug prevent new outcome of my disease. I understood that Cataflam is NSAIDs and that it is usually is used to treat pain. However, Cataflam should have some anti-inflammatory potential, so I hope that it would help. How am I supposed to deal with this disease?
View 1 RepliesEndometriosis :: Uterus Is Really Bulky With 10.2mm?
I am 18 years girl with height of 5.2' and 115 lbs. my ultrasound report says my endometrial thickness is 10.2mm and the doctor said its bulky. Does my uterus is really bulky? if so what should i have to do? what are the possible risks and treatments?
View 2 Replies