Chiari Malformation :: Another Decompression Surgery?
I had my decompression surgery and a cranio-cervical fusion about 8 years ago. I started to have headaches, dizziness and numbness again. I had an MRI and it shows a significant decrease in the flow to the back of my lower brain. Has anyone had this happen? Does it involve another surgery?
View 1 RepliesChiari Malformation :: Breathing Trouble
Over the years I have been having issues breathing as well as chest pains and a host of other symptoms. I was diagnosed with another condition however recently doctor's at discovered that I indeed have Chiari Malformation 1 and not what I was previously diagnosed with. The past two days my breathing have been terrible, I feel as though I am struggling to breathing, which makes me light headed. I also find that I have to take deep breath in-between speaking. I also have been having mental lapse as well. Is this normal with Chiari?
View 1 RepliesChiari Malformation :: Lump On Side Of Neck
One week post op. Anterior cervical disc fusion - 3 levels. Painful lump on side of neck with incision and Doctor is not answering questions until 2 week office appointment. What is this ?
View 1 RepliesChiari Malformation Patients Develop Syringomyelia?
I've recently been diagnosed with Chiari Malformation type 1 and after reading up on the condition I found that lots of people with the condition either already have or develop syringomyelia. Does anyone know how likely it is that this will develop? Also, does anyone know if the symptoms will continue to worsen over time or will they improve now I'm on medication?
View 3 RepliesChiari Malformation With ADHD - A Lot Of Cognitive Issues
I am an adult with ADHD, 15 months ago I had decompression surgery as I had a syrinx almost the full length of my spine and Chiari malformation. The syrinx has reduced massively but is still large. I have had many symptoms following surgery but am wanting to know if any chiari patients also have experience with ADHD as alot of the cognitive issues I am having now are similar to ADHD like lack of concentration and taking in information. From what I can find there is no official info about this so I was hoping to hear from anyone who has a personal experience of this. I don't know if I can expect to return to normal as alot of the cognitive symptoms I already had but on a much smaller scale.
View 11 RepliesChiari Malformation :: Bowel Movements After Surgery
I have always had problems with bowel movements with my chiari before surgery but this is intense. I am going five days with no urges to go at all ever since my surgery, so every five days I go. I am doing laxatives to go at every five days. It is getting painful. Is this normal? I know that constipation is normal with pain pills but usually there is an urge to go and you just can't. But the feeling to go has completely left. I'm worried. My stomach is swollen I look pregnant and is nearly as painful as my recovery from surgery. I am taking everything they told me- stool softener, miralax, benefiber, milk of mag, and suppositories. The pa said to avoid enemas if I could. Has anyone else had this problem?
View 1 RepliesChiari Malformation :: Extreme Nausea 80% Of The Time
I have Chiari Malformation and was told I have EDS as well, I'm in the process of getting an official diagnosis. Besides headaches and other symptoms, one of my biggest problems is nausea! I had the stomach bug back in January and it seems that ever since I have been extremely nauseous 80% of the time. I've been tested for GI pathology and food sensitivities and nothing seems to correlate. Been thinking of possibilities with sugar or salt/electrolyte problems? It's worst at night, I wake up an hour or so after falling asleep and I'm extremely nauseous, I feel as if I move I will throw up and my body is shaking, like tremors.
View 4 RepliesChiari Malformation :: Decompression Surgery Will Fix Vision And Hearing?
I have a child recently diagnosed with chiari malformation type 1. His age is 4. It started with vision and hearing issues, then breath holding spells when hit in the head. All started at age 2. He has strabismus with esotropia. Recently started having spells where he will drop to the ground and cover his eyes (photosensitivity) complains of spinning, they last 2-4 hours followed by 24 hours of vomiting. The neurologist believes this is unrelated to the chiari. I have scheduled a second opinion with a neurosurgeon. He also is constantly smelling everything. Any thoughts on that part? I was wondering if this is all related to chiari and if he has the decompression surgery will it fix his vision and hearing?
View 7 RepliesChiari Malformation :: Blood Pressure 236/51 On Stress Test
Today I had a ECG stress test on a treadmill and after only two and a half minutes my BP went from 140/67 to 236/51. Has anyone heard of it being so high and with such a difference in systolic over diastolic? The diastolic actually dropped while still exercising. I am told to get an echocardiogram stress test now to determine if it is extreme hypertension rather than CAD. Has anyone else had this? Could it be chiari related. I am thinking my problems are heart related rather than chiari related now, but lucky me, it could be both I suppose.
View 2 RepliesChiari Malformation :: Nortriptyline Helpful Or Is It Just Masking Pain For Now?
Was referred to a neurosurgeon to see a physiatrist which then referred me to 2 other drs - a neurotherapist and a neuropsychologist. also prescribed nortriptyline. i guess i shouldn't have said i was a little depressed. but man isn't feeling that way probably normal after a car accident, then chiari diagnosis, then possibly brain surgery, and finally after being told i may never again get to play the sport i love which is hockey because of all this? been to 3 neurosurgeons - 1st two say surgery is an option and come back when you're ready basically. 3rd one referred me to physiatrist and said basically surgery will be an option down the road. 26mm herniation with a CSF blockage (i had a cine study with 2nd neurosurgeon). jw if anybody else has been down this road. feels like im taking steps backward instead of forward...
View 4 RepliesChiari Malformation :: Hearing Screeching And Loud Knocking Noises?
I'm 23 years old, I was diagnosed and had Decompression Surgery at 16. I have had nearly every symptom of Chiari that I have read about and this isn't new. Ever since I can remember I have seen and heard things that aren't really there. Although I always knew it wasn't real, most the time, it startles me. I have been treated with anti-psychotics and anti-depressants my whole life to no avail. Untill now I accepted the fact that it was just psychosis, but in the last year I have weaned myself off of all medication for depression, anxiety, and psychosis and behold! My depression and anxiety have diminished to nearly being non-existent. I AM HAPPY! But when I get a headache, the back of my neck/head swells and when it gets bad, I start hearing voices, screeching and loud knocking noises. It also feels as if there are people touching me, pulling at me, my skin crawls like there are ants inside of me. Also I see flashing lights, floaters, my vision gets blurry and distorted as if I am looking into those trick mirrors at carnivals.
I am scared of being labeled depressed and psychotic by doctors so I don't say anything. I have been dismissed by the only neurologist I have seen since my surgery, she even said I was 'cured' by the surgery. ARE these symptoms of Chiari or AM I crazy?
Chiari Malformation :: Optic Neuritis? Blurriness, Flashing Lights, And The Black Letters
I am not diagnosed as of yet. I do know that I have a chiari malformation 1. About 7-8 days ago I started noticing some visual changes in my left eye. I do notice intermittent pain/ pressure to my left eye and forehead. The best way I can describe the visual changes are as an ocular migraine- everything looks really bright, some blurriness, flashing lights, and the black letters on the bright white screen of my phone look a little dull- however these symptoms come and go over the day, they are not constant. I do notice that the symptoms come on with activity, bright lights/colors, heat. I did have a sinus infection 2 weeks ago and continue with the sinus pressure. I saw my eye doctor who completed a dilated eye exam and said all was normal. Has anyone else had these symptoms with optic neuritis? These symptoms are very concerning to me- didn't feel the eye doctor took me very serious.
View 3 RepliesBirth Control :: Heavy Flow Compared To My Usual Flow
I had unprotected sex 10 DAYS ago. I took ipill within an hour after sex. However, 2 days after, I started having black blood stains. And from the 4th day till today (7th day), I started to bleed with the flow is similar to the 3rd day of my usual period time. I had my period about 17 days ago. And it was a heavy flow compared to my usual flow. Could u kindly advice what does this mean and should i do anything ? And i believe it can't be possible for pregnancy.
View 1 RepliesMenstruation :: Regular Flow To No Flow Just Like That
I had unprotected sex the 23rd and got my period the 24th, 25th, and the 26th. I had a regular flow until the 26th, where my flow just stopped midday like a faucet. This has never happened to me before, my period has always decreased in flow until I've had just brown discharge. I've never gone from a regular flow to no flow just like that. I ovulated earlier in the month, the 9th. Could I have gotten pregnant?
View 1 RepliesBreastfeeding After Breast Reduction
Any mom's out there that have had a breast reduction and then successfully breastfed their child? I had a breast reduction almost 3 years ago, but the nerves in my right nipple are gone and I cannot feel that nipple at all. It still gets hard so I know it's not dead, but I are worried that I'm not going to be able to breastfeed my daughter.
View 2 RepliesUterine Fibroids :: 30% Reduction After Embolization
I'm 6 weeks post up and I just had a follow up MRI and the doctor said my fibroids have shrunk 30%!!! My uterus was 24cm before the procedure (2440 cc) and now it's at 17cm (1690 cc) and it will likely continue to shrink for another few months. Even though it's still pretty big and I still have a lot of my symptoms, I'm also so happy than I can cry. This is the first treatment ever that seems to be working for me. In the past 5 years I've tried everything from a myomectomy and fibristal (ulipristal acetate) to various diets and natural remedies, and nothing worked. I feel so grateful right now even though I know that this could be temporary. I highly recommend that you look into it if you haven't yet!
I also have to add that this site has the most wonderful and supportive members. I had a rough recovery and couldn't do it without you. Please continue to post updates!!
Cholesterol And Triglycerides Reduction - Honey With Cinnamon Powder
I have been drinking honey with cinnamon powder mixed in warm water each morning for a couple of months and blood test results showed a drastic reduction in both. I feel it does work but it is advised to be careful that it is taken carefully and not overdosed as cinnamon can be harmful if taken in large quantities.
View 2 RepliesPolymyalgia Rheumatica And GCA :: Breathlessness - Caused By Reduction In Prednisolone
I started my PMR/GCA journey on 7th January 2015 - and what a dreadful year it has been!
I have now reduced from 60mg Pred to 35 mg Pred each day. I have had a tendency to be breathless ever since I started Pred and put on weight, however, the last couple of weeks this breathlessness has got much worse. I only have to get up from my seat and take a few steps, and I am puffing and blowing and my heart is pounding - so much so that I cannot speak. Can anyone help, please? Is it the reduction in Pred that is causing this? I am due to go down to 30mg a day from tomorrow, but I am not sure whether I should reduce, in case the breathlessness gets worse.
Alcohol Reduction / Detox :: Waking Up Several Time At Night
I'm currently doing a gradual reduction / detox but suffer really bad with Neuropathy (I believe it is) as it wakes me several times during the night. Can anybody recommend anything to help? I started taking a multi-vit & minerals at weekend with has the vit B, Thiamine & Folic Acid in but wondered if it will only help once the alcohol stops?
View 43 Replies