Ankylosing Spondylitis - Enbrel
I'm 34 years old diagnosed with as last year after over 10 years of agony with no one listening. Finally I got the diagnosis and my rheumatologist started me on enbrel last Nov. The change was unbelievable. Since then I have put on 21lbs even though I have improved my diet. For the last few weeks pain has been creeping back in and I've started using co dydramol again. I've also started with chest pain (not the as pain I had before in my chest). This has resulted in having ECG and being put on aspirin and statins. I've also had an echocardiogram today as there were minor abnormalities in my ECG. Wanting really to talk to people on enbrel. Have they had any of these side effects? Did the drug stop working as well at any point?
View 8 RepliesArthritis :: Humira Or Enbrel - Side Effects - Heart Failure?
Pills for RA are not working for me so rheumatologist is suggesting self-injected Humira or Enbrel. I read the side effects and they are scary. Especially it can cause heart failure even if you don't have a bad heart. I'd like to hear from any of you who are on these drugs and your experience with them.
View 2 RepliesAnkylosing Spondylitis Or Fibromyalgia?
I'm 30 years old and have suffered back pain and knee pain to an almost debilitating stage and the fatigue can be immense. I've had this since I was 17 ish. Quite often out of nowhere my knees will 'pop' or 'crack'. This can be when I'm walking, starting to sit, try to kneel or even stand still! Sometimes the pain is horrendous. I've also noticed my back has become less flexible over time (in fact my whole body). My calves feel heavy and my feet hurt like crazy. I find it hard to sit for very long without my spine hurting. My wife has tried massaging my back, but she hates it because she sees the pain I'm in. I have been to a Chiropractor, but I seemed only to get worse! I have been to the Dr and they seem to only want to look at one thing at a time rather than collectively. However, I do get some violent jolts or shakes which has been diagnosed as Myoclonus. It has been suggested by one Dr that I may have Fibromyalgia, however, I read through the literature and although some of it sounds familiar I'm not so convinced. By chance I then read an article in my local newspaper drumming up awareness of AS. I'd never heard of this before so I googled it and I would say the symptoms described struck a chord with me. I'm yet to discuss this with my Dr. Has anyone else found the same awkwardness in regards to getting to the bottom of what their suffering from? I'm convinced my mother also had it, although it was never confirmed. I can remember how much of a struggle daily life was for her. One Dr even tried telling her she was a bored housewife and that she needed to get out of the house more! Unbelievable. Anyway thanks for reading this, just trying to build up more of a picture of what it is I have :'
View 4 RepliesAnkylosing Spondylitis And Spondylosis
Hi. I have recently been diagnosed with spondylitis and I also suffer with spondylosis. I was in a lot of pain, so took myself down to A&E. A doctor came to see me and sent me off for an x-ray. When the x-ray came back I was told I had spondylitis. I asked was there some kind of mistake as I already had spondylosis, I was told no, this was just something else to add to my list. I was gobsmacked to say the least. This bout of pain hahas now eased. I have done some research on this, not realising that the pain would come back. I would like to know how other people cope with the pain?
View 4 RepliesPsoriasis :: Pain Management - Stelara, DMARDs, Enbrel And Humira Not Working
despite using strong painkillers, oxycodone-both long lasting plus short acting plus amitriptyline for sleep plus topical ointment, I cannot get on top of the pain or swelling. I started Stelara in December after DMARDs, Enbrel & Humira failing. I'm also on 7.5mg Prednisone daily. I can't cope much longer, this flare started in November. I suppose I should be grateful that my skin is clear but the pain in my joints is horrendous. My knees, hands and wrists are so swollen. Mobility is crap, I'm virtually crawling to get upstairs, getting dressed is so difficult and painful. I'm seeing OT in 2 weeks plus my rheumatologist on 8th March, also I'm seeing another rheumatologist in may for 2nd opinion because I'm not convinced my current one is expert in PsA. I've been going to hydrotherapy for a few weeks and am going to continue as a paying client because it's been good for me mentally and I don't want to sit around waiting to become completely immobilised. My knees are like melons today, should I rest, elevate or what? Sorry for negativity but I've just about had enough
View 38 RepliesAnkylosing Spondylitis :: Feeling Like That Of 90 Year Old?
I am 45 year old female, since my late teens I have suffered from what I always thought was sciatica, I would get bouts that could last weeks and although no proper diagnosis, DR agreed with me that was what it could be. Ive managed that through the years (and believe sometime the pain has been excruciating) with various pain relief concoctions. I would also always have an aching back, and if stretch too far its feels like something in lower my back has been ripped. As a florist for nearly 30 years I put most of my aches and pains down to the job (floristry is a hard, cold and very physical job).
Also at 19 I had my first bout of iritis, I've had it four times now in all, the last time being in 2009. The eye doctor I saw though it would be a good idea for me to have a blood test as he said iritis is a symptom of something else.
So I had the blood test and it showed the HLA marker, I was then sent to a rheumatologist who took an xray, told me I was hyper mobile and that was it...
To cut a long story short, I have been back and forwards to the docs since then. Various referrals to physio who give me exercises (which I do do) and then dismiss me. My legs now hurt sooo much, all the time in fact, I'm not unfit and not overweight (I did leave the florist 2 1/2 years ago) and although work from home, I walk the dog three miles every day. But this is more than aching legs - I can't get up the chair and as for getting up from the floor, forget it. I have to hold on when I go upstairs and lower back is constantly aching
My body feels like that of an old lady.
Incidentally, I developed a frozen shoulder in January and a lump at the base of my neck which physio said was down to posture!!!
Was back at the docs today who finally said she would refer me again as its sounds very much like AS
Does anyone have any tips on how I can get them to take me seriously, I have only ever had one x ray in 25 years but I just can't cope with my body feeling like that of 90 year old.
Ankylosing Spondylitis :: Anti-TNF Drugs In UK?
I have read on several message boards lately that there could be two new anti-tnf drugs coming to the market soon. Would that make the total 5? If so then does anyone know when these will be available to the UK market?
View 4 RepliesAnkylosing Spondylitis :: Bad Reaction Following A Spinal MRI Scan?
Has anyone suffered a bad reaction following a spinal MRI scan?
I suffered (and am suffering) terrible muscle pain and muscle weakness following an MRI scan one month ago.
My scan was standard (i.e. without a contrast dye being injected into the blood - I know the dye sometimes causes problems) and I have so far found two people who have suffered a similar reaction.
It feels as if the scan has "stirred up" my immune system to produce inflammation in muscle and joints in my right leg and right arm.
Ankylosing Spondylitis In The Top Of The Neck Affecting My Balance
I have been diagnosed with Spondylitis in the top of the neck it's not the tightness or the pain it's the way it's affecting my balance! I also have a inner ear problem so not sure what is causing the Vertigo or could it be a bit of both can anyone out there help before I go crazy thanks!
View 28 RepliesPlantar Fasciitis Due To Ankylosing Spondylitis - Pain Management?
I am new to this forum so I apologise if I am doing things wrong. I have have AS for many years, well controlled with NSAIDs but plantar fasciitis is causing me a lot of pain at the moment. Does anyone have any ideas about the best sorts of treatment? Most web sites seem to concentrate on PF caused by running, being overweight etc rather than AS? If this has already been discussed, could someone direct me to the relevant threads?
View 2 RepliesAnkylosing Spondylitis :: Anti-TNF - Does It Stop Pain? Experience?
After a two year battle with every drug going and being so terribly ill with AS my consultant has decided we need to move onto anti TNF after trying everything else with very little or no success.
Can you please tell me everything you know about anti-tnf. Was it is successful? Did it give you a life back? Does it stop the pain? Does it help with the fatigue? I am so worried about trying it, but need to urgently do something, as quality of life is very low and nothing else seems to work.
I need both my hips replaced, does anyone know if it helps with hip pain?
Ankylosing Spondylitis :: Pain Management Successes And Failures
I wanted to hear some of your experiences with pain management doctors. I have been involved with pain management doctors (usually anesthesiologists that have branched off into this specialty) for about 5 years now. Frankly I continue to see them since they have provided me with hydrocodone during that time and this does help to some degree. However, I have also tried many of their various treatments. I have had epidural injections, nerve ablations, trigger point injections etc. etc. Most of the results have been very minimal if anything and any results that I did get certainly didn't last very long at all. I was wondering if it is very common for people suffering from AS or one of the other related inflammatory diseases to seek help from pain management doctors. Have any of you actually been helped to any significant degree by them? For the most part I don't believe they really understand the inflammatory process. They ask me where it is hurting and when I tell them everywhere in the lower back they look at me like I'm just a hypochondriac. They assume that the pain has a specific source and their treatments should be able to fix it. My pain is severe but cannot be localized to one source. Have any of you worked with pain management people and has your experience been different?
View 11 RepliesSpondylitis :: Scared Of Enbrel Side Effects
I am a vocal coach, and around about 30 students a week. I have developed Spondylitis in my hips and my Dr prescribed Enbrel after a 2 month period of taking large amounts of Aleve and cortisone shots in hips and sacroiliac joint. I am terrified of the side effects. I teach voice all day and that is my income. I am afraid of getting sick and losing work but the pain from the arthritis can on some days be very depressing. Feel between a rock and a hard place.
Ankylosing Spondylitis :: Back Braces Helpful In Maintaining Body Posture?
I'm started bending forward due to AS, my neck has also bent slightly rightwards. Will back brace assist in keeping my posture.
View 1 RepliesAnkylosing Spondylitis :: Flare Ups Of Sore Throat And Sore Oesophagus
Does anyone else have flare ups of a sore throat and sore oesophagus, the Dr thinks it's acid reflux, ppi's aren't doing anything, now being tested for h pylori bacteria, but can't help thinking that it may be connected to my ASR
View 8 RepliesCrohn's Disease :: Humira Stopped Working
I'm 28 and have crohn's disease. I have been on humira for 2 years which had worked well. The past few months, however, I have been suffering from a debilitating flair up. My Dr upped my dosage but it hasn't made a difference and am now back on steroids. I was wondering if anyone else had experienced this with humira? And if anyone had had success with any alternative medications?
View 7 RepliesRheumatoid Arthritis :: Humira Shot And Sore Throat
I need to take the next shot today but i have a sore throat for a few days. The drs advice (in general) not to take the shot when sick (even when no fever) but this is my "permanent" condition since i started humira (3 shots thus far). Did anyone try to take it when "a bit" sick? Or do you actually wait for 2-3 "good" days before taking the shot? Last time I waited a week more than recommended and the body kind of "collapsed"...
View 2 RepliesEnbrel Have To Be Refrigerated?
My mom has been suffering from rheumatoid arthritis for 10 years now and her new doctor prescribed Enbrel injections. I’m trying to help her out since she’ll need to inject herself and I’ve been reading up on guidelines how to use this medication, but I’m not sure what effect on will it have if it’s been kept on the room temperature before we realized it should be almost always refrigerated? It was outside only for two hours at most and I’m hoping this won’t make it completely ineffective since it has to get adjusted to the room temperature first before it can be injected safely? Or could using not refrigerated Enbrel cause some side effects? I’ve been trying to reach the pharmacist, but no luck so far.
View 1 RepliesPolymyalgia Rheumatica :: Enbrel Success?
Acquaintance with a different condition has had success with it. Just wondering if it is prescribed for PMR?
View 1 Replies